Memory Day Missouri State Capitol

2 Facts to Know National 5+ million Americans are living with Alzheimer’s Every 67 seconds, another person is added 6 th leading cause of death Missouri 110,000 people have Alzheimer’s 130,000 by 2025 $4 billion, the value of unpaid care by family caregivers

3 Memory Day Agenda 11:00Buses arrive at the Capitol 11:00-2:00Group visits to legislators 12:00-1:30Box lunches, 3 rd floor rotunda 2:00 – 2:20 Memory Day Ceremony, 1 st floor rotunda 2:20 Group photo on south Capitol steps 2:30-2:45Departure

4 2:15 Photo Session South Capitol Steps

5 Missouri Legislature Republicans have a “super majority” in the Senate and the House

6 Group Visits Groups are organized by Senate district Everyone will be assigned to a group with a group coordinator Entire group makes the Senate visit Small groups may make visits to Representatives, depending on the size of your group For each visit, there should be a designated spokesperson(s) Constituent Individual with a compelling personal story

7 Visiting With Your Legislator State your name, where you are from, and that you are a constituent You are speaking today on behalf of the Missouri Coalition of Alzheimer’s Association Chapters 110,000 individuals in Missouri with Alzheimer’s and their families Share your personal story Make the pitch 3 minutes 3 points 1 page summary Close by asking for support Follow up with a thank you

8 1 st Public Policy Priority Fully fund Alzheimer’s grants that provide Respite Care Assistance to Missouri families $450,000 in the budget for the Department of Health and Senior Services (HB10)

9 $450,000 for Alzheimer’s grants that provide respite care assistance What: Alzheimer’s grants provide critical respite care assistance to help families care for a loved one at home 70% of people with Alzheimer’s are living at home because of the support families provide The value of unpaid support provided by these Missouri families is more than $4 billion Families cannot do it alone

10 Respite offers choice and flexibility to Missouri families caring for a loved one at home Who: Families receive up to $500 annually Person with dementia must live with the caregiver seeking respite assistance Families select the care that best meets their needs Respite: Home care, adult day services, short-term respite at a residential care facility Supplies: Incontinence, nutritional, medical equipment Available across the state Priority to those in greatest need

11 Alzheimer’s is a long and costly disease and caregivers need support Why: 110,000 people in Missouri have Alzheimer’s 6 th leading cause of death and has no cure Disease trajectory is lengthy, spanning 8 to 20 years. Individuals will require steadily increasing assistance Caregiving is stressful – physically, mentally, and financially

12 Respite assistance could save the state millions Why : Missouri spends more than $158 million* annually to care for people with Alzheimer’s in nursing homes 99% of families surveyed stated that respite assistance helped them keep their loved one at home, delaying the move to a nursing home Delaying nursing home placement for just one month for 800 respite families could save the state more than $2 million in Medicaid nursing home costs *SFY 2011, Missouri Alzheimer’s State Plan Task Force, Interim Report

13 How this works $147 average nursing home Medicaid cost / day 800 respite program families 30 days delayed in moving to a nursing home 60% of nursing home residents on Medicaid $2.1 million savings

14 Memory Day Ask Three committees must approve this funding: House Appropriations Committee for Health, Mental Health and Social Services House Budget Committee Senate Appropriations Fully fund Alzheimer’s grants that provide Respite Care Assistance to Missouri families $450,000 in the budget for the Department of Health and Senior Services (HB10)

15 House Appropriations-Health, Mental Health, and Social Services RepresentativePartyDistrict Marsha Haefner (Chair)Rep.095: STL David Wood (Vice Chair)Rep.058: Morgan, Moniteau, Miller Michael ButlerDem.079: STL Courtney Allen CurtisDem.073: STL Keith FrederickRep.121: Phelps, Pulaski Jeanne KirktonDem.091: STL Bonnaye MimsDem.027: Kansas City, Jackson Jim NeelyRep.008: Caldwell, Ray, Clay, Clinton Holly RehderRep.148: Scott, Mississippi Becky RuthRep.114: Jefferson John WiemannRep.103: St. Charles

