Bclupus.org Lupus Society. bclupus.org What is Lupus? It is an acute chronic autoimmune disease The immune system over-activates and misfires It can target.

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Presentation transcript:

bclupus.org Lupus Society

bclupus.org What is Lupus? It is an acute chronic autoimmune disease The immune system over-activates and misfires It can target any tissue or organ It can lead to organ failure & death

bclupus.org Who Gets Lupus? Anyone can get it It affects about 50,000 Canadians 15% develop lupus as children Between ages of 15 to 45, 80% are women No gender bias in children & those over 45

bclupus.org Winning the Lupus Lottery is No Prize! It is difficult to diagnose It takes far too long to obtain a diagnosis It is complex and involves multi-organs

bclupus.org Lupus Lottery Bonus prizes are ugly! Lupus “flares” are unpredictable and random Hospitalization is common Costs to the health system are high There is no known cause or cure!

bclupus.org Treating Lupus There is no cure for lupus Most recent lupus specific drug is 50 years old Current treatments have serious side effects –chemotherapy drugs –steroids –immune suppressants

bclupus.org Treating Lupus It takes about 5 years to diagnose lupus Treatment is very expensive –Numerous specialists are needed –Expensive drugs are used –Hospitalizations occur

bclupus.org PLEASE HELP US Lupus Society

bclupus.org Lupus Society Our Mission to support advances in research and treatments to create public awareness to provide education and support to people affected by lupus

bclupus.org Lupus Society Our Vision That early diagnosis and optimal treatment will be available to everyone with lupus That the public at large will be aware of lupus To ensure community based support networks and services

bclupus.org Programs & Services Annual Lupus Symposium –world renowned experts Lupus Research Funding –research scholarship –clinical support –research project funding Lupus Lighthouse newsletter

bclupus.org Programs & Services Education –Lupus Lighthouse –Fact sheets –Information packages, books, videos –Lupus Symposium Support Network –30 Provincial Contacts –9 Support Groups

Donate Lupus Society bclupus.org Keep the Wolf from the door

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