Fibromyalgia Association UK Fighting for Freedom from Fibromyalgia www.fmauk.org FIBROMYALGIA IN THE UK.

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Presentation transcript:

Fibromyalgia Association UK Fighting for Freedom from Fibromyalgia FIBROMYALGIA IN THE UK

Fibromyalgia Association UK aims to: increase awareness of FM lobby for speedy diagnosis lobby for effective treatment Fighting for freedom from fibromyalgia

Fibromyalgia in the UK Patient survey involving over 500 people diagnosed with FM time with symptoms, diagnosis, treatment, co morbidities satisfaction with treatment, effect on quality of life Fighting for freedom from fibromyalgia

Pain management Fighting for freedom from fibromyalgia Number of patients

Treatments prescribed Fighting for freedom from fibromyalgia

Therapies tried Fighting for freedom from fibromyalgia

Medication results Fighting for freedom from fibromyalgia

Non drug results Fighting for freedom from fibromyalgia

Conclusions Fibromyalgia is not effectively treated in the UK No one treatment is effective for everyone Fighting for freedom from fibromyalgia

What is the next step? NICE has timetabled 2016 to consider whether fibromyalgia should be considered for action. Without data to show the extent of the problem, how can an accurate decision be made? Information needs to be collected now to be ready for 2016, so that meaningful decisions and progress can be made on producing guidelines so that patients can benefit from a consistent service. Fighting for freedom from fibromyalgia

Our ask of MPs Request that data is collected of the number of people diagnosed with fibromyalgia Request that NHS centres/commissioning boards are surveyed to show how many offer a multi-disciplinary approach to treating fibromyalgia Fighting for freedom from fibromyalgia

Fibromyalgia Association UK