“The Year of the Family Caregiver”- Celebrating a Decade of Caring Fifth National Conference for Caregiving Coalitions April 27, 2011 San Francisco, CA U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES, ADMINISTRATION ON AGING, WASHINGTON DC PHONE | FAX | | WEB

The National Family Caregiver Support Program

The National Family Caregiver Support Program (NFCSP) Created in the 2000 Reauthorization of the Older Americans Act Focus on Caregiver vs. Care Recipient General Provisions of Title III Apply – Services delivery system – Organization and structure (SUA, AAA, LSPs) – Intrastate Funding Formula

The NFCSP – 10 Years of Growth Gradual increases in funding – $125 million initial appropriation – $154 million for FY 2010 – $192.2 million for FY 2012 (requested) Projects of National Significance & Innovation – New approaches – Effectiveness of programs – Quality and improvement through evaluation, training, TA and research 2006 Amendments – Care Recipients with Alzheimer’s Disease of any age – Lowered age for grandparents/other relatives to 55 – Inclusion of older caregivers (55+) of individuals with disabilities (18-59)

Program Impact Who Do We Serve? – 675,000 caregivers – 1/3 work full time – Primarily Women (73%) – Elderly themselves 54% age % age 75+ – 17% live in rural areas – Grandparents 81% female 84% age What They Tell Us? – 84% receive respite – 45% said respite was most helpful – 75% reported less stress – 85% reported caregiving was easier – 95% reported service quality as good to excellent

NFCSP 10 th Anniversary November 17, 2010 – 10 th Anniversary Celebration Year of the Family Caregiver – Calendar – National, State, Local Events – Tools, resources – Video Testimonials

Looking Ahead: National Family Caregiver Support Program Vice President’s Middle Class Task Force – Caregiver Initiative – Focuses on Specific Caregiver Needs – Integrates Caregiver Supports with other HCBS – FY 12 Budget Request NFCSP (III E) - $192.2 million Title VI C - $8.388 million ADSSP - $11.46 million Lifespan Respite - $10 million

The Lifespan Respite Care Program

13 Lifespan Respite Care Program What are Lifespan Respite Care Programs? Defined by the Lifespan Respite Care Act of 2006 (PL ) as: Coordinated systems of accessible, community-based respite care services for family caregivers of children or adults with special needs

14 Program Implementation Authorized in 2006 Funded in 2009 and 2010 at $2.5 Million President’s FY 12 Request: $10 Million Competitive Grant Process – 12 States funded in FY 2009 – 12 States funded in FY 2010 – FY 2011 Program Announcement – Up to $200,000 for three year projects – TA Activities – ARCH National Respite Network & Resource Center

15 Lifespan Respite Care Program States 2009 Alabama Arizona Connecticut District of Columbia Illinois Nevada New Hampshire North Carolina Rhode Island South Carolina Tennessee Texas 2010 Delaware Kansas Louisiana Massachusetts Minnesota Nebraska New York Oklahoma Pennsylvania Utah Washington State Wisconsin

Looking Ahead: Lifespan Respite Care Program 2011 Respite Summits – GA, MT, OH, VA FY 2011 Program Announcement Lifespan Respite Program Reauthorization 2011 National Respite Conference – Glendale, AZ – November 1-4, 2011 – 2 nd Annual Grantee Meeting

Looking Ahead: Supporting Family Caregivers Health Care Reform Provisions – Incentives to states to increase access to Medicaid HCBS – Training for family and home care workers – Expand access to care coordination and transitional care services

U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES, ADMINISTRATION ON AGING, WASHINGTON DC PHONE | FAX | | WEB Contact Me Greg Link, MA U.S. Administration on Aging Washington, DC