The Health Information Research Infrastructure

Slides:



Advertisements
Similar presentations
International Telecommunication Union An Insight into BDT Programme 3 Marco Obiso ICT Applications and Cybersecurity Division Telecommunication Development.
Advertisements

USE OF REGIONAL NETWORKS FOR POLICY INFLUENCE: THE HIS KNOWLEDGE HUB EXPERIENCE Audrey Aumua and Maxine Whittaker Health Information Systems Knowledge.
1 EFPC congress Gőteborg 2012 Interprofessional Education for Primary Care Professionals L. van Amsterdam.
Development Education in European Union Strengthening the network of European Development Education NGOs Presentation 21 th June 2005 by president Rilli.
Critical Role of ICT in Parliament Fulfill legislative, oversight, and representative responsibilities Achieve the goals of transparency, openness, accessibility,
European Life Sciences Infrastructure for Biological Information ELIXIR
ESPON Seminar 15 November 2006 in Espoo, Finland Review of the ESPON 2006 and lessons learned for the ESPON 2013 Programme Thiemo W. Eser, ESPON Managing.
Towards a European network for digital preservation Ideas for a proposal Mariella Guercio, University of Urbino.
8 TH -11 TH NOVEMBER, 2010 UN Complex, Nairobi, Kenya MEETING OUTCOMES David Smith, Manager PEI Africa.
ROLE OF INFORMATION IN MANAGING EDUCATION Ensuring appropriate and relevant information is available when needed.
Strategic Priorities of the NWE INTERREG IVB Programme Harry Knottley, UK representative in the International Working Party Lille, 5th March 2007.
MAINSTREAMING MONITORING AND EVALUATION IN EDUCATION Can education be effectively managed without an M & E system in place?
Public Health Executive Agency Health Programme and HLY.
Health challenges in an enlarged Europe Report from Parallel Session A1 Dr. Natasha Azzopardi Muscat Ministry of Health - Malta.
Regional Seminar on Developing a Program for the Implementation of the 2008 SNA and Supporting Statistics İlknur YÜCE September 2013 Ankara - Turkey.
DETERMINE Working document # 4 'Economic arguments for addressing social determinants of health inequalities' December 2009 Owen Metcalfe & Teresa Lavin.
EU Projects – FP7 Workshop 6: EU Funding –What’s Next? Carolina Fernandes Innovation & Funding Manager GLE Group.
Poznan 19 April Kwietnia 2005 Poznan FP6 The Next Calls for 2005 Technology Platforms FP7.
Association of Enterprise Architects International Committee on Enterprise Architecture Standards Jan 23, Collaborative Expedition Workshop #57aeajournal.org.
URBACT IMPLEMENTATION NETWORKS. URBACT in a nutshell  European Territorial Cooperation programme (ETC) co- financed by ERDF  All 28 Member States as.
European network for Health Technology Assessment | JA | EUnetHTA European network for Health Technology Assessment THL Info.
European Agency for Development in Special Needs Education Project updates Marcella Turner-Cmuchal.
OPENGIS for Water Management OPENGIS for Water Management in Developing Countries JRC Activities on Water Knowledge Management In Developing Countries.
UNGGIM – PRIVATE SECTOR NETWORK. AGENDA > OVERVIEW OF PRIVATE SECTOR >PURPOSE AND VISION OF PRIVATE SECTOR NETWORK > STRUCTURE AND TERMS OF REFERENCE.
Launched March at UN Statistical Commission in side event.
Global and regional programmes in support of 2020 Round Population and Housing censuses United Nations Regional Workshop on the 2020 World Programme on.
Health Technology Assessment
Dorota Kilańska RN, PhD European Nursing Research Foundation (ENRF)
WORK PROGRAMME to support the implementation of the Recommendation
WHO’s prioritised research agenda for the prevention and control of NCDs prioritises
INTER-AMERICAN DEVELOPMENT BANK CAPACITY BUILDING AND TRAINING.
WHO The World Health Survey General Introduction
Tackling biodiversity challenges through innovative e-learning
Integrated Management System and Certification
Monitoring social and economic rights
A Guide to SDG Interactions: from Science to Implementation
DIABOLO has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No Project duration:
Gender statistics in Information and Communication Technology for Women’s Empowerment and Gender Equality Dorothy Okello, Annual.
EAPN EU Inclusion Strategies Group
13th Governing Council of SIAP 4-5th December,2017 Chiba, Japan
The Biodiversity and Protected Areas Management (BIOPAMA) Programme
“CareerGuide for Schools”
EMIS. EDUCATION MANAGEMENT INFORMATION SYSTEM (EMIS)
European Commission Initiatives for eGovernment
The SWA Collaborative Behaviors
An Industry Perspective Nicole Denjoy COCIR Secretary General
Maximizing the value and the impact of health research in Europe
Launch of Towards 2020 GWP Strategy.
ICTPSP Call 2007 ICT for ageing well
Scanning the environment: The global perspective on the integration of non-traditional data sources, administrative data and geospatial information Sub-regional.
European policy perspectives on social experimentation
Common Solutions to Common Problems
Helene Skikos DG Education and Culture
High level seminar on the implementation of the
United Nations Statistics Division
Building Statistical Capacity UNSD perspective
National Cancer Center
Expert Group Meeting on SDG Economic Indicators in Africa
Marleen De Smedt Geoffrey Thomas Cynthia Tavares
The Compelling Case for Integrated Community Care: Setting the Scene
The current EU health information system: Challenges and needs
Advancing on the funding objectives
The Joint Action on Health Information InfAct
Assembly of Members – 12 March 2019
Assembly of Members – 12 March 2019
EUnetHTA Assembly May 2018.
Q European Conference on Quality in Official Statistics
Role of Evaluation coordination group and Capacity Building Projects in Lithuania Vilija Šemetienė Head of Economic Analysis and Evaluation Division.
Reviewing RIS3 in Catalonia
Interoperability and data for open science
Presentation transcript:

