Andrea Sipin-Baliwas Los Angeles Cancer Surveillance Program

Slides:

Advertisements

Similar presentations

Instructions and Reporting Requirements Module 3 Electronic Reporting For Facilities March 2014 North Carolina Central Cancer Registry State Center for.

Advertisements

Instructions and Reporting Requirements Module 1 Electronic Reporting For Facilities March 2014 North Carolina Central Cancer Registry State Center for.

National Cancer Institute Cancer Therapy Evaluation Program (CTEP) presents: How to Obtain Protected Health Information (PHI) from an Outside Healthcare.

Dr. Koku Kazaura, Prevention Team Lead, CDC - Tanzania

RESEARCHERS‘ ACCESS TO HEALTH DATA – FACTS AND CHALLENGES Metka Zaletel National Institute of Public Health 24 March 2015.

SEER PATTERNS OF CARE Kimberly Kimbler, MS, CCRP, CTR Kentucky Cancer Registry

Purposes and uses of cancer registration E.E.U. Akang Department of Pathology University College Hospital Ibadan, Nigeria.

NATIONAL POPULATION BASED- CANCER REGISTRY- Dr. G.Z. Mutuma Principal Research Officer, Head, Non-Communicable Diseases Research Programme, Kenya Medical.

How are cancer statistics kept up to date?.  Example:  Dx stage II colon cancer  Cancer has metastasized to the liver – 2009  How does the.

THE GUYANA CANCER REGISTRY PRESENTED BY: Penelope Layne: RN,RM,Dp.OSH, BSC Nursing Mangement REGISTRAR GUYANA CANCER REGISTRY July 2013 PRESENTED BY: Penelope.

Tracking from Birth: Massachusetts Universal Newborn Hearing Screening Program MCHB/CDC Annual Meeting on Successful Statewide EHDI Programs Presenter:

San Francisco, CA May 30-June 2, 2013 Jennifer Watkins, MN State President, CTR.

Click to edit Master title style Research Objective: The CDC estimates that 1 in 4 people living with HIV in the U.S. are unaware of their HIV status.

University of Maryland Baltimore City Cancer Program Rhonda Silva, RN BSN Program Manager November 12, 2004.

2010 Hematopoietic and Lymphoid Neoplasm Project Registry Operations and the SEER Program.

Instructions and Reporting Requirements Appendix B Electronic Reporting For Facilities March 2014 North Carolina Central Cancer Registry State Center.

Therapeutic Education: Cancer Patients on chemotherapy: Shamim Akhter QURESHI MBBS,MPH, Ingénieur d’étude(EHESP) 2 nd June 2012 June 2010.

Cover Slide Add presentation title Presenter name and position title Date of presentation.

National Program of Cancer Registries

Cancer Registry Update St. Vincent’s Clay NEFHIMA September 10, 2015.

CASEFINDING Debra W. Christie, MBA, RHIA, CTR, CCRP Director, Cancer Research & Data Center University of Mississippi Medical Center.

ABSTRACT Background: In late 2003, a group of Centers for Disease Control and Prevention/National Program of Cancer Registries (CDC/NPCR) staff and faculty/staff.

California Stroke Registry Right Care Initiative Meeting August 13, 2012.

Data Sources-Cancer Betsy A. Kohler, MPH, CTR Director, Cancer Epidemiology Services New Jersey Department of Health and Senior Services.

The Technology Exchange for Cancer Health Network (TECH-Net) AHRQ Annual Conference: Improving Healthcare, Improving Lives September 27, 2007 Teresa M.

Sandy Jones Public Health Advisor Centers for Disease Control and Prevention National Center for Chronic Disease Prevention and Health Promotion April.

Methodological challenges for AMR surveillance programmes Gous AGS, Pochee E School of Pharmacy Medical University of Southern Africa.

Evaluating the Use of HIV Surveillance Data for Initiating Partner Services in Houston, Texas, US 2012 International AIDS Conference Washington, D.C. Shirley.

Maryland’s Cigarette Restitution Program Georges C. Benjamin, MD FACP, Secretary Maryland Department of Health and Mental Hygiene November 2000 Protecting.

