Do we have a clear / true picture of what is going on in our patients lives? Amanda Smith Member of the Ostomy Forum group

Heard from the patients : I dont feel normal I am never totally naked It is like being a child again I have to rely on a bag I am always worried Everybody will know I hate it!

Revised Follow-up form

Problems experienced after stoma surgery

Stoma observations

Incidence of patients reporting peristomal skin complications.

Case study 1

Intervention Advice and support from ET Reassessment of appliances Sucralfate powder

Case study 2

1 st clinic appointment =3/08/06

Intervention Tacrolimus 0.3% in orabase paste underneath steroid impregnated tape. Advice and support from local ET Reassesment of appliances

2 nd clinic appointment=17/08/06

3 rd clinic appointment =29/09/06

Pain 6 months post surgery

Output

Problematic Output Problematic Stoma Problematic Skin 1-2 weeksColo Ileo weeksColo Ileo weeks Colo Ileo weeks Colo Ileo The odds of psychological problems when patient has problematic output, a problematic stoma, or problematic skin, as compared to non-problematic.

Conclusion Long term access to an ET nurse. Ongoing input and support is needed. 40 % fail to maintain their progression to normal status. Patients take longer to adjust to the psychological, sexual and social aspects of life with a stoma. Advanced counselling and listening skills are needed. Evidence based practice. The forms allow movement of patients and records between different hospitals and countries Easy to use forms