Barriers to Health Service Utilization by Immigrant Families Raising a Child with a Disability Unmet Needs and the Role of Discrimination.

Slides:



Advertisements
Similar presentations
Welcoming Communities and Supports for Families Michelle P. Goldberg, PhD Metropolis Brown Bag Seminar Ottawa, Ontario May 25, 2009.
Advertisements

Western States Early Intervention Outcomes Project Kathryn Kreimeyer, Ph. D. Shirin Antia, Ph. D. Tucson, Arizona Arlene Stredler Brown, CCC-SLP, CED Allison.
1 The SEP Gradient, Race, or the SEP Gradient and Race: Understanding Disparities in Child Health and Functioning Lisa Dubay, PhD, ScM The Urban Institute.
Ensuring integrated and inclusive Early Childhood Education and Care.
2-1 Chapter 2: Preschool English Learners, Their Families and Their Communities ©2012 California Department of Education, Child Development Division with.
Copyright © 2012 California Department of Education, Child Development Division with WestEd Center for Child & Family Studies, Desired Results T&TA Project.
1 Mid-Term Review of The Illinois Commitment Assessment of Achievements, Challenges, and Stakeholder Opinions Illinois Board of Higher Education April.
World’s Largest Educational Community
SAC Needs Assessment. Background A goal of the Massachusetts State Advisory Council on Early Childhood Education and Care (SAC) Identify the needs of.
1 Adequate Yearly Progress (AYP) U.S. Department of Education Adapted by TEA September 2003.
0 - 0.
1 Strategies to better safeguard children in highly diverse communities Research undertaken for Tower Hamlets LSCB.
1 Positive attitudes are not enough: Minority language survival in the Canadian Prairies Jaya Nagpal & Elena Nicoladis University of Alberta.
Mixed methods synthesis ESRC Methods Festival 2006 James Thomas Institute of Education, University of London.
Child Friendly Cities Initiative
Cross-National Survey of School Principal Daniel Pop Education Support Program Open Society Institute.
Conducting Disability Research with People from Diversity Ethnic Groups: Challenges and Opportunities Fabricio E. Balcazar, Ph.D. Department of Disability.
Local Immigration Partnerships: Systems Planning to Help People.
MSCG Training for Project Officers and Consultants: Project Officer and Consultant Roles in Supporting Successful Onsite Technical Assistance Visits.
Special Education Survey Barnstable Public Schools September 17 – October 2, 2012.
WP3. Evaluation, Monitoring and Quality Plan Dr. Luis Sobrado 27 th May 2011.
Trustee Gough Ward 3 Forum TDSB/Provincial Report Card
Social inclusion initiatives: the effect of joined up approaches Justine McNamara and Alicia Payne Paper presented at the 11 th Australian Institute of.
Evaluating administrative and institutional capacity building
Waterloo Region Nurse Practitioner-Led Clinic Quality Improvement Plan Initiative.
Developmentally Appropriate Practice
Healthy Schools, Healthy Children?
1 Cultural and Diversity Considerations. Learning Objectives After this session, participants will be able to: 1.Define cultural competency 2.State the.
Southeastern Association of Educational Opportunity Program Personnel 38 th Annual Conference January 30 – February 3, 2010 Upward Bound Internal & External.
CARMEN Policy Observatory and Dialogue Proposal Presentation to the CARMEN Directing Board Meeting San Juan, Puerto Rico 30 June 2003.
Settlement Program Logic Model
The Canadian Partnership Model of Immigrant Settlement and Integration Services: Perspectives from ISO’s outside Ontario Lucia Lo Professor Department.
Children’s Partnership Strategic Planning Process & Outcomes April 2014 Children First Feedback Session.
L EDA K OURSOUMBA C OMMISSIONER FOR C HILDREN ’ S R IGHTS (C YPRUS ) ENOC C HAIR E LECT European Network of Ombudspersons for Children (ENOC) 1.
Addition 1’s to 20.