Incorporating Multiple Evidence Sources for the Assessment of Breast Cancer Policies and Practices J. Jackson-Thompson, Gentry White, Missouri Cancer Registry,

Pam Isom, RN, MPH Program Manager TN Department of Health.

This material was developed by Oregon Health & Science University, funded by the Department of Health and Human Services, Office of the National Coordinator.

Vicki LaRue, CTR KCR Abstractor’s Training February 12,

Cost Drivers of Cancer Care: Medicare and Commercially Insured Populations Pamela Pelizzari April 1, 2016.

Uses of the NIH Collaboratory Distributed Research Network Jeffrey Brown, PhD for the DRN Team Harvard Pilgrim Health Care Institute and Harvard Medical.

Florida Cancer Plan Phil Roland, MD FACS FACOG Florida State Chair A Commission on Cancer.

Rosemary D. Cress, DrPH Research Program Director Improving Occupation Information in Central Cancer Registries for Use in Occupational Cancer Surveillance.

Integrating Central and Hospital Registries To Improve Timeliness and Data Quality (The Central Cancer Registry as a Hub for Data Exchange) David Rousseau,

Rhode Island Cancer Registry Internship Training Program David Rousseau, BS Director, CIS Hospital Association of Rhode Island Rhode Island Cancer Registry.

Rosemary D. Cress, DrPH Research Program Director Collection and Use of Industry and Occupation Data II: Overview and Goals NAACCR: June 19-25, 2010 Quebec.

Linking Electronic Health Records Across Institutions to Understand Why Women Seek Care at Multiple Sites for Breast Cancer Caroline A. Thompson, PhD,

Scott Van Heest IT Specialist, Data Analysis and Support Team, NPCR, CDC Denise Farmer CDC/NPCR Contractor Division of Cancer Prevention and Control National.

The Geographic and Demographic Distribution of Melanoma Throughout the United States: Implications for Primary and Secondary Prevention Bertina Backus.

Assessing Quality of Pathology Reporting: The Case of Tongue Cancer Lihua Liu 1, PhD Wesley Y. Naritoku 2, MD, PhD Juanjuan Zhang 1, MS Lenard Berglund.

Treatment Capture from Follow Back to Oncology Offices by Frances Ross Presented at the 2013 NAACCR Annual Conference Austin, TX.

Using CDC Edits Metafile in the Registry to Support Clinical Trials Recruitment Alan R. Houser, MA, MPH C/NET Solutions Dennis Deapen, DrPH Los Angeles.

NPCR – Advancing E-cancer Reporting and Registry Operations (NPCR-AERRO): An Update on Innovative Activities NAACCR Annual Conference June 16, 2009 Sandy.

Protecting access to healthcare for immigrants

Indiana State Cancer Registry

LVF Audits – an Overview

Web Plus Version 2: Secure Web-based Functions For Death Certificate and Pathology Lab Follow-back Efforts Kathleen Thoburn, Sanjeev Baral (CDC/NPCR.

SEER Case Consolidation Study: Design & Objective

This is an archived document.

Dennis Deapen, DrPH NAACCR Annual Meeting Quebec City, June 23, 2010

Didactic Series Role of Community Pharmacists in Getting to Zero Campaigns Kirsten Balano, PharmD, AAHIVP University of California, San Francisco July.

Monitoring HPV vaccine impact in Connecticut

Oncology Market Forecast

SCHS and Health Statistics

FDA Sentinel Initiative

Megan Eguchi, MPh Sana karam, md, phd

A Population Level Analysis of Statewide Claims Data

Louisiana’s Hospital Follow-up Exchange: A Decade of Partnership

NAACCR/IACR Combined Annual Conference 6/11/2019, Vancouver, Canada

Indiana Traumatic Brain Injury State Plan 2018 – 2023

Andrea Sipin-Baliwas Los Angeles Cancer Surveillance Program

Andrea Sipin-Baliwas NAACCR/IACR Meeting Vancouver, Canada

NAACCR/IACR Annual Conference, June 2019

Review of Recommendations for Partner Services

California’s Mandated Epath Reporting

Recent Incidences and Trends of the Top Cancers in Northeast Tennessee Appalachian Region Adekunle Oke1, Sylvester Orimaye2, Ndukwe Kalu1, Dr. Faustine.

