Title text here Susan Reinhard, RN, PhD AARP Public Policy Institute NYCFCC- 7 th Annual Evening of Celebration of Caregiving March 7, 2013 AARP

Valuing the Invaluable In 2009, about 42.1 million family caregivers in the U.S. provided care to an adult with limitations in daily activities at any given point in time The estimated economic value of their unpaid contributions was about $450 billion in 2009 from an estimated $375 billion in 2007 New York estimated economic value of unpaid contributions $32 billion in

Family Caregiving in the “Old Days” 3

Family Caregiving – “The New Normal” 4

New Research Home Alone: Family Caregivers Providing Complex Chronic Care Partnership between the AARP Public Policy Institute and the United Hospital Fund Funded by The John A. Hartford Foundation 5

Background of Survey and Report AARP Public Policy Institute and United Hospital Fund collaborated on first in-depth national survey of family caregivers This report documents: –What medical/nursing tasks family caregivers do; –What they find difficult; –Who trains them; and –Impact on their quality of life.

New Research 46% of the caregivers in the panel performed medical/nursing tasks Family caregivers find some tasks more difficult than others such as meal preparation for special diets, operating mechanical equipment and managing incontinence. More than a third of family caregivers are doing wound care and 38% would like more training. Close to half (47%) of these family caregivers were afraid of making a mistake and/or harming their family member. Three out of four family caregivers who provided medical/nursing tasks were managing medications, including administering intravenous fluids and injections. 7

Training for Medication Management 8

Public Policy Institute Long Term Services and Supports Scorecard Policies to Support Family Caregivers AARP AARP and Ad Council Caregiving Campaign Caregiving Resource Center 9 Caregiving Initiatives

What is the Ad Council? As the leading producer of public service announcements (PSAs) since 1942, the Ad Council has been addressing critical social issues for generations of Americans. 10

Goals for AARP and Ad Council Caregiving Campaign Help boomer women recognize that the help they provide to a parent, family member or friend is what we call “caregiving” Identify, impact and connect with them through our PSAs Highlight AARP as a key destination for caregiving information and resources 11 Together, we can be stronger.

Approach to Ads Portray the isolation, sense of responsibility and frustration a caregiver feels in a typical situation Show caregiving honestly and don’t sugarcoat the issues Make people pay attention by being disruptively authentic, edgy and real – key for securing donated media space in a cluttered media environment 12

Print & Outdoor Ads 13

AARP Caregiving Resources AARP Caregiving Resource Center – AARP Caregiving Resource Center (Spanish) – Toll-free line (English) (M-F, 7 am-11 pm EST) Toll-free line (Spanish) – (M-F, 7 am-11 pm EST) Prepare to Care (available in English and Spanish) 14

Highlights of the Caregiving Resource Center Active online community Access to experts via frequent blogs, chats, columns and Q&As Monthly chats and interactive opportunities with caregivers and experts Tools relevant for caregivers – Care Provider Search, Many Strong, Drug Interaction Checker, Medicare Interactive Tool, Long Term Care Cost Calculator and AARP Health Record Opportunity to “Share Your Story” with us Fresh articles, blogs and potentially a caregiving e-newsletter Companion site in Spanish 15

Social media TV PSAs and caregiving videos are posted on AARP’s YouTube channel located at and the Ad Council’s YouTube channel at AARP’s Facebook page at AARP’s Take Care blog - Twitter handle and #caresupport 16

Questions? Susan 17