SARCOMA FOUNDATION OF AMERICA

Slides:

Advertisements

Similar presentations

Arizona Caregiver Coalition Advocacy National Alliance for Caregiving Quarterly Coalition Call October 24, 2012.

Advertisements

RARE ACTION NETWORK ® Presentation by NORD June 16, 2014.

GASP Vision The Georgia Association of Sleep Professionals is the leader in Georgia for setting standards and promoting excellence in sleep medicine care,

Taking Action In Your State 1 Cara Tenenbaum, Esq. Vice President for Policy and External Affairs Ovarian Cancer National Alliance Cara Tenenbaum, Esq.

PATIENT-CENTERED OUTCOMES RESEARCH INSTITUTE PCORI Board of Governors Meeting Washington, DC September 24, 2012 Sue Sheridan, Acting Director, Patient.

Strategic Partnership of Europe, Russia, and the US.

The Eastern Area of The Links, Inc. and The American Cancer Society

The National Prostate Cancer Coalition Setting the Course for a Cure.

1 Presentation to the Centers for Disease Control and Prevention May 2008.

Clinical Trials with SARC We’re here to help.. What can SARC do for you? Provide help developing a research idea Provide help with contacting pharma Provide.

1 Presentation to NIH Scientific Management Review Board October 24, 2013 Concepcion R. Nierras, Ph.D. Assistant Vice President, International Partnerships,

INTERNATIONAL MYELOMA FOUNDATION

The Children’s Health Forum’s Ten-Year Campaign to Prevent Childhood Lead Poisoning and Other Childhood Diseases April 20, 2012 Melanie Hudson, Executive.

Parkinson SuperWalk Information for Support Groups.

1 Targeted Strategies to Improve Physician and Patient Access to Cancer Clinical Research An Overview of Coalition Programs and Services Ruth Lambersky.

Overview: FY12 Strategic Communications Plan Meredith Fisher Director, Administration and Communication.

Policy 201: Beyond a Bill – Using the Policy Process to Build the SHC Movement Beth Blacksin, Director, Government Relations, Advocate Charitable Foundation.

IDA Legislation and Coalition-Building: Broader Policy Implications of a Midwest Bi-State Coalition Melinda Lewis, El Centro, Inc. Lisa Mason, MOKANSave.

>>> NPF OVERVIEW Kathleen Gallant National Psoriasis Foundation Trustee Secretary, IFPA National Psoriasis Foundation.

1 Creating Change Through Social Media Educating on Policy Empowering your Voice. Engaging Individuals. Amy O’Connor Lilly Digital Government Affairs August.

Research: A Key to Prevention Advocacy Forum June 22, 2015.

Rhode Island Health Literacy Project (RIHLP)

11th Annual Maryland State Council on Cancer Control Conference Andy Miller, MHSE, CHES Associate Director of Public Health.

Broad Instructions: Do something for people who are going through this, We need better treatments and better medication.

By Piotro Krisski March, Who is Susan G. Koman? What does the foundation do? Why should you support it? Leading the Charge Against Breast Cancer.

The Modern Transit Partnership. MTP History Formed in 1997 by the CAT Board of Directors as a 501(c)(3) non-profit advocacy and education organization,

The Importance of a Strategic Plan to Eliminate Health Disparities 2008 eHealth Conference June 9, 2008 Yvonne T. Maddox, PhD Deputy Director Eunice Kennedy.

Marguerite Littleton Kearney, PhD, RN, FAAN Director, Division of Extramural Science, NINR NIH/NINR Funding Opportunities in Family Health Research CANS.

University medical center Introducing the UMC Web Site.

The Power of Collaboration: Working with Your Program Consultant Sharon Sharpe Assistant Chief Comprehensive Cancer Control Branch Centers for Disease.

September 20, “Real Choice” in Flexible Supports and Services A Pilot Project Kim Wamback, UMMS Center for Health Policy and Research (Grant Staff)

Mobile content for frontline health workers mHealth Workshop October 15 th 2013.

1 National Technical Assistance for Assistive Technology: A summary of the RESNA Catalyst Project and its National Partners October 21, 2015.

Research Advocacy A Survivor’s Perspective March 10, 2012.

AAPM&R Annual Assembly Boston, Massachusetts NIH - Promoting a Robust Pain, Musculoskeletal, and Rehabilitation Research Portfolio Jennifer Zumsteg, M.D.

Brian Smith Associate Vice Chancellor, Research Infrastructure and Operations Academic Senate Committee on Research December 15, 2014.

