World PI Week (WPIW) Carla Duff, CPNP MSN CCRP IgCN

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Presentation transcript:

World PI Week (WPIW) Carla Duff, CPNP MSN CCRP IgCN INGID Assistant Secretary Member of the PI Week Steering Committee

WPIW What is it? What is the mission of WPIW? When is it? World PI Week is a global campaign which aims to raise awareness and improve diagnosis and treatment of primary immunodeficiencies (PI) What is the mission of WPIW? To increase recognition of PI amongst the medical profession as well as parents, school teachers, day care centre employees, researchers and nurses to increase the understanding of these diseases and promote early diagnosis To encourage health authorities to use existing awareness materials produced by JMF, IPOPI and other stakeholders to promote the timely diagnosis and treatment of people living with PI To promote the model of combining physician education and global awareness with the infrastructure to diagnose and treat PI worldwide To stimulate efforts to improve the recognition, diagnosis, treatment and quality of life of people with PI world-wide When is it? 22nd - 29th April 2015

How Can You Get Involved? Sponsor an event during WPIW Host an all day event with information on testing and treatment. Hold a PI awareness day at your center Have a stand with brochures and information for people to take and read Tips and suggestions are on the WPIW website Find Resources Be Inspired See Worldwide Events http://www.worldpiweek.org/home

Photos of WPIW 2014

World PI Week – Get Involved