Advancing Patient Engagement through Coalition Partnerships 2nd Annual Optimizing Patient Adherence Conference Wm. Ray Bullman, M.A.M., Executive Vice President N. Lee Rucker, MSPH, Senior Advisor National Council on Patient Information and Education Rockville, MD January 15, Raleigh, NC

Objectives 1.Overview: the National Council on Patient Information and Education (NCPIE) 2. Case Studies of Current NCPIE Initiatives 3. Future Public / Private Partnerships

Introduction to the National Council on Patient Information & Education Decades before patient safety, medication adherence, or patient empowerment became part of our lexicon, they informed the heart and soul of NCPIE’s mission: To stimulate and improve communication of information on the appropriate use of medicines to consumers and health care professionals.

Since 1982, NCPIE has: Brought together public and private stakeholders who are committed to improving communication about the safe, appropriate use of medicines; Empowered and engaged consumers, patients and caregivers so they can have informed dialogue with clinicians (and other trusted sources) about their medicines, to optimize outcomes; Created and implemented programs to ensure that medicine information is useful, timely, and scientifically accurate in whatever form – and for whichever audience – it is delivered.

NCPIE’s Campaigns Serving as: Catalyst Convener Collaborator

Case Study #1: Adherence Action Agenda -- A 3 Why NCPIE? History as respected catalyst on Rx adherence (authored reports in 1995, 2007) When? 2012 – Present (Launch: Oct. 2013) Funding:

Adherence Action Agenda (A 3 Project)

A dherence A ction A genda: Development Process NCPIE surveyed key stakeholders to determine and validate A 3 focus areas Facilitator-led: –stakeholder discussion –decision-making process –consensus development during multiple Project Advisory Team meetings

Identification of Adherence Focus Areas Chronic conditions & co-morbidities: where we know taking meds safely and appropriately will make a difference in outcomes; Patient-related factors; Provider-related factors.

Identification of “Macro” Factors Current drivers impacting or reshaping medical care configuration, access, delivery, payment: Practice patterns and configurations Policy change efforts Payment / Incentives Pharma innovation – including packaging Technology innovations & adoption Health Literacy

Priorities of Adherence Action Structure Zeroed in on persons with the two most common, or with three most common, chronic conditions. Also considered how adherence challenges may differ for persons with just one chronic condition, versus those with several; and if multiple prescribers are involved. Patients’ Medicine Journey encompasses many similarities / many differences depending on life stage: –Older adults with multiple chronic conditions –Aging boomers with family caregiving responsibilities –Working age adults (who also manage meds in the home) –Retirees –Youth

Source: CMS, Chronic Conditions among Medicare Beneficiaries, Chart book: 2012 Edition, Baltimore, MD

Source: CMS. Chronic Conditions among Medicare Beneficiaries, Chart book: 2012 Edition, Baltimore, MD

Source:. CMS, Chronic Conditions among Medicare Beneficiaries, Chart book: 2012 Edition, Baltimore, MD

A Window into High-need Patients Patient Factors, such as: –Low health literacy –Misunderstanding/ need for educational interventions –Economic challenges, esp. inability to pay for needed meds –Cultural beliefs that might affect adherence –Depression or other behavioral changes –Transportation, other challenges to accessing med- related services? There and Home Again, Safely: 5 Responsibilities of Ambulatory Practices in High Quality Care Transitions, American Medical Association, Chicago, Feb. 2013: stays.page

Why NCPIE? Established, trusted source on Rx communication for older adults, and for youth (Rx drugs & kids: 1989 report) When? 2009-Present Funding: Case Study #2: Rx Abuse Prevention Recovery

NCPIE Highlighted Rx Use in Youth in 1989 Report

Rx Abuse Prevention ↔ Recovery Key Products Taking Action to Prevent & Address Prescription Drug Abuse: A Resource Kit for America's College Campuses Recovery Opens Doors: An Online Resource for Young People in Recovery The Pass It Forward Video Challenge

Rx Abuse Prevention ↔ Recovery Nothing About Us Without Us These projects were developed with input from NCPIE Project Advisory Teams –Representation from federal, private and non-profit sectors. –Hands-on involvement by young people ages –Campus programs, too: next slide 

Rx Abuse Prevention ↔ Recovery A Campus Dialogue Gaining Insights from Historically Black Colleges and Universities Engage on-campus target audiences / stakeholders: AdmissionsPolice / Judiciary Fraternities/sororitiesResidential Life Health Center Student Athletics Career Center Administration Student Counseling Spiritual Services

Case Study #3: Communicating Medication Risk and Safety Information Why NCPIE? 30+ years of collaboratively- developed general and specific messages on safe use of medicines. FDA, industry, health care professionals and consumers at the NCPIE Board table from Day One Timing: Funding:

Communicating Medication Risk and Safety Information Assess consumers’ and health care professionals’ knowledge, attitudes, use and preferences of medication risk and safety information. Project is engaging multiple stakeholders in design, implementation of national educational initiative.

Future Public / Private Partnerships with NCPIE Adherence: breaking down barriers, building incentives Accountability for the Rx value proposition Motivating patients and caregivers to optimize medication outcomes Why NCPIE? Efficient Experienced: –Catalyst –Convener –Collaborator Effective – Join Us!

For More Information: National Council on Patient Information and Education A Monroe Street, Suite 212 Rockville, MD Ph: (301) W. Ray Bullman:N. Lee Rucker: