Kapunk tárva, a szívünk még inkább! Mr. Miklós Lukacs nurse director, hospice expert Web:

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Presentation transcript:

Kapunk tárva, a szívünk még inkább! Mr. Miklós Lukacs nurse director, hospice expert Web: HOSPICE-PALLIATIVE CARE IN HUNGARY Palliative Healthcare Symposium April

Kapunk tárva, a szívünk még inkább! Greetings from Hungary

Kapunk tárva, a szívünk még inkább!

Kapunk tárva, a szívünk még inkább!

Kapunk tárva, a szívünk még inkább! WHAT HAPPENS TO THE SYSTEM IF ONE MEMBER IS GOING TO DIE?

Kapunk tárva, a szívünk még inkább! HOW TO THE SYSTEM SURVIVE IN THIS NEW SITUATION?

Kapunk tárva, a szívünk még inkább! EVERY CRISIS IS A NEW SITUATION 4 „C” ► CONFLICT ► COHESION ► COMMUNICATION ► COMPLIANCE

Kapunk tárva, a szívünk még inkább! PEPSIPEPSI Physical Emotional Psychological Spiritual Inter Personal Calman (1993) WHY HOSPICE HOME CARE? The reduction of costly hospital care The social care needs of humános conditions.

Kapunk tárva, a szívünk még inkább! Statistical data in Hungary ► Number of population: ► Number of death: ► Cancer death:32.670

Kapunk tárva, a szívünk még inkább! The most frequent cancer illnesses ► Respiratory system cancers ► Digestive tract cancers ► Prostata cancer ► Breast cancer ► Head-neck cancer

Kapunk tárva, a szívünk még inkább! Palliative care milestones Hungarian hospice movement is founded. 1994/95 - Hospice teams with the help of the Soros Foundation Hungarian Health Law declares the human right of palliative care and defines hospice care Palliative care guideline is launched Hospice minimum standards which gives official licences and special financing Hospice financing system by the National Health Insurance Service

Kapunk tárva, a szívünk még inkább! THE HOSPICE SERVICES - 84 hospice organisation - 10 Inpatient Palliative Care Units, 162 beds - 69 Home care teams - 2 Nursing home 15 beds - 3 Consultant teams in Hospitals - 1 Hospice House, 10 beds

Kapunk tárva, a szívünk még inkább! COVERAGE OF THE HOSPICE CARE ORGANIZATION Hospice organization = umbrella organization Hungarian Hospice Palliative Association Complex services Budapest Miskolc Pecs inpatient unit, hospice home care, hospital mobile team, day care centre, pain outpatient clinic, psycho- oncological outpatient clinic, telephone mental health service, bereavement service, education centre

Kapunk tárva, a szívünk még inkább! PATIENTS IN HOSPICE CARE HOSPICE CARE ► Patients: 7019 ► Inpatient Palliative Care Units: 2355 ► Hospice home care: 4086 ► Day centres: 449 ► 94% of patients have a cancer diagnosis ► Averige care time: 36 day ► Using beds: 79,6%

Kapunk tárva, a szívünk még inkább! EDUCATION PROGRAM FOR NURSE AND DOCTOR /theoretical and practical training/ NURSE PROGRAM ► basic course - 40 hours ► advanced course - 40 hours ► 1200 hours hospice nurse and coordinator training program to the certificate exam DOCTOR PROGRAM ► basic course - 40 hours ► advanced course - 40 hours ► practical course – 80 hours in hospice unit ► Palliative course for the medical students (Budapest, Pécs) ► october – palliative license exam

Kapunk tárva, a szívünk még inkább! …és jegyzetek

Kapunk tárva, a szívünk még inkább! STAFF IN HOSPICE CARE (multidisciplinary team) 1507 PERSONS ► 60,1% doctor ► 69,7% nurse ► 62,7% physiotherapists ► 72,9% psychologists and mental health experts ► 73,7% volunteers ► 31,4% priests ► 41,8% social workers ► 59,8% dietists ► 69,5% coordinators ► 44,4% occupational therapists ► 78,5% bereavement counsellors

Kapunk tárva, a szívünk még inkább! ACCESS TO IN HOSPICE-PALLIATIVE CARE HOSPICE CARE ► physician recommends ► GP’s ordered ► patient's or family consent, compliance

Kapunk tárva, a szívünk még inkább! FINANCE IN HOSPICE-PALLIATIVE CARE HOSPICE HOME CARE ► insurance pays for a day home care: 3840 HUF – 14 EUR – visit day, insurance- funded day vizit day ► insurance pays for a day hospice unit care: 9520 HUF – 34 EUR – care day HOSPICE UNIT The benefit to the patient free

Kapunk tárva, a szívünk még inkább! TASKS IN HOSPICE CARE HOSPICE CARE ► nursing tasks ► physiotherapist tasks ► symptom management ► Dieticians tasks ► Social task ► Spiritual tasks ► Psychical tasks ► Physician tasks

Kapunk tárva, a szívünk még inkább! AGREE? ► The serious illness of a serious impact on the family, care team ► Flexible rate adaptive ► The hospice palliative care in a family care ► Bridge care ► The family assessment begins when the patient is in the care ► All members working in hospice care with the family ► All members are family expert ► Families and the patients are different ► We work in different cultures ► Assess the family environment ► Family dynamics

Kapunk tárva, a szívünk még inkább! Awareness-raising programs Children planted flowers daffodil

Thank You for your attention!