Patient and Public Involvement. What is Involvement? Research that is done with or by patients and not to, about or for them. Working together with patients.

Slides:

Advertisements

Similar presentations

Senior Manager – Research Finance & Programmes

Advertisements

1 Attributing the costs of health & social care Research & Development – Understanding AcoRD Trudi Simmons Senior Manager – Research Finance & Programmes.

National Diabetes Audit (NDA) PARTNERSHIP WORKING WITH PATIENTS AND SERVICE USERS Diabetes UK is a partner in the delivery of the (NDA), with responsibility.

Patient and public involvement in clinical audit

Definitions Patient Experience Patient experience at NUH results from a range of activities that all impact upon patient care, access, safety and outcomes.

Experiences of Patient and Public involvement in the Research Process Roma Maguire Senior Research Fellow Cancer Care Research Team School of Nursing and.

Patient Public Involvement (PPI) Policy What is PPI? PPI means putting patients and public at the centre of all that we do. It encourages the active participation.

A volunteer’s guide to PPI

Care Inspectorate Self Directed Support Regulation of Care Services Heather Dall – Development Officer.

S this an urgent case? Home Based Care SCC Feedback Framework Tender Emily Parker Assistant Category Specialist HBC - Adult Social Care Procurement and.

Islington Reaching Communities Briefing 01/12/2014

The SHARE Approach Essential Steps of Shared Decision Making

Big Lottery Fund Hackney CVS Grants Workshop 27/08/2014.

agenda About Availity Claims Management Tools & Services What’s Coming

Integration, cooperation and partnerships

The National Institute for Health Research Research Design Service for the East of England 3 rd July 2015 Dr Doreen Tembo Research Adviser & Regional PPI.

SER Organisation and Governance Dr Sue Doran Company Secretary and Head of Certification.

Sarah Buckland, Director, INVOLVE People Centred Public Health Research

Families Matter: A CCFC approach to helping ACT recipients achieve their recovery-oriented goals Thomas Jewell, PhD Pascale Jean-Noel, LMSW October 23,

The work of the Research Ethics Committee Dr Carol Chu.

The power of information: Putting all of us in control of the health and care information we need Giles Wilmore, Director of Patient & Public Voice and.

CCF PPI 2009 Active patient and public involvement in research applications National Institute for Health Research Central Commissioning Facility Jean.

Cardiff and Vale UHB Bwrdd lechyd Prifysgol Caerdydd a’r Fro NHS R&D Overview How to avoid the common pitfalls? Thomas Fairman Research Liaison Manager.

Good for employees, good for business!. Presentation Objectives Identify criteria for participation Explain the steps in the process Understand your role.

Lunch & Learn – PMO April 2014 Summary April 1 st April – 30 th June 2014.

Proposed Review of the National Framework for Continuing Care.

NICE - in evidence based commissioning Gateshead Council Gillian Mathews, Implementation Consultant - North 9 September 2011.

Eracon/INENTER conference 2012 Moderated and combined presentation from the InEnter workshop Starting of an Erasmus Placement Consortium and Eracon session.

BHIVA PROMS / PREMS PROJECT A Community Consultation.

Alain Thomas Overview workshop Background to the Principles Definitions The National Principles for Public Engagement What.

Occupational Health Nursing Update – January 2015.

NIHR Research Design Service London Enabling Better Research Dr Caroline Burgess General Adviser 13 th November 2013.

“What’s in it for us?” NICE Guideline: Safe and Effective use of Medicines (Medicines Optimisation) Erin Whittingham Public Involvement Adviser Public.

The NIHR Research Design Service: supporting high quality grant applications Paul Ewings – Director RDS SW.

Creating a dialogue: helping researchers put User involvement into practice North West Users Research Advisory Group Evelyn Bitcon & David Britt & Sara.

Patient And Public Involvement (PPI) in Research Dr. Steven Blackburn NIHR Research Design Service West Midlands (Keele University Hub)

Community, Health and Social Care Directorate Integrated Commissioning Unit.

Working with the NIHR Research Design Service to maximize successful grant applications Dr. Steven Blackburn NIHR Research Design Service West Midlands.

Business Services Team TTIG Strategy Consultation: Feedback Torbay Together Involvement Group 16 th August 2011.

Applying for HEA Fellowship What happens after you’ve submitted your application.