Faculty of Development & Society - Affirming Achievement 1 Multiverse Project Analysis of High Attaining Black Students: Factors and Conditions that Affect.
Week 1.
HIV and AIDS in Canada: A National Survey Liviana Calzavara, University of Toronto Dan Allman, University of Toronto Catherine Worthington, University.
Ron D. Hays, Ph.D. Alex Y. Chen, M.D. UCLA Children’s Hospital LA
Conducting a Comprehensive Needs Assessment. Objectives Identify the components of a comprehensive needs assessment Classify the types of data collected.
3 High expectations for every child
Data, Now What? Skills for Analyzing and Interpreting Data
Meredith Newlin, Research Fellow and PhD Candidate Centre for Mental Health Social Research This presentation presents independent research funded by the.
The Quality Challenge: The Early Years Strategy Nóirín Hayes Centre for Social and Educational Research
INTEGRATING IEHPs INTO THE WORKFORCE Is there a role for workplace assessment? Andrea Baumann Nursing Health Services Research Unit McMaster University.
Presenters: Donna Morrison and Laurie Lafortune Alberta Understanding the Early Years Conference: October, 2008.
Local Immigration Partnerships: A Collaborative Community Approach Victoria Esses Welcoming Communities Initiative.
Towards an Inclusive Migration Health Framework: A Large Urban Perspective by Dr. Sheela Basrur Medical Officer of Health Toronto Public Health.
National Parks & Recreation Conference & Trade Show ‘Healthy Communities- Cultivating the Vision’ ‘Healthy Communities- Cultivating the Vision’ Saskatoon.
Administrator Checklist Research and Training Center on Service Coordination.
Welcome Maria Hegarty Equality Strategies Ltd. What ? Equality/Diversity Impact Assessment A series of steps you take that enable you to assess what you.
Meaning of life for Young African adults living in Ireland. Evelyn Oboh ( ), Supervisor Name: Dr.Anna Wolniak.‏ Method Qualitative research method.
MetLib Zagreb How Inclusive is Your Library A Toolkit from Canadian Urban Libraries Jeff Barber.
1 Enhancing Services in Natural Environments Presenter: Mary Beth Bruder March 3, :00- 2:30 EST Part of a Web-based Conference Call Series Sponsored.
The Journey from Families as Consumers to Family Leadership: Cultivating Human Capital to Bring About Systems Change Early Childhood 2010: Innovation for.
2004 National Oral Health Conference Strategic Planning for Oral Health Programs B.J. Tatro, MSSW, PhD B.J. Tatro Consulting Scottsdale, Arizona.
A Guide to NAEYC Accreditation
The challenge and promise of community based participatory research 1.
University of Leeds Ethnicity and Cultural Diversity Network The Globe Centre, Accrington 22 nd September 2005.
Welcoming Communities Initiative (february 2011).
A System of Care for Children’s Mental Health: Expanding the Research Base Using the System of Care Practice Review (SOCPR) to Facilitate System Transformation.
Crosswalk of Public Health Accreditation and the Public Health Code of Ethics Highlighted items relate to the Water Supply case studied discussed in the.
Strategic Plan to Foster Immigration to Francophone Minority Communities Presentation by: Erika Gates-Gasse, OCASI.
1 Wellbeing for Children with a Disability in New Zealand: A conceptual framework By Maree Kirk BRCSS Award 2007 Department of Societies and Cultures University.
Mental Health Services Act Oversight and Accountability Commission June, 2006.
Welcoming Communities Initiative. The Welcoming Communities Initiative (WCI) a collaborative, multidisciplinary, province- wide network of university.
[Presentation location] [Presentation date] (Confirm ABT logo) Building Bridges and Bonds (B3): An introduction.
Experiences of African American Parents Having a Son or Daughter with Schizophrenia BJ Kosak MSN, RN SAMHSA Minority Fellowship Program Intensive Winter.
Alberta Mentoring Partnership Stakeholder Meeting
Unmet Needs and the Role of Discrimination
Presentation transcript:

