User survey for BRCA Service for Ovarian Cancer Patients (on blood samples) Sept 2017

Since 2015 we have provided a BRCA testing service for ovarian cancer patients. As a referrer to this service, we would appreciate you taking a few minutes to complete this short survey about this BRCA service – your feedback is important and will help us to ascertain whether we are providing a good quality service, and how we can improve in the future

Survey sent on 12/09/2017 to 12 gynaecological cancer referrers deadline was 29/09/2017 reminder was sent out on 25/09/2017 Responses – 3 received (25% response rate) Unless indicated otherwise response options were: Poor, Below average, Average, Good, Excellent, N/A

Q1 – How would you rate the following sources of information available about our BRCA service? Laboratory website Service-specific email notfications provided by the laboratory Information provided by clinical genetics about the service

Q1 – How would you rate the following sources of information available about our BRCA service? Laboratory website Good, n/a, Excellent Service-specific email notfications provided by the laboratory Good, Excellent, Excellent Information provided by clinical genetics about the service

Q1 – comment from respondent 1 “One concern is that the referrer is not notified that a sample has been received and a result is pending – having that feedback would provide reassurance that a sample has not been lost, and help planning to see the patient around the predicted date when results will be available.”

Q2 – How would you rate the quality and clinical usefulness of the BRCA reports that you receive from the laboratory? Good, Excellent, Excellent

Q3 – the turnaround time (TAT) for BRCA results is 8 weeks – how would you rate the performance of the laboratory in delivering this TAT? Good, Good, Good

Q4 – How would you rate the responsiveness of the laboratory staff to any queries or requests for information, either by telephone or by email? N/A, Excellent, Good

Q5- As you may be aware we have introduced a new BRCA request form (previously filled in a purple form and an audit form – now all in one). How would you rate the BRCA request form? Excellent, Excellent, Good Comment from respondent 2: Much better to have only one but wasn’t aware of the change until moved to Swansea.

Q6 – are you aware that there is now a funded service available for Welsh patients to perform a BRCA screen on tumour tissue? Response option No. of times selected Yes, and have used 2 Yes, but have not used 1 No Comment from responder 2: Thought this was being done automatically on all germline patients – is this not the case?

Q7 – Are there any additional services we could offer in this area? All 3 skipped this question

Q8 – Any comments in relation to any of the questions, the BRCA service in general or any improvements Responder 1: Thank you for providing this very important service and for dropping the age cut-off

Summary, Conclusions and Actions No ratings lower than ‘Good’ No current desire for expanded service from this user group Consider options for advising of received/ongoing cases Advise clinician 2 that tumour testing is not automatic (Improve TATs)