What happens when you listen? The Scottish Experience of self-directed support and user involvement Dee Fraser Providers & Personalisation Coalition of Care and Support Providers in Scotland

Today A very short overview of service change How well did we listen in the past? Self-directed support and listening Scottish provider experiences Faye’s story- from tradition to fully user led day services (video) What now?

1990: from institution to community Moved out of institutions Mixed economy of care Person centred planning/care developing in learning disability Recovery model Independent Living Movement (physical disability) lobbying for Direct Payments.

2000: is it real community? Transition to community positive More visible in society Some people still isolated (individualism) re-create the institution? “Service land”

2010: choice and control? Changing Lives: review of social work Personalisation Low take- up of direct payments- why? Self-directed support strategy Self-directed support legislation (2013)

About the SDS Act Person to be offered four options Direct payment Individual budget Arrange service Mixture of the above Applies to all care and support groups** Children Young People Carers Principles based: Involvement, collaboration and assistance Participation and Dignity

What it means for user involvement Person becomes the purchaser ‘Consumer’ levers Outcomes focus Support provider will market to the person (not the local authority)

The Provider Conundrum “Managing yesterday’s services today whilst developing new ways of listening and responding to tomorrow’s customer – and accepting (far) less money for doing it.”

Types of “involvement” Tell: this your service-take it or leave it… Sell: this is your service- it’s great! Consult: what do you think of the service? Involve: tell us what you need…and we’ll listen Empower: we’ll work with you to help you find your voice Lead: over to you…tell us what you want/need and we’ll act…

So what’s an outcome? The change or difference made by the support a person receives. Input: support worker + time + funding Activity: going to the local gym Outcomes: increased physical fitness; increased connection to the community

Peer to Peer Quality Checkers at Inclusion

User- led strategic planning at CrossReach

User led mental health recovery – Penumbra

User- led day activities at Key Community Supports (In Faye’s words)

And most of your actions are based on incomplete knowledge and you really don't know what it is all about, or what the purpose of the world is, or know a great deal of other things. It is possible to live and not know. Richard Fenyman What will happen next?

Any Questions?

Credits… Signed Act, Inclusion, Crossreach and Key ©2013 Matt Gregorig Photography Smiling artist ©2012 “There’s No Place Like Home Photo Competition” Housing Support Enabling Unit (HSEU) The Social Worker I would not like to meet from “Working together in Adult Support and Protection” Thistle/Altrum- A user-led research project and guide to working with people at risk of harm and abuse available at: Recovery quote from “Journeys of Recovery” (2008) A narrative research project exploring individual people’s experience of recovery from mental ill health available at quote from The Pleasure of Finding Things Out: The Best Short Works of Richard P. Feynman (edited by Jeffrey Robbins), 1999 All other images iStockPhoto

P&P is a four year policy and practice change programme supporting providers to prepare for, and showcase good practice in the journey to Self- directed Support. P&P is hosted by CCPS with financial support from the Scottish Government Policy-Information-Events-Practice Exchange-Facilitation- Personalisation leads- Change projects- Action Learning- Research- Capacity building Contact Dee Fraser, Programme Manager Catherine Garrod, Programme Officer Kenny Pentland, Programme Officer