Developing Regional Registry Software: Lessons from California 10/10/2019 Developing Regional Registry Software: Lessons from California San Joaquin Valley Health Consortium California DHS Immunization Branch HLN Consulting, LLC Copyright 2002 by CA DHS SIIS

NIP Presentation Outline 10/10/2019 NIP Presentation Outline Project Goals Project Outcomes Strategies for Success October 28, 2001 Copyright 2002 by CA DHS SIIS

Strategic Goals Established October 2001 10/10/2019 Strategic Goals Established October 2001 Support Immunization Outreach Regionalize County and Local IZR Systems Bridge Public & Private Health Systems Infrastructure for California Statewide Hub Copyright 2002 by CA DHS SIIS

Project Challenges October 2001 – October 2002 10/10/2019 Project Challenges October 2001 – October 2002 Five Recently Created Regional Entities 24 Counties, 2 Million Children Under 6 Complex State Disclosure Regulations History of False Starts > 500,000 Legacy Patient Records Copyright 2002 by CA DHS SIIS

Project Structure Public-Private-NFP Partnership 10/10/2019 Project Structure Public-Private-NFP Partnership Funded by State and Federal Sources Administered by Mary Wallace, Director, San Joaquin Valley Health Consortium Managed by Ayesha Gill, Ph.D., Director, CA DHS Immunization Branch SIIS Developed by HLN Consulting, LLC Copyright 2002 by CA DHS SIIS

Strategic Outcomes October 2002 10/10/2019 Strategic Outcomes October 2002 Regional Systems with Identical Software Increasing Private Provider Participation Planning for Statewide IIS Hub Infrastructure for Bioterrorism Preparedness Sharing of Expertise and Work Outputs Copyright 2002 by CA DHS SIIS

Product Goals October 2001 Intuitive Hi-Speed Web Interface 10/10/2019 Product Goals October 2001 Intuitive Hi-Speed Web Interface Compatible with old Client Server Data Compatible with HIPAA Privacy Laws & State and County Disclosure Regulations Minimize “total cost of ownership” Copyright 2002 by CA DHS SIIS

Product Outcomes October 2002 10/10/2019 Product Outcomes October 2002 Web-based Multi-county Registry Database Now In Production in 5 Regions, As Planned Easily Customizable in Each Region New CA Regions Forming to Use CAIR Software Copyright by CA DHS Copyright 2002 by CA DHS SIIS

Product Outcomes (2) CA Automated Immunization Registry (CAIR) 10/10/2019 Product Outcomes (2) CA Automated Immunization Registry (CAIR) 3-Tier Architecture for Security and Performance Integrated Inventory Control and Reporting Tiered Access Levels for User Accounts Customizable CASA Data Export Context-Sensitive HTML Manual Copyright 2002 by CA DHS SIIS

Product Outcomes (3) CAIR Software and HIPAA 10/10/2019 Product Outcomes (3) CAIR Software and HIPAA Logging of Patient Disclosure Logging of Patient Data Viewing and Editing Masking of Confidential Data Fields Enforcement of 128-bit SSL encryption Strong Passwords and Session Timeouts Copyright 2002 by CA DHS SIIS

CAIR Patient History Page 10/10/2019 CAIR Patient History Page Copyright 2002 by CA DHS SIIS

CAIR Online User Manual 10/10/2019 CAIR Online User Manual Copyright 2002 by CA DHS SIIS

Strategies for Success Registry Software Development 10/10/2019 Strategies for Success Registry Software Development Continuous Stakeholder Involvement Weekly Conference Calls Continuous Rapid Development Full Visibility of Process and Product Rapid-Response Prototyping Copyright 2002 by CA DHS SIIS

Tactics for Success User’s Group Participation in Development 10/10/2019 Tactics for Success User’s Group Participation in Development Copyright 2002 by CA DHS SIIS

Tactics for Success (2) Registry Software Development 10/10/2019 Tactics for Success (2) Registry Software Development Regular Attendance by Stakeholders Dedication to Outcomes Availability of Expert Counsel Web-Based Communication Tools Copyright 2002 by CA DHS SIIS

Tactics for Success (3) Web Communication Tools 10/10/2019 Tactics for Success (3) Web Communication Tools Project Web Page with Minutes and Specs Discussion Board with Q & A Issue Tracking Database and Reports Web Conferencing for Prototyping Copyright 2002 by CA DHS SIIS

Project Web Page Web Communication Tools 10/10/2019 Project Web Page Web Communication Tools Copyright 2002 by CA DHS SIIS

Web Discussion Board with Q & A 10/10/2019 Web Discussion Board with Q & A Copyright 2002 by CA DHS SIIS

HLN Issue Tracking Web Database 10/10/2019 HLN Issue Tracking Web Database Copyright 2002 by CA DHS SIIS

CAIR Data Model in Hummingbird BI/Query 10/10/2019 CAIR Data Model in Hummingbird BI/Query Copyright 2002 by CA DHS SIIS

Today’s Lessons Registry Software Development 10/10/2019 Today’s Lessons Registry Software Development Continuously Involve Stakeholders Design, Prototype, Code, Test (and again!) Keep Tabs on Legislation and Standards Copyright 2002 by CA DHS SIIS