Liz Wolstenholme Parkinson’s UK Chair,
Highlights of 2012 Website and digital reach Self-care programmes Working with healthcare professionals Working with under-served groups Expanding the Research Support Network (RSN)
Highlights of 2012 (cont) Achieving Customer Service Excellence accreditation Securing 11 more nurse posts Campaigning on welfare issues Investing £5.7m in vital research Investing in internal infrastructure - increasing capacity and efficiency
My three years as Chair - growth Appointed Chair in 2010 Significant growth during this time: 2010Now Members:34,00037,500 Income:£20.9m£25.1m Nurses: Helpline calls:22,00027,000 Benefits secured:£8.5m£11.5m (2012) Web visits:865,000 1,400,000
My three years as Chair - research Significant investment in research: over £16m Key outcomes: Creating dopamine-producing neurons Confirming the link with REM sleep Discovering three new genes Exenatide – potential re-use of existing diabetes drug? Tracking Parkinson’s study
My three years as Chair - challenges Some challenges during this time: Safeguarding Local Group Financial Framework We’re making our money work harder: End 2010End 2013 (forecast) Reserves: (excluding fixed assets) £16.1m£7.6m
Families living with Parkinson’s, in Stratford, can access:
Typical local group area 423 people with Parkinson’s 126 people in contact with local group 90 people make enquiries to ISW 83 calls to helpline £38k secured in benefits via ISW 1 Parkinson’s nurse 5,200 website visits 3,150 info resources provided Population 200,000
Typical local group area 423 people with Parkinson’s 126 people in contact with local group 90 people make enquiries to ISW 83 calls to helpline £38k secured in benefits via ISW 1 Parkinson’s nurse 5,200 website visits 3,150 info resources provided Everything is local! Population 200,000
The future… Welcome to new Trustees Local group volunteers Identifying new volunteering opportunities Moving on