Assessment/Methods for capturing information from the patient

Outcome Measures for Clinical Research Information Gathering for Clinical Care

1) Demographic Database 2) Radioisotope Drooling Measurement 3) Drool Quantification 4) Teacher Drool Scale 5) Time Sampling 6) Behavior Medical Rating Scale 7) Parent Questionnaires 8) Goal Attainment Scaling Outcome Measures for Clinical Research

1) Name/address 2) Age/sex 3) Primary diagnosis 4) Phase of illness - acute vs. chronic 5) Intelligence level 6) Social factors - SES 7) Oral-motor dysfunction measure of severity 8) Eating method/ability 9) Positioning information 10) Severity of drooling quantitative measure (objective) perceived social and functional impairment (subjective) 11) Nutritional status 12) Dental Status 13) Medications 14) Other associated medical problems 15) Location of intervention - clinic, home, school, etc. Minimum database recommended for drooling studies

Ekedahl and Hallen Technitium - pertechnetate I.V. infusion, isotope measured in 30 minute intervals. Radioisotope Drooling Measurement

Sochaniwskyj ) collection cup and bonnet 2) vacuum pump 3) collection chamber 15 minute collection sessions X10/day Drool Quantification Non-Invasive Technique

1) No drooling 2) Infrequent drooling, small amount 3) Occasional drooling, on and off all day 4) Frequent drooling, but not profuse 5) Constant drooling, always wet Teacher Drool Scale (TDS)

1) Stream of saliva 2) Bubble of saliva 3) Total 20 second 30 second intervals minimum of 40 data points/session Outcome expressed as a percentage Time Sampling

1. Not at all 2. Just a little 3. Quite a bit 4. Very much 1. Restless, overactive ¹ 2. Excitable, impulsive ¹ 3. Disturbs other children ¹ 4. Fails to finish things he starts, short attention span ¹ 5. Constantly fidgeting 6. Inattentive, easily distracted ¹ 7. Demands must be met immediately, easily frustrated ¹ 8. Cries often and easily 9. Mood changes quickly and drastically 10. Temper outbursts, explosive and unpredictable behavior ¹ 11. Overly serious, sad, or sensitive 12. Change in co-ordination and/or body control ² 13. Fearful 14. Diarrhea/constipation (indicate) ² 15. Drowsy ² 16. Nasal congestion ² 17. Vomiting ² 18. Irritable ¹ 19. Dry mouth ² Behavioral and Medical Rating Scale (BMRS)

1) Medication use 2) Side effects 3) 5 point drooling scale of Camp-Bruno 4) Discontinuation of medicines Parent Report Questionnaire

-Selection of observable, repeatable goals -Specified performance conditions -Criteria for success in measurable terms -Content validity measuring changes in clinical performance and the importance of observed changes Goal Attainment Scaling

Decision-Making and Communication Tool