Health-Related Quality of Life and Perception of Care of Mucopolysaccharidosis Type I - Hurler Syndrome Patients after Successful Hematopoietic Cell Transplantation:

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Presentation transcript:

Health-Related Quality of Life and Perception of Care of Mucopolysaccharidosis Type I - Hurler Syndrome Patients after Successful Hematopoietic Cell Transplantation: A Parents' Perspective  Mieke Aldenhoven, MD, Robert F. Wynn, MD, Anne O'Meara, MD, Paul Veys, MD, Attilio Rovelli, MD, Simon A. Jones, MD, Rossella Parini, MD, Marleen Renard, MD, Victoria Bordon, MD, Tom J. de Koning, MD, Jaap Boelens, MD, PhD  Biology of Blood and Marrow Transplantation  Volume 21, Issue 2, Pages S207-S208 (February 2015) DOI: 10.1016/j.bbmt.2014.11.317 Copyright © 2015 Terms and Conditions

Figure 1 Results of the Child Health Questionnaire (CHQ) Biology of Blood and Marrow Transplantation 2015 21, S207-S208DOI: (10.1016/j.bbmt.2014.11.317) Copyright © 2015 Terms and Conditions

Figure 2 Results of the Pediatric Outcomes Data Collection Instrument (PODCI) Biology of Blood and Marrow Transplantation 2015 21, S207-S208DOI: (10.1016/j.bbmt.2014.11.317) Copyright © 2015 Terms and Conditions