DIABETES American Diabetes Association 2010 Legislative Priorities

DIABETES General Advocacy Goals Increase federal and state funding for diabetes prevention, treatment and research Prevent diabetes and improve the availability of accessible, adequate and affordable health care Eliminate discrimination against people with diabetes at school, work, and elsewhere in their lives

DIABETES From General Goals to a Legislative Agenda Federal and state legislative priorities are: Determined annually Drafted by the Legislative Subcommittee, a sub-group of the Advocacy Committee, with input from Diabetes Advocates around the country Approved by Advocacy Committee and Board of Directors

DIABETES Criteria For Determining Legislative Priorities Adherence to ADA mission and intended impact on people with diabetes Adherence to ADA Strategic Plan Political reality and actual impact on people with diabetes Impact on and support of diabetes community and other stakeholders Availability of resources

DIABETES Three Tiers of Priorities Tier I - Highest priority activities; ADA involved as a key player, either leading efforts or as a critical partner. Tier II - ADA consistently engaged, with less expenditure of resources; might lead or could be one of many partners in a wider coalition effort. Tier III – Activities to which ADA will lend its name, but will not play a major or very proactive role.

DIABETES 2010 Federal Tier I Priorities Federal Funding CDC: Division of Diabetes Translation NIH: National Institute of Diabetes and Digestive and Kidney Diseases Special Diabetes Program Innovative funding opportunities in other federal agencies Health Reform Passage/Implementation Coverage Quality Prevention ADA Diabetes Bills Diabetes Prevention Act Diabetes Screening and Medicaid Savings Act

DIABETES Health Care Reform: Ongoing Efforts Ensure pending federal health care reform legislation meets the needs of people with, and at risk for, diabetes: Fighting discrimination faced by people with diabetes in the insurance market. Including wellness and prevention provisions within health reform. Grassroots health reform campaign including , social media, webinars, and videos: –brought over 63,000 people to an issue-focused website –resulted in 28,000 people signing a petition calling for health reform.

DIABETES 2010 Federal Tier II Priorities Diabetes Bills Eliminating Disparities in Diabetes Prevention and Access to Care Act Gestational Diabetes Act Diabetes Treatment and Prevention Act Stem Cell Research Wellness & Prevention Nutrition Physical Activity/Fitness Obesity Reduction

DIABETES 2010 Federal Tier II Priorities Diabetes Relevant Issues Congressional Budget Office (CBO) Scoring on prevention cost/benefit Health Entitlement Programs Medicare Medicaid Discrimination Issues

DIABETES 2010 Federal Tier III Priorities Diabetes & Co-morbidity Bills Including but not limited to:  Home Infusion Therapy,  Catalyst Bill,  Prosthetic Parity and  School Nurse Funding (Pilot) Diabetes Relevant Issues National Diabetes Coordinator

DIABETES Influencing State Public Policy State priorities are outlined generally through the national committee structure However, the actual activities in each state should reflect the individual needs, opportunities and threats in that state. Legislative activity for each state should be determined through discussions between the volunteer Advocacy Chair and the staff State Advocacy Director

DIABETES 2010 State Tier I Priorities Health Insurance Coverage/Protection Diabetes Cost Reduction Act (passage and preventing rollbacks) Medicaid Coverage Diabetes Prevention & Control Program Funding School Diabetes Care Private Driver’s Licenses Oppose Laws and/or State Action with Blanket Treatment of People with Diabetes

DIABETES 2010 State Tier II Priorities Health Promotion School Based (health education, physical education, healthy foods) Menu Labeling State-Level Research Activities Diabetes-Specific and Stem Cell Research Protecting Stem Cell Research

DIABETES 2010 State Tier III Priorities Other Relevant Diabetes Research, Prevention, and Discrimination Issues Smoke-Free Environment

DIABETES Legal Advocacy Work to end discrimination in: – Schools and Day Care Centers – Employment – Correctional Institutions –Public Accommodations Four step approach: –Educate –Negotiate –Litigate –Legislate Training and resources: –For lawyers, health care professionals, and advocates –Address ways to prevent discrimination or stop ongoing discrimination.

DIABETES Advocacy Successes Restrictions lifted on federal funding for embryonic stem cell research The American Recovery and Reinvestment Act (stimulus bill), resulted in an additional: $10 billion for NIH $1 billion for prevention & wellness at DHHS $19 billion for health information technology. $87 billion to states to make up for Medicaid shortfalls. Reauthorization and expansion of SCHIP: providing health insurance to seven million children of families who otherwise could not afford coverage. Strengthened public policies that address prevention through health promotion: 13 state bills passed to improve nutrition & physical education. Menu labeling laws passed in eight jurisdictions. Agreement reached on federal menu labeling legislation that is pending as a part of the larger health reform package.

DIABETES Nonprofit Lobbying As a nonpartisan, nonprofit 501(c)(3): We cannot: endorse candidates show preferential treatment to elected representatives or political parties We can: give our issues preferential treatment meet with public officials invite public officials to our events as long as we follow specific rules

DIABETES Sharing your Stories How does diabetes affect you? ADA needs compelling stories from you and others in your community Stories are a great way to help illustrate our message to the public Members of Congress and state officials are always interested to know who diabetes effects and how Tell your story at: stopdiabetes.com

DIABETES Advocacy Action Center We need your voice! Sign up to receive advocacy updates and alerts at: – Timely information on federal and state legislation: Suggested messages for elected officials alerts so you can make your voice heard on time- sensitive issues

DIABETES Community Leadership Board Support Support ADA’s advocacy agenda Respond to state and federal Action Alerts Attend State Lobby Days and Call to Congress Recruit new Diabetes Advocates Provide opportunities for people to sign up and take action at every event Recruit health care professionals and attorneys Identify community members with relationships with elected officials Write letters to the editor and Op Eds Visit your elected officials as a Diabetes Advocate

DIABETES Questions? Go to: Call your State Advocacy Director: Randi Chapman x 3082 Veronica De La Garza x 6017 Stephen Habbe x 3457 Ivan Lanierx Laura Keller x 7207 Lisa Murdock x 7415