CP Research Priorities

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Presentation transcript:

CP Research Priorities Compartive Effectiveness/Interventions Physical Activity Comparative Effectiveness CPRN Registry SDR vs. Botox Best Practices/QI ITB QI Orthopedic Indications Surgical Disparities Supported Mobility Epilepsy SEMLS Outcomes SDR in GMFCS IV/V Innovations No Entry Levels of Physical Activity No Entry Exercise Strategies Chronic Disease Risk Affect on Outcomes (e.g. pain)

CP Research Priorities Aging/Longitudinal Pain/Fatigue Understanding Aging Process No Entry Adult Outcomes/Issues CPRN Registry Adult Social/Emotional/Function Adult Pain Longitudinal Outcomes CP PRO Prevention Adult Pain Treatment Trials No Entry

CP Research Priorities CAM Neuroplasticity Comparative Effectiveness No Entry Cost and Coverage Understanding Mechanism No Entry Trials

NIH WORKSHOP PRIORITIES Workshop Priority CPRN Addressing? Start a National Registry Yes Comparative Effectiveness Starting-SDR vs. Botox Studies of Adults Starting-Adult Pain, Adult Outcomes Bring in New Researchers Starting Basic and Translational Not a goal for CPRN

NIH/NCMRR PRIORITIES FOR CP NIH/NCMRR PRIORITY CPRN ADDRESSING? Early Diagnosis and Intervention Starting-Genetics Examine Interventions Across Spectrum Yes-several studies Examine Combinations of Therapies No Examine New Study Designs Yes-PBE Increase PRO’s Yes-CP PRO, Adult studies

Call to Action Physical Activity studies using CPRN More studies in highest priority areas Interventions, especially CER Aging Longitudinal design Pain Early Diagnosis and Treatment Think about: Where does CAM and Plasticity fit for CPRN Other areas of study