Participation of Society in Science Community Associations:

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Participation of Society in Science Community Associations:

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Participation of Society in Science Community Associations: The Woburn, MA case By Sheyla Carew March 10, 2010

The Woburn Case Woburn families one of the first groups of toxic waste plaintiffs to gather such evidence (physical and emotional) Example of popular participation in health controversies working with scientific experts and government officials. “Popular epidemiology” FACE (1980)

What is the Role of a Community Organization? Primary source of information for people living in a contaminated area. Three essential needs: Social support, information and power. Helps to reverse the psychological damage. Creation of public awareness

Technological Politics & Democracy Awareness & Mobilization Mapping Needs & resources Organize Community projects Asses social consequences Directed to city / town Education Research & Publicity Political Movements Organizations Democratic Design Process FACE -Harvard SPH - Media

Public Paradigm No Yes Prediscovery Public Understanding Scientific Knowledge Policy Government Science Public Life - Agencies -Proffesional organizations -Organizations -Polititians -Proffesional leaders -Media Discovery Treatment DEP is challenged by appealing to government, science business DEP is accepted and prevention, treatment, and research follows Disease sufferers satisfied? No Yes

Woburn aftermath Reestablishment of state cancer registry Increased research in Woburn itself Discovery of TCE syndrome Model for other toxic waste cases

“Citizens involvement is not only good politics, but also good science” Phil Brown, Toxic Exposures, 2007.