Your Life Your Choice: Quality Health Check Michelle Crozier Associate Professor Heidi Muenchberger Griffith Health Institute, Griffith University

Your Life Your Choice – Queensland Government initiative Industry Partnership Research Program Logic Research Aim Staged Action Research Interviews – YLYC Participants Focus Groups & Interviews – Host Providers Initial Findings Survey development Presentation Outline

Your Life Your Choice (YLYC) self-directed support was launched by the Premier and Minister for Communities, Child Safety and Disability Services in September 2012 YLYC enables people with disability and their families to have more choice and control over their disability supports and services YLYC introduces self-direction to Queensland YLYC helps people with disability and their families get ready for more choice and control under the NDIS Your Life Your Choice

Industry Partnership

“Self-Directed support is an approach which enables people with a disability and/or their family to have choice and control over their disability supports and services to achieve positive outcomes in their lives. By using funding and other resources to plan, purchase and select supports and services that suit individualised needs, people with a disability and/or their families become active participants in the design and delivery of their disability support.” Your Life Your Choice

This policy direction is consistent with other jurisdictions across Australia Self-direction is not new YLYC is not new funding, it is a new option to change the way services are delivered through increasing choice and control. Changes to the Disability Services Act (2006) Ruling from the Australian Tax Office and Department of Social Security that where this funding is paid directly to a person or family it is not included as income. The funding is paid quarterly in advance. Currently there are 109 approved host providers and over 1050 participants self directing under Your Life Your Choice. Vision to embed people in community through purchasing services in more typical ways. Your Life Your Choice

Develop a snap shot understanding of Your Life Your Choice on participants who have moved from a traditional model’s of service delivery (or are new to services) to Your Life Your Choice through two quarters of payments. It also involves developing an understanding of the experiences of Host Providers. Research Aim

Staged Action Research Part 1 Ethics Literature Review Protocol development Part 2 Interviews & Focus Groups (Participants and host providers) Data Analysis Survey (informed by focus groups and interviews) Data Analysis Part 3 Data Synthesis Final Report

Eligible Recruitment Pool (n=261) Random Sample (n=63) Invitation to participate Respondents (n=14; 22%) Interviewed (n=12; 19%) Mixture of participants YLYC Research Participants

RELATIONSHIPREGIONMETHOD GuardianBrisbaneHost Provider FatherSouth EastHost Provider Adult Foster ParentBrisbaneHost Provider MotherNorth CoastHost Provider Adult Foster ParentBrisbaneDirect Payment MotherBrisbaneHP going to DP PersonBrisbaneHost Provider PersonBrisbaneHost Provider MotherNorth QLDHost Provider PersonBrisbaneHP going to DP MotherBrisbaneHost Provider MotherCentral QLDHost Provider

Eligible Recruitment Pool (n=99) Respondents Focus Group (n=15; n=12 orgs) Interviewed (n=4; n = 3 orgs) Operating across regions (n=11) Organisations: Mamre, Staffing Options, Bespoke, Alara, Muscular Dystrophy QLD, Uniting Care, Autism QLD, HealthCare group, Xavier Children Support Network, Carers QLD, Endeavour Foundation, Horizon, Compass, Centacare & Flexi QLD. Research Host Providers

The journey toward Your Life Your Choice Experiences of Your Life Your Choice Operating Your Life Your Choice Key Research Themes

Background Information Your Life Your Choice Experiences Host Provider Experiences Departmental Experiences Research Survey: Participants

Region/s Participants Host Provider Arrangements NDIS readiness Research Survey: Host Providers

Distribute Host Provider Survey Distribute Participant Survey Analyse Survey Results Prepare Final Report What is next?

Crozier, M., Muenchberger, H., Colley, J., & Ehrlich, C. (2013). 'The disability self-direction movement: Considering the benefits and challenges for an Australian response'. Australian Journal of Social Issues, 48 (4), Crozier, M., & Muenchberger, H. (2013). ‘It’s your problem, not mine’: does competence have anything to do with desire and aspiration to self-direct? Australian Health Review, 37(5), Dorsett, P. Chenoweth, L. Crozier, M. & Reese, K. (2014) Users experiences of self-direction: responding to the missing evidence for the new important policy paradigm within a national disability insurance scheme. Department of Health and Ageing. (2012). Evaluation of the consumer-directed care initiative - Appendices. KPMG. Government of Western Australia. Model of Care Overview and guidelines: Ensuring people get the right care, at the right time, by the right team and in the right place. WA Health Networks Retrieved from are-overview_and_guidelines.pdf. New South Wales Government. (2011). Living Life My Way: putting people with a disability at the centre of decision making. Queensland Government. (2012). Your Life Your Choice: self-directed support framework. Brisbane. Victorian Government. Self-directed planning information sheet. Melbourne: Retrieved from _sheet_pdf_ pdf. References