Guidance Education Support CONNECTIVE TISSUE ONCOLOGY SOCIETY November 2006 SARCOMA ALLIANCE Arthur Beckert Executive Director.

Y OUR. Beginning Our 33 rd Year! Strengthening Families! Building Communities! Serving America!

Illinois Coalition for School Health Centers Keeping Students Healthy and Ready to Learn School Health Initiatives Midwestern Regional Meeting July 23,

Awakening America to the service and struggles of our nation’s military and veteran caregivers 1.

9/22 represents: Chronic Myeloid Leukemia & September 22

Grant Program Susan G. Komen Iowa Affiliate.

Population Health in a Reforming Healthcare System: Overview, Trends & Opportunities Sue Pechilio Polis Director, External Relations, Trust for America’s.

The Housing and Community Development Network of New Jersey SUPPORTING NEW JERSEY’S COMMUNITY DEVELOPMENT SECTOR SINCE 1989.

Institutional Services and Community Development (ISCD)

National Primary Oral Health Conference

Dana Farber/Harvard Cancer Center Breast Cancer Advocate Group

Prevention Solutions for the Next Generation: Highlighting Adolescent Research in the NIH HIV/AIDS Clinical Trials Networks and the Adolescent Trials Network.

Auburn Alumni Engineering Council New Member Onboarding March 22, 2017

Abramson Cancer Center in the News

Toolkit #1: What is Rare Action Network?

Pennsylvania Culture Change Coalition Our Journey

HBCU-UP at Johnson C. Smith University

Student Veterans of America

Institutional Services and Community Development (ISCD)

Q3 Academic Year (January – March 2018)

How to get involved with your local AFSP Chapter

The Modern Transit Partnership

VFW Auxiliary Senior-Vice Presidents’ Conference By Richard Potter

Giving New Voice An SCDAA Overview…..

CHADD improves the lives of people affected by ADHD

What Is Fair Share? 2016.

But There is Hope and Progress…..

OregonASK PARTNER MEETING

EMPEA’s Long Term Strategy & What it Means for Members:

Building a Strong Coalition to Serve Those in Need in Summit County

Energy and Environmental Committee

Learning Collaborative

Advocacy 101 Kristen Angell, Associate Director of Advocacy

Florida counts! Census 2020 Natalie Castellanos, JD

Presentation transcript:

SARCOMA FOUNDATION OF AMERICA www.curesarcoma.org

The mission of the Sarcoma Foundation of America (SFA) is to advocate MISSSION The mission of the Sarcoma Foundation of America (SFA) is to advocate for sarcoma patients by funding research and by increasing awareness about the disease. The organization raises money to privately fund grants for sarcoma researchers and conducts education and advocacy efforts on behalf of sarcoma patients.

HISTORY Funded first research awards 2003 Held first patient education conference 2005 Launched Race to Cure Sarcoma Series 2015 Founded in 2000

Patient Advocacy Patient Education Research Patient Advocacy Patient Education WHAT THE SFA DOES Sarcoma Awareness

60 research institutions More than $9.6 million invested in sarcoma research since 2003 SFA RESEARCH GRANT PROGRAM RESEARCH COLLABORATIONS RACE TO CURE SARCOMA 140 research grants 60 research institutions More than 100 researchers Contributed research funds on projects with organizations such as SARC and the Conquer Cancer Foundation Support sarcoma research efforts at partner institutions through the RTCS event series

PATIENT ADVOCACY REPRESENT THE SARCOMA COMMUNITY ON LEGISLATIVE AND REGULATORY ISSUES PROVIDE OPPORTUNITIES FOR PATIENTS & CAREGIVERS TO SERVE AS ADVOCATES WORK WITH COALITIONS TO AMPLIFY THE VOICE OF THE SARCOMA COMMUNITY

" ASK THE EXPERTS" PATIENT EDUCATION SERIES Upcoming 2019 Events: Robert H. Lurie Comprehensive Cancer Center of Northwestern University - October 15 Oregon Health & Science University - October 19 PROVIDE INFORMATION ON CLINICAL TRIALS www.curesarcoma.org Patients & Caregivers Tab

SARCOMA AWARENESS SARCOMA AWARENESS MONTH RESOLUTION PUBLIC SERVICE ANNOUNCEMENTS H. Res 188 introduced in the House of Representatives in March Latest PSA, "Sarcoma Heroes," has aired on 220 stations in markets across the United States

Director of Research and External Affairs lhoffman@curesarcoma.org Lori Hodo Hoffman Director of Research and External Affairs lhoffman@curesarcoma.org 301-253-8687, ext. 105 www.curesarcoma.org