Working with Information Governance

Outline What is Information Governance? Why? How? Benefits Do nothing option How? Principles & approach 6 aspects to the development of an IG framework

Information Governance Information component of clinical governance. “Framework for handling personal information in a confidential and secure manner to appropriate ethical and quality standards in a modern health service”

Information Governance Integration/Way of thinking/Way of Working interrelationship between initiatives unites law/ethics/policy A framework to provide “a positive & enabling tension” between IT Cultural issues Modernisation programme

Information Governance in the NHS Health Service Functions Service Quality Research Management Caldicott Report HSC 1999/053 Records Management EPR /Common Clinical Systems The Law: DPA 1998 Human Rights Act 1998 Freedom of Information Act 2000 Common Law Data Accreditation Process Data quality audit Security & confidentiality audit ISO17799 Quality Risk Management Controls Assurance NHS Numbers project NSTS/Exeter Professional regulations Ethics, Ethnicity& Beliefs Local Traditions & Practices Technological & Sociological Change Choice Seamless Services Protection Privacy

Information Governance - Why? Information & Communications Technological developments portability, duplication, access, sharing, manipulation, integration of patient records and information contained within them Societal changes – Human Rights, Ethics, Choice, Privacy Service expectations – seamless privacy, demonstrable quality, confidential teamworking Electronic clinical information systems

The do nothing option? Confusion, fragmentation & frustration Lack of progress Excess work for staff Litigation and expense Inability to set up robust flows between multiple systems Difficulties integrating systems into a seamless whole inability to produce reliable performance indicators

Information Governance - How? Principles & Approach Six aspects to consider when developing and Information Governance Framework

Principles & Approach Work with and understand system, process and people confidential communities working in confidential environments Focus on organisational structure Focus on the user Work on specifics, develop solutions, consider generic implications Policy from specifics (bottom up) Basic principles - healthcare & privacy

Six Aspects of an IG Framework 1. Teambuilding 2. Organisational structures 3. Service and work planning 4. Policy, procedure and guidance 5. Education, training and awareness 6. Standards

1. The Team Clarify the approach Always user focused Advice Guidance service new developments new systems Helpdesk Hands on practical support (we do it)

1. The Team Clarify aims Team may be working across multiple organisations Consistency, consensus & cohesion Secure, confidential & quality assured systems & process The cycle of monitor, review, audit and informed, appropriate actions for change that respect the position of all stakeholders

2. Organisation Ensuring organisational and managerial commitment Information Governance Steering Group engage at an appropriate level work with authority Terms of reference Policy principles organisational responsibilities confirms standards sets out structure

2. Organisation IG Steering Group - membership Caldicott Guardian Director of Finance and Information Head of IT Head of Medical Records Assistant Chief Executive HR

3. Planning One plan IGT to baseline the organisation Plan maps back to requirements, provides the foundation to apply and implement standards, evaluate progress System Process People

4. Policy, procedure, guidance Agreed policy Related and documented procedure and guidance Policy reflects reality Policy, procedure, guidance inform training.

5. Education, Training, Awareness Education and communication at the heart of the process Develop good quality, professional multi media training materials Design and deliver user focused training and awareness sessions Ideally integrating with an ETD strategy

6. Standards Standards currently being drawn together from the core IG initiative Modelled around H eld securely and confidentially O btained fairly and efficiently R ecorded accurately and reliably U sed effectively and ethically S hared appropriately and lawfully

Conclusion Connects Clinical & Corporate Governance Provides a flexible framework capable of responding to change. Effective use of limited resources Increases the ability to secure information flows. Increases the ability to respond to patient choice and preferences Creates a safer working environment for staff