16 House Budget Committee RepresentativePartyDistrict Tom Flanigan (Chair)Rep.163: Jasper Scott Fitzpatrick (Vice Chair)Rep.158:Lawrence, Stone, Barry Sue AllenRep.100: STL Justin AlfermanRep.061: Osage, Franklin, Gasconade Marsha HaefnerRep.095: STL Kurt BahrRep.102: St. Charles Cloria BrownRep.094: STL Eric BurlisonRep.133: Greene Kathie ConwayRep.104: St. Charles Lincoln HoughRep.135: Greene Caleb JonesRep.050: Cole, Cooper, Moniteau, Boone Nick KingRep.017: Clay Shelley KeeneyRep.145: Perry, Madison, Bollinger

17 RepresentativePartyDistrict Jeanne KirktonDem.091: STL Jeremy LaFaverDem.025: Kansas City Donna LichteneggerRep.146: Cape Girardeau Kirk MathewsRep.110: STL, Franklin Gail McCann BeattyDem.026: Kansas City Kevin McManusDem.036: Kansas City Jeffrey MessengerRep.130: Greene Craig RedmonRep.004: Knox, Adair, Schuyler, Scotland, Clark Karla MayDem084: STL City Genise Montecillo Dem.092: STL Caleb Rowden Rep.044: Randolph, Boone Robert RossRep.142: Texas, Howell, Phelps, Pulaski Kathryn SwanRep.147: Cape Girardeau Stephen WebberDem.046: Boone John RizzoDem.019: Kansas City, Jackson

18 Senate Appropriations SenatorPartyDistrict Kurt Schafer (Chair)Rep.019: Boone, Randolph Ryan Silvey (Vice-Chair)Rep.017: Clay County Dan BrownRep.016: Phelps, Pulaski Mike KehoeRep.006: Cole, Gasconade, Maries, Miller, Moniteau, Morgan and Osage Mike ParsonRep.028: Benton Cedar, Dallas, Hickory, Laclede, Pettis, Polk and St. Clair David PearceRep.021: Caldwell, Carroll, Howard, Johnson, Lafayette, Livingston, Ray and Saline David SaterRep.029: Barry, Lawrence, McDonald, Stone and Taney Rob SchaafRep.034: Buchanan, Platte S. Kiki CurlsDem.009: Jackson Jamilah NasheedDem.005: St. Louis City Gina WalshDem.013: St. Louis County

19 2 nd Public Policy Priority Protect seniors against financial exploitation Senior Savings Protection Act SB244 and HB636

20 Senior Savings Protection Act What: Provides financial industry professionals with a path to voluntarily reach out to state agencies and family members when they suspect their senior clients are being exploited Allows them to refuse disbursements for up to 10 days so the state may review the situation Protects the growing senior population to ensure more are able to fully utilize savings they have built throughout a lifetime

21 Missouri’s senior population is rapidly growing Who: Including the growing number of people with Alzheimer’s who may be vulnerable to financial exploitation 110,000 people in Missouri have Alzheimer’s. That number will grow to 130,000 by 2025 Nationally, it is estimated that seniors loss $2.6 billion annually because of financial exploitation

22 SB244 and HB636 give professionals the tools they need to help protect senior investors Why: Financial professionals are often the first to identify suspected financial exploitation Currently, they can not risk potential liability for holding suspect disbursements or breaching industry privacy obligations by reaching out to family members or the state. This bill addresses these concerns Bill supporters include leaders in the financial industry and other senior advocacy groups If passed, it will make Missouri a national leader in senior investor protection laws

23 Memory Day Ask HB636 sponsored by Representative Barnes (Jefferson City) House Banking Committee SB244 sponsored by Senator Schmitt (Kirkwood) This bill has not been assigned to a committee Protect seniors against financial exploitation Senior Savings Protection Act HB636 and SB244

