Dementia Friendly General Practice Nottingham City CCG PLT Event Tuesday June 13th 2017

Wendy Prestney Dementia Friendly General Practice Project Officer PLAN OF AFTERNOON 1. Brief overview 2. Personal stories a) Carol Harper b) Alex Preston 3. Carers’ Research project Neil Chadborn – researcher, University of Nottingham BREAK TWO CHOICE SESSIONS a) Dementia Friends session – Lucy Whitehall OR b) Further dementia information Kris Gregory – Alzheimer’s Society (support services, dementia-friendly swimming project, volunteering) Neil Chadborn – further research projects Wendy Prestney Dementia Friendly General Practice Project Officer

Nottingham City CCG Vulnerable Adults Local Enhanced Service 17/18 payment to GP practices Dementia Awareness session Checklist assessment and action plan Most practices have signed up Becoming a dementia champion Nottingham City CCG

Why is Dementia Friendly Practice needed? We know dementia affects a huge part of the population………that there are over 850,000 people estimated to be living with dementia…and many people are living without a diagnosis, and therefore not receiving adequate services or support We also know that someone is diagnosed with dementia every three minutes…needing specialist post diagnostic support and guidance to keep them well and independent in their community for as long as possible Last year we were informed that Dementia is the leading cause of death in England and Wales…so we can’t ignore this and need to proactively respond by ensuring people affected by dementia receive the right support, from the right services, at the right time

Why is Dementia Friendly Practice needed? But its not only the person diagnosed with dementia who requires support, there are over 670, 00 people caring for someone living with dementia…and we know this can be stressful and isolating; impacting on their own health……leading to increased GP appointments. In addition, 2/3 of people with dementia live in the community and therefore the main point of contact for support is from their GP or Primary Care We know that 70% of people with dementia have co-morbidites and therefore often have complex medical needs and if you combine this with the fact that 1 in 6 people over the age of 80 have dementia…then this creates a complex landscape for general practice to manage ….. Reinforcing the need for specialist, dementia friendly services

Daughter, Carer & Advocate Carol Harper Daughter, Carer & Advocate

Carol Harper & Chris Braithwaite

More photos of Mum

Services regularly used by Carol and Chris

Alex Preston Alzheimer’s Society Three Nations Dementia Working Group

… musician … artist … advocate

Any Questions?

Dr Neil Chadborn The Pro-Carers Study PROmoting self- management to meet the health needs of family CARERS of people with dementia. Researcher, Institute of Mental Health

Deborah Oliveira, Jim Radburn, Martin Orrell, Lidia Sousa 0115 7484306 PROmoting self-management to meet the health needs of family CARERS of people with dementia: The Pro-Carers Study Deborah Oliveira, Jim Radburn, Martin Orrell, Lidia Sousa 0115 7484306 Funder: Nottinghamshire County Clinical Commissioning Groups (CCGs) 2016/17 Research Capability Funding June 2017

What is the purpose of the study? February 2017 to February 2018 Aims: To understand family carers’ unmet health needs What can be done to help carers to look after their own health? To help Nottinghamshire CCGs to target carers’ main priorities, direct support, and prevent health problems

What is this study about and why it is needed? Family carers of PwD are essential for the NHS and the UK population as they help save approximately £132 billion of public funds every year. Due to the need to provide intensive care for PwD, carers often neglect their own health -> higher morbidity and increased NHS costs(Carers UK, 2015; White, 2013). Significant impact on carers’ quality of life (QoL), use of health care services, and ability to continue to provide care for their family members. Funder: Nottinghamshire County Clinical Commissioning Groups (CCGs) 2016/17 Research Capability Funding

How we will achieve these? The study has three steps: 1) Consultation of research and clinical experts using a questionnaire; 2) Three consultation events to ask carers, practitioners, and policy makers, as well as voluntary organisations, about their views and experiences on family carers’ health and self-care. Carers/practitioners will be specifically asked about: their experiences of day-to-day facilitators and barriers to self-care their views on the practicalities and feasibility of self-care activities 14 August, 11 September, 23 October, at Institute of Mental Health

3) Six focus groups : Carers will be asked: What can be done to improve their unmet needs What they are willing to do to improve their health Their opinions on a future self-care intervention Clinicians/practitioners will be asked: Meeting carers’ needs, Day-to-day barriers and facilitators What is practical/feasible?

E-mail: Deborah.DeOliveira@nottingham.ac.uk For more information Dr Deborah Oliveira The Institute of Mental Health University of Nottingham Inn Park Triumph Road, Nottingham NG7 2TU  Phone: 0115 74 84307 E-mail: Deborah.DeOliveira@nottingham.ac.uk Funder: Nottinghamshire County Clinical Commissioning Groups (CCGs) 2016/17 Research Capability Funding

Any Questions? Dr Deborah Oliveira Phone: 0115 74 84307 Deborah.DeOliveira@nottingham.ac.uk