Retina Europe Youth Conference in Stockholm 2005

Introduction Henrik Rüffel, Experiences from REY 2005 vice president of the Swedish Retinitis Pigmentosa Association Experiences from REY 2005

Agenda Background Preparations Summary

Background Decision in Netherlands 2004 Supported by The Swedish RP Association Separate and independent project Main person responsible Kristin Sandvik

Preparations Five steps 1. Startup 2. Applications 3. Bookings 4. Conference 5. Reports & refunding

Startup Objectives to share experiences interesting programme low conference fee four volunteers

Startup Program Size Working model 7 days new experiences 30 participants Working model telephone meetings & e-mails

Applications EU application complex and time consuming fee 250 Euro (USD 350)

Bookings Accommodations Activities Lectures

Conference 1st – 7th of August 2005 30 participants 9 different countries Ages 17 - 39

Reports & Refunding Report to EU 70% travel refunding

Summary Why successful? Improvements

Why successful? Different skills Clear objectives Interesting programme

Improvements Step by step handbook More time Clear responsibilities More assistants