24 House Banking Committee RepresentativePartyDistrict Sandy Crawford, ChairRep.129 Laclede, Dallas Jeff Pogue, Vice ChairRep.143: Oregon, Shannon, Reynolds, Dent Jack BondonRep.56: KC, Cass, Bates Wanda BrownDem.57: Cass, Benton, Bates, Henry Don GosenRep.101:STL Alan GreenDem.067: STL Dave HinsonRep.119: Franklin, Washington Bill KiddRep.020: Jackson Mary NicholsDem.072: STL Bill OttoDem.070: STL Craig RedmonRep.004: Knox, Adair, Schuyler, Scotland, Clark, Lewis Noel ShullRep.016: KC

25 Questions

26 Alzheimer’s Service Grants R: I serve on the Budget Committee. Remind me, what is the appropriations request and what is it used for? AA: We are asking for $450,000 for Alzheimer’s grants that provide respite care assistance. These critically important funds support Missouri families caring for a loved one at home that has Alzheimer’s or a related dementia. The request is in the budget for Health and Senior Services (HB10).

27 Alzheimer’s Service Grants R: You mentioned that this respite program can save the state money. Please explain that to me. AA: Missouri spends more than $150 million annually to care for people with Alzheimer’s in nursing homes. 99% of the families in this program stated in a recent survey that respite assistance helped delay nursing home placement. If nursing placement was delayed by just one month for the people in the respite program, the state could save more than $2 million in Medicaid nursing home costs.

28 Alzheimer’s Service Grants R: Do you have suggests about where the state can get this money? AA: Representative, as a volunteer with the Alzheimer’s Association I do not know the answer. I do know about the heroic sacrifices families make caring for their loved ones at home and the $4 billion value of that uncompensated care. Additionally, when respite helps families keep their loved ones at home for a longer period of time, the state saves dollars paying for Medicaid nursing home care.

29 Alzheimer’s Service Grants R: I don’t serve on the budget committee so I can’t help you with this request. AA: Representative, we ask that you talk with your colleagues that serve on the appropriations and budget committees. Let them know how important this program is to the families in your district.

30 Alzheimer’s Service Grants R: I know the Governor withheld respite funding for this year. What is the status of that funding? AA: We are extremely pleased that the funding has been released and will provide respite assistance to the more than 350 families currently on the waiting list. I’d like to talk about funding for next year. Can we count on your support to ensure funding is in the budget for this critically important program?

31 Senior Savings Protection Act R: I am not familiar with the Senior Savings Protection Act. What specifically does the legislation do? AA: When a financial industry professional suspects that their senior client is being exploited, this legislation gives them the tools to slow down the process and investigate. It allows them to refuse disbursements for up to 10 days so the state may review the situation.

32 Senior Savings Protection Act R: So why is the Alzheimer’s Association supporting this? AA: 110,000 people in Missouri have Alzheimer’s. That number will grow to 130,000 by We want to ensure that protections are in place for individuals that may be vulnerable to financial exploitation including those with Alzheimer’s and related dementias.

33 Senior Savings Protection Act R: What other groups are supporting this legislation? AA: Leaders in the financial industry including Wells Fargo, Edward Jones, and SIFMA, the national trade association. Additionally, the Area Agencies on Aging and Silver Hair Legislature have made this a priority.

34 Chapter Services R: At times, I get calls from constituents who are struggling with the care of a family member with dementia. What support services are available? AA: The Alzheimer’s Association offers a comprehensive array of services including our Helpline that provides support to families 24/7/365. If you have a constituent in need, know that we are always available to offer support.

35 What we are asking for: Support Senior Savings Protection Act SB244 (Schmitt) and HB636 (Barnes) Fully Fund Alzheimer’s grants that provide Respite Care Assistance to Missouri families $450,000 in the Budget for Department of Health and Senior Services (HB10) Fully Fund Alzheimer’s grants that provide Respite Care Assistance to Missouri families $450,000 in the Budget for Department of Health and Senior Services (HB10) Protect seniors against financial exploitation Senior Savings Protection Act HB636 and SB244 Protect seniors against financial exploitation Senior Savings Protection Act HB636 and SB244

36 Together, we are making a difference! Thank you!