Barriers to Health Service Utilization by Immigrant Families Raising a Child with a Disability Unmet Needs and the Role of Discrimination

2 Investigators Gillian King, Bloorview Research Institute Sally Lindsay, Bloorview Research Institute Anne Klassen, McMaster University Victoria Esses, University of Western Ontario Ronit Mesterman, McMaster University Project Coordinator: Cortleigh Teolis Funded by/ Financé par:

3 Project Overview This two-phase project will assess attitudinal, policy, and practice barriers to health service utilization by immigrant families raising a child with a physical disability This is a significant issue with implications for policy and practice regarding the integration and well-being of newcomers and their children in Canadian society The project involves families from Asia, Africa, and the Caribbean living in the Toronto and Hamilton areas who have a child with a physical disability

4 Rationale Based on a critical review of the literature on immigrant/ refugee families raising a child with a disability (King, Esses, & Solomon, in press) Little is known about the health and social service access, utilization, and service care experiences of these families, particularly in the Canadian context Directions identified for research included the need for comparative studies involving different immigrant populations –This will allow us to determine common and unique barriers and areas of unmet need related to ethnicity

5 Populations of Interest First generation families who have immigrated to Canada within the past 1-10 years from Asia, Africa, or the Caribbean Able to communicate in English or French Raising a child with a chronic condition associated with physical functional limitations, such as cerebral palsy, spina bifida, or a non-progressive muscular disorder

6 Two Geographical Locations We have chosen to focus on families accessing services for their child in two distinct geographical locations (Toronto and Hamilton) –Families may have different issues regarding access and utilization and different service care experiences due to the nature, number, location, structuring, and format of services available in different geographical areas

7 Phase 1: Qualitative Study Initial qualitative phase to obtain information about: –Service-related issues (service access, utilization, and service care experiences) –Perceptions of culturally sensitive and family- centred care (i.e., individualized and respectful care) –Helpful practices and ways in which health service organizations respond to the needs of various populations

8 Phase 1 Methods Four focus groups (2 in each location) –Community service organization representatives who provide support to newcomers –Service providers employed by health care centres –6 to 8 participants per group Six individual interviews with immigrant parents raising a child with spina bifida or cerebral palsy (two of the most common chronic disabling conditions in childhood) –One parent in each location from each of the 3 populations of interest

9 Phase 1 Analysis Qualitative analysis of themes Information will be used to refine the measures to be used in Phase 2

10 Phase 2: Quantitative Study Survey samples of immigrant families from Asia, Africa, and the Caribbean raising a child with a physical disability Parents’ perceptions regarding health service experiences for their child that are relevant to the issue of discrimination: –Barriers in access to services –Unmet needs –Extent to which services are culturally sensitive and family-centred

11 Phase 2 Methods Survey package (English and French versions): –Background information survey –Survey of Immigrant Families’ Needs and Experiences Regarding Health Services –Developed for this study –Domains  Services Received, Service Satisfaction, Interactions with Service Providers, Needs of Child and Family –Measure of Processes of Care (MPOC-20) – A psychometrically sound measure of family-centred care, translated into over 12 languages and used worldwide (King, Rosenbaum, & King, 2004)

12 Phase 2 Methods Aim to obtain 90 competed surveys (30 from each group) Based on an anticipated 40% response rate, we will do an initial mailing to 225 families meeting the study criteria: –Asian, African, and Caribbean families of a child aged 0 to 21 years with a physical disability who have been in Canada for 1-10 years Use of the Dillman Survey Design Method to increase response rate –Postcard reminders and follow-up mailings to non- responders

13 Phase 2 Data Analyses Descriptive analyses to ascertain actual experiences and needs Analyses will determine commonalities and differences in the experiences of the three groups of immigrant families –Along with the qualitative data, this will inform us about attitudinal barriers and discriminatory practices and policies Comparisons will be made with MPOC-20 data reported in past studies with English-speaking parents of children with physical disabilities (King et al., 1998; King, King, & Rosenbaum, 2004) –Enabling and Partnership, Providing General Information, Providing Specific Information about the Child, Coordinated and Comprehensive Care, Respectful and Supportive Care

14 Timeline

15 Achievements to Date Development of partnering relationships with health care and community organizations Development of study measures and recruitment materials Ethics approval at Bloorview Research Institute and McMaster University Data transfer agreement Beginning recruitment for Phase 1 focus groups and interviews

16 What We Hope to Achieve: Outputs Final report to partner organizations Presentation to staff and families at Bloorview Kids Rehab Presentation to staff and families at McMaster Children’s Hospital Academic publications Conference presentations Recommendations for future research

17 What We Hope to Achieve: Outcomes Data on unmet needs and perceptions of discriminatory practices to guide policy and future research directions Increased awareness of the role of the unique needs and challenges of immigrant families raising a disabled child Increased awareness of the agency and strength of immigrant families raising a child with a disability Promotion of public discussion and awareness of issues and opportunities Increasing Awareness

18 What We Hope to Achieve: Outcomes Increased capacity of service providers to provide culturally competent health care services Effective partnerships to develop and implement strategies to counter discriminatory behaviors and practice Improved health care utilization and reduced discrimination for immigrant families raising a child with a disability Increasing Capacity Changing Behavior & Improving Practice

Thank you Funded by/ Financé par: