Health Care Executives Statement Highlights Rainu Kaushal Weill Cornell Medicine New York-Presbyterian Hospital Gregg Meyer Partners Healthcare System
Prioritized Barriers Misaligned risk equation for data sharing Financial and security risk for health systems with accompanying criminal and financial penalties Changes in this equation with growth of value based purchasing Prioritization of the financial cost of data sharing Expensive to share data What is the ROI? How do you prioritize this expense? Risks of harm from loss of competitive advantage Unintended consequences from data sharing by revealing information on comparative performance, cost structures, utilization, and contractual arrangements between hospital, payers, and suppliers ---Financial and security risks
Near Term Solutions Misaligned risk equation for data sharing Specify and quantify the actual risks and value of data sharing while also specifying risks of not sharing Establish a forward-thinking pilot group among healthcare stakeholders, including patients, payers, and health systems to facilitate trust between parties and develop a case for data sharing Learn from successful data sharing efforts within and outside of health care
Near Term Solutions Prioritization of the financial cost of data sharing Reframe the business case for data sharing by demonstrating value of sharing data and enumerating the financial and human cost of not sharing data Decrease costs of data sharing, for example by leveraging registries or adopting a common data model such as by building on the work of the United States Core Data for Interoperability Task Force (UCSDI)
Near Term Solutions Risks of harm from loss of competitive advantage Code of conduct: creating a common foundation of policies and practices that contemplates a broad range of use cases independent of technology delineating the rights and responsibilities of different actors for thoughtful stewardship of data
Near Term Solutions Overarching action step Implementation of guidance on data blocking and interoperability from the CMS “Interoperability and Patient Access Proposed Rule” and ONC “Notice of Proposed Rulemaking to Improve the Interoperability of Health Information” released on February 11, 2019 Endorsed by all the past National Coordinator for Health Information Technology
CMS & ONC Proposed Rules Advancement of application programming interfaces (APIs) enabled by data standards Expansion of the interoperability and API framework to health plans Medicare’s conditions of participation as a powerful tool to help drive interoperability and exchange Information blocking provisions and strong compliance mechanisms A new privacy framework to protect consumers Robust stakeholder education and fostering alignment with related regulations ---Financial and security risks