How can research be better informed by the direct involvement of the autistic community and broader autism community? Richard Mills July

Induction toolkit 2. WHAT DOES MY TRUST LOOK LIKE? © GovernWell

Open to all: the role of public involvement in health research Faculty of Health and Social Care, Open University, Wednesday 9 th December 2015 Simon Denegri,

Cancer network Consumer Research Panels107 Sept 2006 Evaluation of Consumer Research Panels in cancer research networks Vivienne Brown, Phil Cotterell,

Getting started with your Patient and Public Involvement Deputy Director Research Design Service South West Julie Hapeshi.

PURE PROJECT DATABASE REGISTRATION How we do at Copenhagen Business School By Senior Research Adviser Annedorte Vad – telefon

A Case Study – demonstrating the Public Health Good Practice Scheme application and assessment process 15 October 2010 Presenter: Adam Jones.

A Case Study – demonstrating the Public Health Good Practice Scheme application and assessment process A Case Study – demonstrating the Public Health Wales.

Liberating the NHS: Developing the healthcare workforce Workforce planning, education and training Consultation Engagement.

NIHR Research Design Service Dr Grace Turner. Research Design Service NIHR Research Design Service Research Design Service (RDS) - Role - Eligibility.

Patient, Carer and Public Involvement and Engagement in Anaesthesia Research National Institute for Academic Anaesthesia Health Services Research Centre.

PRE- TEST #1 What is the function of the Federal Reserve System?

Seniors Alert Scheme Next Steps September Content Next Steps for Organisations Next Steps for Pobal.

Patient and Public Involvement: Supporting a future of better research Isabelle Abbey-Vital, Research Involvement Officer.

The Good, the bad and the ugly

ANSWER SHEET LISTENING (PartⅠ~ Ⅳ) READING (PartⅤ ~ Ⅶ) NO

Streamlining IIASA reporting: Scientific Update and Annual Report

REACH 2018 Find your co-registrants and prepare to register jointly.

Investment Logic Mapping – An Evaluative Tool with Zing

Help with developing research projects - Introducing the NIHR Research Design Service (RDS) Talked about ways into research and the next session looks.

Transforming Residential Care – Session

Safe Guarding Decision Making

Levels of involvement Consultation Collaboration User control

Study within a Trial (SWAT) to increase the evidence for trial recruitment and retention in decision making -Shaun Treweek From the UK Trial Managers.

Module 1: Introduction to the National Institute for Health Research (NIHR) and patient and public involvement (PPI) in research Learning outcomes 1. To.

Trustee Induction.

NIHR Research Design Service East Midlands

Consultation and Engagement

At the Information Commons Holmesglen Institute of TAFE

Presentation transcript:

Patient and Public Involvement

What is Involvement? Research that is done with or by patients and not to, about or for them. Working together with patients to develop a good research proposal Commenting on the methods or processes of the research, being actively involved in the research process.

Examples of Involvement Known as Patient and Public Involvement (PPI) Being part of the research team Helping design the research Being a member of project reference group Writing lay summaries and patient information sheets Carrying out questionnaires with the participants More power in the decision making process of the research 3

What is Involvement not? It’s not Participation: producing results that answer the research question, being the ‘guinea pig’! Its not listening to patients to design your service better Its not being part of a focus group to get feedback about a web based intervention

So why Involvement? Stops us making mistakes that are obvious to patients. Helps to guide our finances Greater transparency, making research with patients, for patients that is more relevant to patients. Obligation to the tax payer Meets requirements of the NHS Constitution. Meets requirements of funders 5

Can you spot Involvement? The following are all extracts National Institute Of Health Research grant proposals Which are Involvement and which are not? 6

"We plan a steering group for the project with four patient representatives as equal members of the research team." 1.Involvement 2.Participation 3.None of these 4.Unsure 7

"Individual service users who have been referred... via this and other routes will be interviewed regarding their experiences." 1.Involvement 2.Participation 3.None of these 4.Unsure 8

"Our patients agreed with us that the study would deliver important information and that the research was timely and important." 1.Involvement 2.Participation 3.None of these 4.Unsure 9

What can the RDS Offer? We provide a lay review service as part of our pre-submission review panel and as a separate activity. We can advertise your project through our PPI network and help to identify patients to work with in your proposal.

What can the RDS Offer? We can provide financial support to patients or members of the public working on projects supported by the RDS up until the point of submission. We can provide PPI advice from our staff on the PPI team.

What can the RDS do Give guidance on payment structures. Provide assistance in writing lay summaries usually by getting lay members to write them either with you or for you. We have useful guidance helping you consider what involvement to use to get the best out of involvement in your project.

How can we work together? Maybe you are part of, or know of, a group that wants to get involved in research, if so register yourself using the Information and Registration Form on the website. Researchers can advertise their projects through our systems. If you would like to get involved as a patient or members of public, if so register using the same form.