Presentation transcript:

Outpatient Clinic Reporting: Understanding the Landscape and Establishing Reporting Processes Andrea Sipin-Baliwas Los Angeles Cancer Surveillance Program University of Southern California NAACCR/IACR Meeting June 11, 2019 Vancouver, Canada

EVOLVING LANDSCAPE Delivery of cancer care is no longer exclusive to the hospital setting Organizations are exploring ancillary revenue streams Private practices are being acquired by larger entities Advocacy for improving access to care Cancer becomes a chronic disease

EVOLVING LANDSCAPE Other reasons contributing to migration of care to clinics: Availability of infusion pumps for chemotherapy Antiemetic medication Development of other targeted cancer therapies

EVOLVING LANDSCAPE Other entity in LAC with 10 outpatient clinics Multi-specialty Hematology/Oncology Dermatology/Internal Med Infusion Center Radiology/Surgery/Transplant

PURPOSE We aim to thoroughly evaluate the underreporting of cancer treatment data and incident cancer cases seen at free standing medical oncology clinics and establish reporting processes for this evolving landscape.

Disease Program (Diagnosis) BACKGROUND Partnered with City of Hope (COH) as they acquired new outpatient clinics in LAC Case year 2016  2216 patients 8 facilities in Los Angeles County (LAC) Full-service cancer centers Radiation facilities Medical oncology centers Last Name First Name Middle Name MRN DOB Radiation Biopsy Chemo Disease Program (Diagnosis) Facility Name Doe Jane 1234567 10/10/1965 20161114 NULL Bone Cancer Prime Facility A John 12345678 1/7/1953 20160802 0Hem Lymphoma Prime Facility B

METHODS Generate COH Clinical Case List Review cases in statewide database (In, Not In, Possible recurrence/mets) Send annotated case list to COH COH sends medical record files for cases as requested* 1) Add treatment or 2) Abstract new case Process in statewide database *Secure Web Portal for data exchange

RESULTS

CASE DISTRIBUTION – NEW CASES Missed cases for 15 different cancer sites Most common: 1) Prostate 2) Heme 3) Breast

CASE DISTRIBUTION – TREATMENT ONLY Missed treatment for 21 different cancer sites Most common: 1) Breast 2) Heme 3) Ovarian

EVOLVING LANDSCAPE MISSING TREATMENT

EVOLVING LANDSCAPE REPORTING PROCESS Created a new reporting source for the clinics COH is responsible for reporting cases starting with 2017 Additional staff for increasing efforts 10 FTE requested Registry will be the follow back contact Establish expected caseload over time Continue to open clinics and enter into partnerships

CONCLUSION Complete case capture is increasingly challenging Linkages are an important resource (i.e. SEER pharmacy linkage) Underreporting of Prostate cases Significant underreporting of Chemotherapy, Radiation Tx, Multiple Modalities Need to keep up with new reporting sources and establish reporting relationships State policies will help enforce reporting requirements Ensure complete electronic pathology reporting (AB 2325)

Co-Authors Dennis Deapen, DrPH Kelli Olsen, MS, CTR Camille Maristela THANK YOU Co-Authors Dennis Deapen, DrPH Kelli Olsen, MS, CTR Camille Maristela The collection of cancer incidence data used in this study was supported by the California Department of Public Health pursuant to California Health and Safety Code Section 103885; Centers for Disease Control and Prevention’s (CDC) National Program of Cancer Registries, under cooperative agreement 5NU58DP006344; the National Cancer Institute’s Surveillance, Epidemiology and End Results Program under contract HHSN261201800032I awarded to the University of California, San Francisco, contract HHSN261201800015I awarded to the University of Southern California, and contract HHSN261201800009I awarded to the Public Health Institute. The ideas and opinions expressed herein are those of the author(s) and do not necessarily reflect the opinions of the State of California, Department of Public Health, the National Cancer Institute, and the Centers for Disease Control and Prevention or their Contractors and Subcontractors.