Scottish Clinical Genetics Forum Aberdeen Data November 2010 Zosia Miedzybrodzka.

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Presentation transcript:

Scottish Clinical Genetics Forum Aberdeen Data November 2010 Zosia Miedzybrodzka

SCOTTISH CLINICAL GENETICS QUALITY MARKERS Data presented for the six months October 2009 to September Comparative data for previous year has been provided where available.

1. Access: Routine Referrals Cancer972 (53%) LD107 (6%)70 NM99 (5%)110 Cardiac223 (12%)174 Other401 (22%) Total 1849 * /million*

Number of referrals not offered an appointment within 12 weeks (84 days) 2008 = =0 2010= 0 Waiting times 2008/2009

DNA and self cancellations 2010 DNA 13%, CNA 21% 2009 DNA= 63 (9.3%) CNA=125 (18.5%) Attendees = 476 (70.6%) 2008 DNA=72 (10.2%) CNA=97 (13.7%) Attendees=529 (75.1%)

Urgent referrals?

2. Communication 2009 Acknowledgement sent within 2wks= 93% ( %) Letters sent to referring clinician within 2wks of consultation= 65% ( %) No staff to audit this data! Typing pile much smaller.

3. Patient and Carer Experience Common patient service evaluation tool not yet available to us. Ashgrove House exit questionnaire with GIA distributed, but not analysed

Evidence of mail shot to referring clinicians This has been done Evidence of current availability of genetic testing criteria to patients through a website Website up!

4. Integration 4.1 Neuromuscular Genetics

5. Service delivery Clinical staff skill mix (WTE per million population of clinical staff by skill) 2009 Consultants: 3.5 (4.1 per million) Genetic counsellors: 7.3 (8.6 per million) Other nurses: 1 x band 6, 0.5 x band 2 Admin: secretaries Ab Inv 1.0 Clerical Consultants: 3.0 but Catharine starts 1/12! GCs: 4.9 (1 advertised), 1 x b6, 0.5xb2 Admin: Ab 4.3 (clerical 1.5) Inv

Acknowledgements Heather Edmonstone Diane Crichton

4.3 Cardiac Genetics Proportion of referrals managed using agreed care pathways A multidisciplinary service is provided involving geneticist and other clinicians Number of genetic tests undertaken for probands genetic tests for probands = 492 ( ) Predictive tests for relatives= 138 ( ) Total = 634 ( )