AHPCC PROM Study Year 2: Recruitment Austyn Snowden

Overview PROM reminder The AHPCC study The patient’s role The chaplain’s role The champion’s role

…only a chaplain will hear you as you are.

The AHPCC study: What difference do chaplains make? Key Roles: Each day hospice has ‘champion’, in charge of administering the study. Each champion has direct support from Iain Telfer, on site and online. Participants read info leaflets and consent to participate if interested. Participants complete baseline questionnaire. Chaplain visits all patients ‘as usual’ BUT: Chaplain records number and depth of visits for participants. Participants complete ‘after’ questionnaire Champion enters participant and chaplain data into online database.

The chaplain’s role The chaplain sees all patients as usual, but also keeps record of visits and depth of contact in each visit.

The Patient’s role Consider whether to participate in the study or not. If not, nothing else happens. If so: they see the chaplain as much as they need to/want to. They read the participant information sheet, sign the consent form and complete the ‘baseline’ questionnaire. After seven weeks they complete the ‘after’ questionnaire

The Champion’s role Gives study info to new patients. Takes consent. Ensures baseline questionnaire is completed Ensures chaplain is recording everything they should! Ensures follow up questionnaire is completed Enters all data into anonymised online database

Iain’s role To help you in every way! Support with study protocol Support with any questions at all Iain!

a.snowden@napier.ac.uk Iain.telfer@yahoo.co.uk Supporting docs: baseline Chaplain questionnaire Consent form after Intro leaflet Info sheet Protocol NHS ethics permission. Please email austyn For full version as pdf wouldn’t embed a.snowden@napier.ac.uk Iain.telfer@yahoo.co.uk