Sickle Cell & Thalassaemia GP Study Day Community Nursing

Slides:

Advertisements

Similar presentations

Supporting people in Dorset to lead healthier lives Commissioning the Dorset Community Persistent Pain Management Service Why is it so Painful to Commission.

Advertisements

Managing the Performance of Homecare Medicines Services Jane Kelly, Procurement Project Pharmacist Mick Butterfield, Specialist Technician: Homecare Medicines.

Living with and beyond treatment for cancer – the challenge for secondary care Nigel Acheson Medical Director Peninsula Cancer Network.

Questions or comments on this presentation can be addressed to You can pick and choose the elements.

North West London Haemoglobinopathy Managed Clinical Network Lola Oni Professional Services Director/ Lecturer Brent Sickle Cell & Thalassaemia Centre.

«Trust» advice bureau Target group: PLHIV PLHIV/TB Former prisoners IDUs.

A good death: we did it his way… Denise Souter. Trevor’s Story.

Pregnancy & Newborn Screening Developments

Tuberculosis in Ealing. What is TB Tuberculosis, or TB, is a disease caused by a germ (Mycobacterium tuberculosis). TB usually affects the lungs, but.

Needs Assessment: Young People’s Drug and Alcohol Services in Edinburgh City EADP Children, Young People and Families Network Event 7 th March 2012 Joanne.

Sickle cell disease is complex and expensive, with major barriers to healthcare delivery Rare disease, Minority health disparities, Incomplete control.

What is a Care Pathway? Ali El-Ghorr Implementation Advisor.

Older People’s Services The Single Assessment Process.

Canadian Best Practice Recommendations for Stroke Care Recommendation 1: Public Awareness and Patient Education (Updated 2008)

How do Mental Health Services Work? Sara Saunders Occupational Therapist Mind & Soul Network Co-ordinator for Leeds & Bradford

Healthy Liverpool. Five areas of transformation “Not just physical activity, other factors have to be considered, loneliness, deprivation, housing conditions,

Diabetes Research Network Professor Azeem Majeed Imperial College, London.

Department of Human Services Self-management Improving care Caroline Frankland Senior Project Officer Health Independence Programs Department of Human.

An Introduction to Specialist CAMHS in Somerset Mark Conway Schools Link Pilot Manager and Specialist CAMHS Clinician.

Vision for Health and Wellbeing in the Community – A Child Health perspective Dr. Stephanie O’Keeffe National Director, Health and Wellbeing For Institute.

Adult Autism Service ADULT AUTISM TEAM PRESENTATION JULY

Voluntary Sector Care Partnerships

Integration, cooperation and partnerships

Screening for Life 2017.

Understanding Mental Health Services

Introducing Wellbeing Suffolk

health promotion and prevention of NCDs in community settings

The Neurofoundation Specialist Advisor Network

Choice – 6 Steps, 6 Actions, 6 Weeks

Transforming care: the Out of Hospital Standards

Primary Care CMG Buttery MB, BS

The Triangle of Care A therapeutic alliance between service user, staff member and carer that promotes safety, supports recovery and sustains wellbeing.

East Sussex Mental Health Services

Community Drug and alcohol treatment and recovery services

Integrating Clinical Pharmacy into a wider health economy

Care Coordination Working together - the team approach

BSL Healthy Minds Supporting Deaf people's mental health through their own language and culture 1 December 2017.

0-19 Norfolk Healthy Child Programme

Psychological Wellbeing in Dementia A Northern Ireland Perspective Dr Frances Duffy Consultant Clinical Psychologist Northern Health and Social Care.

Overarching Transformation narrative – progress so far and next steps

National Diabetes Strategy An Integrated Approach to Quality Improvement Dr. Mahmoud Al Zirie, HMC – National Diabetes Guidelines and care pathways.

Providing sustainable resilient primary care

Preventing VTE in hospitalised patients

Unit 2: Working in Health and Social Care

Learning Disability Professional Senate

PROCEED Preconception Care for Diabetes in Derby/ Derbyshire:

Mental health services for people with intellectual disability in the UK Dr Bhathika Perera Consultant Psychiatrist in Intellectual disability Haringey-

CPS Strategy 2018/19 Represent - Support - Develop

YMDDIRIEDOLAETH GIG CAERDYDD A’R FRO

Hillingdon CAMHS Local Transformation

Are you really listening?

