TAND 101 TANJALA T. GIPSON, M.D. DIRECTOR, TAND CLINIC TSC CENTER OF EXCELLENCE LE BONHEUR CHILDREN’S HOSPITAL MEMPHIS, TN MAY 28, 2019

GOALS DEFINE TAND REVIEW TAND CHECKLIST LIFETIME THE TAND EVALUATION: WHAT TO EXPECT PREPARING FOR YOUR TAND EVALUATION KEY POINTS QUESTION AND ANSWER  

TAND = TUBEROUS SCLEROSIS ASSOCIATED NEUROPSYCHIATRIC DISORDERS       

TAND

TAND 0-3 3-6 6-9 12-16 18-25 prn >25 Comprehensive formal evaluation

TAND Practice Parameter based Management Strategies, eg Autism Consider the need for an IEP Medical evaluation for sudden behavioral change Screen for TAND at least annually

TAND CHECKLIST LIFETIME VERSION

TAND CHECKLIST LIFETIME VERSION

TAND CHECKLIST LIFETIME VERSION

TAND CHECKLIST LIFETIME VERSION

TAND CHECKLIST LIFETIME VERSION

TAND CHECKLIST LIFETIME VERSION

TAND CHECKLIST LIFETIME VERSION

TAND CHECKLIST LIFETIME VERSION

TAND CHECKLIST LIFETIME VERSION

TAND CHECKLIST LIFETIME VERSION

TAND CHECKLIST LIFETIME VERSION

TAND CHECKLIST LIFETIME VERSION

TAND CHECKLIST LIFETIME VERSION

TAND EVALUATION: WHAT TO EXPECT Visit preparation TAND Checklist TSC specific concerns Interdisciplinary team approach Neurology/neurodevelopmental disabilities specialist Speech/language pathologist Social worker Neuropsychologist Child Life Specialist Chaplain (upon request) Ongoing, individualized management

TAND EVALUATION: HOW TO PREPARE RECORDS VIDEOS TAND CHECKLIST PATIENT PORTAL SIGN UP TIME ACTIVITIES SNACKS

TAND TAKEAWAYS Avoid waiting. It’s never too late or too early. Research available clinical services and requirements. Communicate with the TS Alliance. Don’t give up hope!

THANK YOU!