The Health Information Research Infrastructure Assembly of Members – 12 March 2019 Setting out an improved EU health information system infrastructure Name: Petronille Bogaert, Linda Abboud and Herman Van Oyen Institution: Sciensano, Belgium Contact: infact.coordination@sciensano.be

Enable top-level research Support evidence informed policy The concept Enable top-level research Improve public health Support evidence informed policy Connect networks The Health Information Research Infrastructure is about connecting networks in health information and overcome fragmentation to enable top-level research for better evidence more intelligence to support evidence informed policy with the overarching aim to improve public health (population health and health care system)

The goals To make available and share quality data, information and tools To strengthen scientific knowledge, promoting scientific cooperation and integration To support expertise development, methodological innovation and use of health information to inform policy

Scope: fill the gap Population health and health care systems Insurance data Big data Disease Registries Vital statistics Tools that we are putting toegther to answer your questions in these areas. The questions you have a re evolving. We will develop new tools to respond to your demands Indicators Hospital Care data Survey data Guidelines and manuals

What? Health Information Research Infrastructure Distributed Research Infrastructure: National network (NN) units within MSs, Participating domain specific networks (DSN) and their research communities, A central office, A web based platform that delivers services, A set of core RI activities in the form of focused projects and programmes (in contact with NN). Central office with platform National network Domain specific network A domain specific network is generally a group of collaborating researchers on a common health topic or method. Should be same figure as mine. CAN YOU GIVE SOME EXAMPLES OF THESE ACTIVITIES (or do you refer to the 3 mains blocks (one stop shop/ innovative methods/ From RIVM text: Central activities: guide, support, monitor, evaluate project progress: scientific support for project development, reporting and reformulation; capacity building: estimated number of capacity building projects per year(3-6); health reporting: 5-10 four yearly policy reports by 5-10 domain networks; two large EU-wide data collecting efforts per year; costs(rooms, lunches…)per project meeting; travel & substances; HI and data schooling/training programs; I-models; yearly conference health information. The national network is a consortium of relevant national actors.

Services Policy-making Knowledge translation Health reporting Analysis, research contextualisation Ondersteunen onderzoekers om dit te doen. 1, 2 en 3 leiden tot 3. Verschuuren et al. “Towards an overarching European health information system. 2017 HIS can be defined as a complex, multi layered system, aimed at producing health intelligence. The steps relevant for population health monitoring (right side) and the outputs of an HIS (left side) are described as a combination of the population health monitoring cycle and data-information-knowledge-wisdom hierarchy models. Definitions Health information system is defined as: “An integrated effort to collect, process, analyse, report, communicate and use health information and knowledge to influence policy and decision-making, programme action, individual and public health outcomes, and research” An EU health information system effort to collect, process, analyse, report, communicate and use comparable health information and knowledge covering all Member States, EFTA and associated countries to understand the dynamics of the health of the European citizens and populations in order to support policy and decision-making, programme action, individual and public health outcomes, health system functioning, outputs and research in the European Union. Data collection

Services Find network Find expert Find data Find guideline or tool  DSN or NN Find expert  Who is Who? Find data Find guideline or tool

Services Computing services Interoperability services Tool services Legal and ethical support GDPR and ethical aspects

Overview training programs Services Overview training programs Training services Expert support

Services Engagement with policy makers Knowledge translation support Advocate for EU health information Horizon scanning The research outputs provides you the necessary tools for decision making.

Services International Expert groups

Added value for research 1) EU-comparative data 2) Collaboration FAIR health information Data quality checks Larger cohorts for research Enhanced data access flow Structured scientific exchange Produce quicker results Ensure ethical and legal compliance Organize and connect public health expertise and systems Create synergies between projects and health information activities Better access to existing knowledge and expertise

Added value for society Decision makers Citizens and health care providers Quality information for evidence based decisions. Better preparedness. International comparison: evaluate and discuss how to tackle similar challenges. Programme evaluation. Improved health and wellbeing by enhanced monitoring of health risks, health status, health determinants, and the safety and quality of healthcare services. Evidence-based care. Reduced health inequalities. Administrators/ data providers Financers Reduce burden by providing overview of international data collection  reduce duplication. Assist in obligation to provide data to international sources. Better value for money in international health information activities. Optimise funds allocation.

Research Infrastructure outcomes FRAGMENTATION Disperse knowledge Incomplete data Difficult access INEQUALITIES Differences in quality Diversity in research capacity PROJECT BASED No long term planning Waste of resources Duplication CONNECTING STAKEHOLDERS AND INFORMATION EFFICIENT (RE)USE OF DATA CAPACITY TRAINING KNOWLEDGE TRANSLATION SUSTAINABLE INFRASTRUCTURE KNOWLEDGE DEPOT RETURN OF INVESTMENT

www.inf-act.eu @JA_InfAct