The European Perfusion Registry: A Work in Progress Luc Puis, ECCP Ian Johnson, AACP Else Nygreen, ECCP Pia Sprogøe, ECCP Tim Jones, MB BS, MD, FRCS ICEBP.

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Presentation transcript:

The European Perfusion Registry: A Work in Progress Luc Puis, ECCP Ian Johnson, AACP Else Nygreen, ECCP Pia Sprogøe, ECCP Tim Jones, MB BS, MD, FRCS ICEBP - AMSECT 2011 San Antonio

Disclaimer I declare having no conflict of interest ICEBP - AMSECT 2011 San Antonio

Importance of Registries To measure is to know ICEBP - AMSECT 2011 San Antonio Register Evaluate Benchmark Change Register Re-evaluate Change Practice Best Practice

Importance of Registries ICEBP - AMSECT 2011 San Antonio

Importance of Registries ICEBP - AMSECT 2011 San Antonio

Existing Registries ICEBP - AMSECT 2011 San Antonio

Existing Registries ICEBP - AMSECT 2011 San Antonio

Existing Registries heterogeneous data between registries descriptive procedural data no risk stratification, no outcome cost no or low number of perfusion parameters in cardiac surgery databases ICEBP - AMSECT 2011 San Antonio Why not adhere? – Several issues

Setting up a Registry people, that need coming together, money dataset and medium for collection motivation and trust to submit data quality control and error reporting ICEBP - AMSECT 2011 San Antonio Long and labor-intensive work which requires: statistical processing publication of results (public/benchmarking)

Setting up a Registry And having to put them together later anyway… ICEBP - AMSECT 2011 San Antonio To avoid to having all countries to go through this:

Setting up the EPR ICEBP - AMSECT 2011 San Antonio Gathering people together: Ian Johnson, AACP Else Nygreen, ECCP Pia Sprogøe, ECCP Tim Jones, MB BS, MD, FRCS Luc Puis, ECCP

Ideally… The benefit for the patient is our common cause… ICEBP - AMSECT 2011 San Antonio We’re all treating the same patients…

Ideally… ICEBP - AMSECT 2011 San Antonio We’re all treating the same patients…

Ideally… ICEBP - AMSECT 2011 San Antonio Benefits of such collaboration… large number of cases added value for surgeons legion of data submitters access to extended data for perfusionists avoidance of double collection more powerful database BETTER CARE FOR OUR PATIENTS

What have we done so far? ICEBP - AMSECT 2011 San Antonio Mission Statement

What have we done so far? ICEBP - AMSECT 2011 San Antonio Mission Statement

What have we done so far? ICEBP - AMSECT 2011 San Antonio Registered Charity – judicial background

What will it look like? ICEBP - AMSECT 2011 San Antonio EACTS Adult Cardiac Surgery Database active plans for web-based database static submission  dynamic submission (online/upload) add perfusion parameters to it (same patients) participation would be free for participants

What still needs to be done… ICEBP - AMSECT 2011 San Antonio Structure of European Perfusion Registry Scientific Advisory Board Members (Participants) Board of Directors

What still needs to be done… ICEBP - AMSECT 2011 San Antonio Structure of European Perfusion Registry Who chair, secretary, treasurer founding members not restricted Tasks daily management of Charity funding – financial management communication with participants and partners

What still needs to be done… ICEBP - AMSECT 2011 San Antonio Structure of European Perfusion Registry Who perfusionists, surgeons, anesthetists statistician epidemiologist … Tasks dataset quality control / error reporting statistical processing publishing of reports

What still needs to be done… ICEBP - AMSECT 2011 San Antonio Who countries centers individuals NOT restricted to Europe Tasks comply to membership / bylaws bring in the (correct) data read reports change practice to best practice Structure of European Perfusion Registry

Next steps… ICEBP - AMSECT 2011 San Antonio There is still a long way to go…

Dataset ICEBP - AMSECT 2011 San Antonio

Dataset ICEBP - AMSECT 2011 San Antonio What do you want to achieve? Areas of Risk Outcome Identify parameters that have an influence on these areas Bleeding Antico Transfusion Inflammation Organ Injury LCOS LOS - … Morbidity Mortality heparine protamine Hct Hb RBC Plts FFP … heparine protamine Hct Hb RBC Plts FFP … coating cardioplegia hemofilters open/closed PSB managmnt … coating cardioplegia hemofilters open/closed PSB managmnt … cardioplegia inotropes … cardioplegia inotropes … ventilation ICU complicat death … ventilation ICU complicat death …

Risk Scores ICEBP - AMSECT 2011 San Antonio

Risk Scores ICEBP - AMSECT 2011 San Antonio

Risk Scores ICEBP - AMSECT 2011 San Antonio

Risk Scores ICEBP - AMSECT 2011 San Antonio

Risk Scores ICEBP - AMSECT 2011 San Antonio

Quality Improvement ICEBP - AMSECT 2011 San Antonio

Dendrite Clinical Systems Ltd. ICEBP - AMSECT 2011 San Antonio

Dendrite Clinical Systems Ltd. ICEBP - AMSECT 2011 San Antonio

Dendrite Clinical Systems Ltd. ICEBP - AMSECT 2011 San Antonio

BelSECT 13th Symposium ICEBP - AMSECT 2011 San Antonio September 29th 2012, Brussels Simulation Sessions, September 28th gathering of three EU simulation groups focus on teamtraining, scenario writing and assessment

Thank You ICEBP - AMSECT 2011 San Antonio