Anita MacDonald

Home Delivery of Dietary Products in PKU and other IMD in PKU and other IMD

 Have you ever been given the wrong protein substitute?

  Have you ever been given the wrong protein substitute?   Have you ever had to wait for more than 7 days to receive your protein substitute?

  Have you ever been given the wrong protein substitute?   Have you ever had to wait for more than 7 days to receive your protein substitute?   Do you ever struggle receiving the right amount from your GP?

  Have you ever been given the wrong protein substitute?   Have you ever had to wait for more than 7 days to receive your protein substitute?   Do you ever struggle receiving the right amount from your GP?   Do you have to collect your protein substitute from your chemist?

  Have you ever been given the wrong protein substitute?   Have you ever had to wait for more than 7 days to receive your protein substitute?   Do you ever struggle receiving the right amount from your GP?   Do you have to collect your protein substitute from your chemist   Do you ever worry about obtaining your protein substitute?

  Have you ever been given the wrong protein substitute?   Have you ever had to wait for more than 7 days to receive your protein substitute?   Do you ever struggle receiving the right amount from your GP?   Do you have to collect your protein substitute from your chemist   Do you ever worry about obtaining your protein substitute?

Home delivery service - organise prescriptions - dispense special feeds - home deliver

How did we do the study?   duration: 1 year   2 groups: home delivery control n=30 n=32

Home delivery service   essential dietary products   specialist training given to home-delivery team   monthly stock levels agreed   organised GP prescriptions   monthly phone checks with patients/parents

Home delivery service   products picked by trained warehouse team   dispensed by pharmacist   delivered to patients/parents home at standard times monthly

What did we compare?   mistakes   delays in receiving products   metabolic control   user satisfaction

Evaluation

Safety number of problems p<0.05 p<0.05

Delayed receipt of products home delivery control number of problems p<0.05

  control: 31% waited 1-2 weeks for protein substitutes   problems: - low stock levels - lost prescriptions - lack of product supply - repeated errors Delayed receipt of products

Blood phenylalanine control

User satisfaction %

saves time and never run out of products stress free service. Don’t know what we would do without it now…… made life easier pleased with service… chemist is a nightmare -home delivery is a far better option

Conclusions Home delivery service of protein substitutes:   safer than conventional system   reliable   possibly associated with better metabolic control   popular