IPSG Membership Committee Update Derek M. Kelly

Membership Requirements Provisional Member- Looking to become active Pediatric orthopedic surgeon with membership to their country’s pediatric orthopedic society Obtain Department Head approval (letter), ensuring that they have the resources and departmental support available to participate in the study Digital x-ray capability Perfusion MRI capability if contributing patients to the early stage studies (must send in a perfusion MRI following the IPSG MRI protocol) IRB Approval (with all doctors recruiting for your institution listed) Active participation in the study group efforts and assigned subgroup. Participation in annual IPSG meeting at TSRH in Dallas, Texas.

Membership Requirements Active Member – once the first patient is enrolled Enrolls a patient into one of the IPSG prospective observational cohort studies Recruit a minimum of 1 patient per year (?) Keep a log of patients who were eligible for the study (i.e. patient consented or declined entry into the study) Exclusion form for excluded patients Must have an 80% follow-up rate with their patients enrolled in the study Complete study data in REDCap database If an active member fails to maintain the criteria specified above, their membership status will be considered “Inactive”.

Membership Requirements Scientific Member - work in a capacity of contributing to the study design, study protocol development, data analysis and/or data monitoring. Education at the level of a Ph.D or MD Provide a letter of IPSG support from Departmental Chief Participation in the annual IPSG Meeting at TSRH in Dallas, Texas  

Membership Stats 70 Participants in IPSG Activities 4 Removed 5 Provisional 16 Inactive 45 Active

Inactive Members Includes 3 patients 3 financial contributions totaling $925 for 2016 1 financial contribution totaling $350 for 2017

Active Members 45 Listed at Active 205 patients 7 Members do not have approved MRI (Provisional Member ?) 14 Members have failed to contribute a patient (Provisional Member ?) 29 Members have contributed at least 1 patient 3 Members have only contributed 1 patient (Inactive Member ?) 5 Members have only contributed 2 patients (Inactive Member ?) 2 Members have failed to attend an annual meeting (Inactive Member ?) 19 True Active Members 188 Patients

Contributions http://www.perthesdisease.org/memberdonate 6 “Active” members failed to contribute 2017 Contributions = $7,500.00 26 contributors so far this year http://www.perthesdisease.org/memberdonate

Membership Committee Goals Move Provisional Members into Active Status Move Inactive Members into Active Status if possible, or Remove Solicit Membership Contributions for 2017 and obtain 100% participation among Active Members http://www.perthesdisease.org/memberdonate

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