for IV Congress of Polish Myeloma Patient Help Association Multiple Myeloma Patient Support Group Activities and organization changes 20-22 February 2009, Olsztyn for IV Congress of Polish Myeloma Patient Help Association

About us Founded in May 2006, self- dependent from March 2007 Regional groups: Brno,Praha,Plzeň, Hradec Králové, new from November 2008: Olomouc 170 members

General change group coordinator from August 2008 New function - group coordinator from August 2008 professional worker - free of disease any time available without physical and psychical stress

What has improved Continual, faster and easier interchange of information between regional groups Cut-down of members (patients) paper work Well-arranged and actual websites, wider content of patients´ journal Regular leaflets with new information Office with fixed working hours More time spent with leaders of regional groups

What more we wish Increase the number of members Reach out more patients with multiple myeloma (non-members) Offer psychological and emotional support to the patients and their relatives Get more partners for support of patients´ activities

Thank you for your attention