Planning and Preparation for the End of Life

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Presentation transcript:

Planning and Preparation for the End of Life Amanda Cheesley - RCN Professional Lead for Long-Term Conditions & End of Life Care

Why planning and conversation is vital To find out what people know and understand about their end of life To find out what the person believes will happen To learn about what is important to the person To avoid misunderstandings and mistakes To do the right things for and with the person To have a plan and be able to share it To make their end as good as it can be

My Plan – What is Yours? To live well until I die To concentrate on what matters to me To communicate my wishes to those who need to know To enjoy life to the full To eat and drink what I want and enjoy To spend time with people I love

Advanced Decisions

What is an Advanced Decision? ADRT, or a living will is a decision you can make now to refuse a specific type of treatment at some time in the future. It lets your family, carers and health professionals know your wishes about refusing treatment if you're unable to make or communicate those decisions yourself. The treatments you're deciding to refuse must all be named in the advance decision. It is legally binding if it complies with mental capacity legislation. It must be signed and witnessed.

Care Planning

The Discussion DO DON’T Offer as much information as is wanted Use clear, unambiguous language Be open and honest Check understanding Allow enough time Explain what treatment will be given Document and communicate Assume you know what's best for the individual Use an inappropriate environment Breach confidentiality Start the conversation until you are sure you have time Think you are alone, there is always peer and team support – even remotely

The start of change? The ReSPECT process: Recommended Summary Plan for Emergency Care and Treatment

More information Age UK: advance statements and living wills Alzheimer's Society: making an advance decision Compassion in Dying: making decisions and planning your care Dying Matters: legal and ethical issues around advance care planning, including advance decisions Dying Matters: planning ahead for your future care (PDF, 393kb) Healthtalk.org: videos and written interviews of people talking about making an advance decision Macmillan: information on making an advance decision