Young People and the NDIS: Issues in Respite and Carer Support Maureen Flynn, National Respite 18 September, 2014

Agenda 1.Who is National Respite? 2.Respite and Carer Support in 3 service systems 3.NDIS Trial Site Trends and Issues 4.ACT Context 5.ACT Learnings so far… 6.Action

1.1 National respite Communities of strong relationships that support the lives people choose Support interconnected wellbeing between people with disability, frailty from age, mental illness and their chosen carers, families, and informal supports

1.2 National Respite 1.Raise the respite voice: NDIA, DSS 2.Member services 3.Research: – Mapping respite outputs – NDIS transition cost/benefit/impact carers, participants, communities government – Volunteer, flexible, family based – cost benefit; social capital – Evaluate innovation: flexible, early intervention 4.Business transformation : CMS, online tools 5.National Conference October

Carer Care recipient Respite Care Carer support ? ? ? 37 NDISCHSP Family resilience model? 3.1 Respite and carer support in 3 systems

5.1 Trial Site Learnings 1.Most families are returning to their current provider 2.Most plans are in the $ range 3.Most families aren’t choosing to self manage funds 4.Majority of people receiving plans have autism or an ID 5.Most providers are registered to provide therapeutic or recreation support

Trial Site Issues 1.Participants and Planning Process 2.Transport and activity cost support/ reasonable and necessary support 3.People with lower support needs & Tier 2 4.Emergency care

ACT Context Rolling out over two years Oct 2014: Children born between 2010 and 12, children not expected to start school 2015/16 Jan 2015: Years 7-12 transition 1 April: children enrolled Kindi to Yr 6 1 Oct: all remaining children under 15 The intention is 5000 people at full roll out, with 200 transitioning a month Currently 30 signed off plans in the ACT

ACT and Young People Planning Process Expectations Shift in focus – language and philosophy Education key! Remaining issues: Tier 2, emergency care, non respite carer support eg YC programs

6. Action 1.Participate in our research 2.Spread the word 3.Come to National Conference www. Nationalrespiteaustralia.com.au