ANZDATA Session, ANZSN 2013 Steve Chadban Nick Gray Kev Polkinghorne Melanie Wyld Stephen McDonald Phil Clayton Matt Jose Stock, flow and direction ANZDATA Audit Haemodialysis prescription Pregnancy after transplant – kids Deceased donor trends Living donor trends Who and What’s next at the registry

RRT A&NZ – Jan 2011 Transplant 9,968 Dialysis 13,063 RRT Jan 2010 23,031

RRT A&NZ – 2011-12 2,937 new starts* Transplant 9,968 117 pre-emptive Tx 4% 2,820 new dialysis 96% Dialysis 13,063 *Similar number do not receive RRT. See Sparke et al, AJKD 2012

RRT A&NZ – 2011-12 2,937 new starts Transplant 9,968 117 + 956 - 248 pre-emptive Tx 839 Tx from dialysis 2,820 new dialysis 248 graft fail Dialysis 13,063 + 3,068 - 839

RRT A&NZ – 2011-12 2,937 new starts 2,087 Deaths Transplant 9,968 + 956 - 248 - 243 117 pre-emptive Tx 839 Tx from dialysis 2,820 new dialysis 243 death with function 2.4/100 pt yrs 1,844 death on dialysis 14.0/100 pt yrs Dialysis 13,063 + 3,068 - 839 - 1,844 248

RRT A&NZ – 2011-12 2,937 new starts 2,087 Deaths Transplant 10,433 117 pre-emptive Tx 839 Tx from dialysis 2,820 new dialysis 243 death with function 2.4/100 pt yrs 1,844 death on dialysis 14.0/100 pt yrs Dialysis 13,448 248 RRT 2012 23,881 + 3.7%

ANZDATA Registry Annual Report 2012 Figure 1.4 ANZDATA Registry Annual Report 2012

ANZDATA Registry Annual Report 2012 Figure 1.5 ANZDATA Registry Annual Report 2012

ANZDATA Registry – Plans, 2013+ Aims: Annual Report 2013 Earlier, better Phil Clayton Real-time data Efficiency, accuracy Kylie Hurst KPI, stock and flow Stephen McDonald Identified data Key dialysis and transplant outcomes – website Collaborations ANZ, Government, International Research Maximise output, impact, involvement NHMRC funding application Methods: Funding AOTA, NZ Department of Health, KHA, Amgen Hardware New interfaces, new database – 80% there New People Data team: Kylie Hurst, IT Maneesha Kandamby Epidemiology Fellow: vacancy arising Steering Committee Chair – Matt Jose Executive – Clayton and Past SC Chair Working Groups

ANZDATA Registry Working Groups Manger Members Cancer Angela Webster Germaine Wong*, Rob Carroll, Jonathon Craig, Randall Faull, Adrian Hibberd, Stephen McDonald Haemodialysis Kevan Polkinghorne Mark Marshall, Richard Allen, Rowan Walker, Vincent Lee, Stephen McDonald Indigenous Matthew Jose John Collins, Gillian Gorham, Mark Thomas, Jaqueline Hughes, Lesley Salem, Natasha Rogers, Stephen McDonald Peadiatric Sean Kennedy Lil Johnstone, Phil Clayton, Peritoneal Dialysis Neil Booudeville, David Johnson, Kym Bannister, Kate Wiggins, Philip Clayton, Stephen McDonald Transplant Scott Campbell Wai Lim*, Helen Pilmore, Graeme Russ, Steven Chadban, Stephen McDonald

ANZDATA Registry – thanks! Units – patients, doctors, nurses, allied Data and time Interest and attendance Enquiries - >2000 per annum Feedback Funders: Australian & NZ Governments, KHA, Amgen, pharma ANZSN ANZDATA stand, ANZDATA Session Workers within ANZDATA Executive, Office, Steering Committee and Working Groups

ANZDATA Session, ANZSN 2013 Steve Chadban Nick Gray Kev Polkinghorne Melanie Wyld Stephen McDonald Phil Clayton Matt Jose Stock, flow and direction ANZDATA Audit Haemodialysis prescription Pregnancy after transplant – kids Deceased donor trends Living donor trends Who and What’s next at the registry