Making the Case for Health and Work Champions

CGL Jigsaw Young Person & Family Service

Principal recommendations

Specialised Commissioning Improving specialised services for sickle cell, thalassaemia and other rare inherited anaemias Response to Sickle Cell Society,

1. Reduce harms from the main preventable causes of poor health

A good death: we did it his way… Denise Souter

Health and Social Services in the Department of Health

Central and North West London NHS Foundation Trust

IMPs – Intermediate Mental & Physical Health Care Team

Service Delivery Group – January 2019

CPS Strategy 2016/17 Represent - Support - Develop

CPS Strategy 2018/19 Represent - Support - Develop

How will the NHS Long Term Plan work in our community?

MULTIDISCIPLINARY (MDT) APPROACH TO CLINICAL CARE MODEL FOR EFFECTIVE AND BEST EVIDENCE PATIENT CARE DR EZEKIEL ALAWALE MBBS, FWACS, FRCS(I), JCPTGP, GP.

NHS Sickle Cell & Thalassaemia Screening Programme

Empowering Members to Know Your Health & Own Your Health.

Clare Lewis Deputy Chief Nursing Officer Community

Hepatitis C Testing, Treatment, Care and Support

Southwest Domestic Abuse Local Action Group

Presentation transcript:

Sickle Cell & Thalassaemia GP Study Day Community Nursing Dr Lola Oni OBE Specialist Nurse Consultant / Professional Service Director Brent Sickle Cell & Thalassaemia Centre London Northwest University Healthcare NHS Trust

Aim & Objectives To promote an understanding of Community Specialist Nursing Care: Health & social challenges of living with sickle and thalassaemia Referral and care pathways Role of the sickle & thalassaemia specialist community nurse Resources to support primary care

Health & social challenges of living with sickle cell disease Chronic unpredictable life long disease with early onset of signs & symptoms Pain and hospitalisation Education Psychological impact – stigma, labelling Social impact Family dynamics Frequent contact with health services

Health & social challenges of living with Thalassaemia Major Chronic life long disease with early onset for medical interventions and treatment Regular blood transfusions Chelation therapy Risk of complications Psychological impact – stigma, labelling Social impact – education, employment Family dynamics & relationships Frequent contact with health services

Care pathway General patient population Preconception Antenatal Patients with disease states Contact the local community specialist service via the generic email i.e.: Brent & Harrow - LNWH-tr.BrentSickleThal@nhs.net Hammersmith & Fulham - CLCH.sicklethal@nhs.net Hounslow - Sonia.ambo@nhs.net

Role of the sickle & thalassaemia specialist community nurse Counselling of screen positive pregnant women and partners [national screening programme] Management of identified newborn babies with carrier and disease states [national newborn screening programme] (store disease & carrier results) Community care and support of children & adults Raising public awareness Education of health, allied & other professionals Advocacy / policy/ audit/ research

Referral to community Centre Written referral to community team Provide patients biographical details including contact number (s) Brief summary of reason for referral Copy of laboratory report (if relevant) Social issues to be taken into consideration Ensure patient is aware of referral

Acute & Community Specialist Teams in NW Sector Contact details of key specialist team members are listed in the GP pack that is being updated and will be available via the Haemoglobinopathy Network [via Brent Centre website] shortly www.sickle-thal.nhs.uk

Resources to support primary care Integrated Multidisciplinary team [acute & community – doctors, nurses, psychologists, social worker Specialist community Centre Educational programmes & materials for professionals Patient education programmes Specialist websites

Useful Websites www.sickle-thal.nwlh.nhs.uk www.sct-screening.nhs.uk www.haemoglobin.org.uk www.ukts.org www.sicklecellsociety.org www.ncepod.org.uk

National Service Proposals NHS England proposes from 2019 development of a coordinated approach to Haemoglobinopathy Services provision nationally: Local Haems Team (LHT) Specialist Haemoglobinopathy Teams (SHT) Haems Coordinating Centre (HCC) 10 Sickle & 4 thalassaemia National Haems Panel

THANK YOU