Allison Nickerson, MSW Program Coordinator, New York City Family Caregiver Coalition Council of Senior Centers & Services of NYC, Inc.

 Participants ◦ National Alliance for Caregiving ◦ AARP ◦ NAC Coalition members ◦ Nursing professionals ◦ Community based service providers  Purpose o Develop and discuss possible synergies and opportunities to working together to support family caregivers and nurses in the state of New York

17 Total Synergies

1. Integrate services - Remove artificial separation of “social” vs. “medical” daycare 2. Research - “I’m not a dual eligible- who will be there for me?” 3. Advocate – Understand how to be more “disruptive” on behalf of caregivers

4. Use common language - Move the policy agenda forward with the terms “caregiver” and/or "identified person” 5. Understand the “other” patient - Assist in the recognition of the family caregiver 6. What drives what?- Understand what is more affordable when comparing medical vs. community based services

7. Recognize Caregiving – Discuss a potential addition to the Medicare Annual Wellness visit to include questions about family caregiving 8. Remove barriers to practice – Understand the barriers and issues that create struggles for Nurse Practitioners 9. Understand systems and transitions of care – Report on the disconnect between the family caregiver and health practitioner

10. Bridge the gap – Work together to create caregiver navigators to liaison between doctors and caregivers for resources 11. Create first hand knowledge – Create shadowing opportunities for professionals to better understand the needs of family caregivers 12. Build education – Create placements for nursing, social work or other allied health education students within family caregiving situations

13. Consider continuity in care - Build better relationships between the family unit and medical professionals to ease continuity of care 14. Ease communication - Create a family caregiver notebook 15. Frame family caregiving as a public health issue - “what do you need vs. this is what I have, do you want it?”

16. Increase knowledge - Design and translate models for caregiving 17. Reform payment – Restructure how family caregivers can be supported

10 Total Next Steps

 Support economic research and make the business case for family caregivers to support policy change  Recommend 7 th vital sign for nurses (are you a family caregiver?)  Center to Champion Nursing in America at AARP to check the Oasis to see about the family caregiver  NYSCRC to share a family caregiving curriculum developed in West Chester County, NY for reference or possible recreation

 Create and share resources such as papers and research including local curriculum, PowerPoint presentations from NAC and AARP  NAC to check in about Utah Family Caregiving Coalition to get more information about family caregiver placement- University credits for respite care being provided by students to the family caregivers  Research development and grant opportunities to fund next steps (i.e. HRSA- nursing education)

 NYCFCC to develop materials that detail models of advocacy- webinars, trainings and print outs  If applicable, present a united front on policy issues such as any future Medicaid waiver/reform policies  Develop Nursing Guidelines for Dealing with Family Caregivers – similar to work conducted by NASW