Enabling the national digital agenda: now and the future James Ferguson Consultant Hepatologist QEHB Birmingham

The idea Patients often request to see their letters and results QEHB has advanced electronic systems; results, letters and electronic prescribing Patients often travel great distances for care and have multiple providers Most patients access and use the internet for many services

Support The medical director and chief executive (key) Informatics team IT department Patients Colleagues

Pilot phase Initial pilot of 12 patients with liver disease (2011) Developed in conjunction with the patients Development group included clinician, patient, IT, informatics, communications team Pilot funded by

Roll out Business case presented to board Approved Project group (clinician, patients, IT, informatics and communications team) Clinical group Went live August users across a range of specialties

Key Functionality Patients can view Letters (including GP and external provider letters) Blood tests (including GP results) Information relating to their condition Contact details Patients can enter Diary information A biography Letters/ blood results for viewing by clinical team BP Weight Blood sugars

A digital challenge In line with the governments information strategy ‘Information about me and my care’ Key ambition A change in culture and mindset, so that our health and care professionals, organisations and systems recognise that the information in each of our own care records is fundamentally about us – and so that it becomes routine for us to be able to access our own records online.

Future developments Virtual clinics/consultations – in line with digital first initiative Care plans and competencies e.g. dialysis patients Teleheath – In line with 3 million lives initiative Research version

Evaluation and Research Key performance indicators regularly monitored by project group Patient and clinicians evaluations have been performed The system is part of 2 research grant applications It has not yet been formally evaluated in a research setting

Can it be adopted elsewhere? Yes It requires basic building blocks Electronic labs system Electronic letters It requires commitment from trust at senior levels and investment

Initiated by a clinician Developed in conjunction with IT and patients 4000 users after 1 year In line with government policy Future developments Can be adopted elsewhere