Why raise awareness – to save lives?

Why raise awareness – to reduce disability?

Acknowledgement Ms Jo Fen Liu Miss Maya Sussman Dr Sophie Wilne Professor Richard Grundy Professor Colin Kennedy Professor Jacqueline Collier Dr William Whitehouse Dr Gabby Chow Professor Michel Coleman Dr Thomas Chu London School of Hygiene and Tropical Medicine All Party Parliamentary Party Group HEADSMART Clinical Champions HEADSMART Project Team Jan Dudley - Chair Julia Trussler Paul Carbury Sarah Lindsell Lucie Clough Dr Peter Lachman Ian Phillips Dr Monica Lakhanpaul Neil and Angela Dickson HEADSMART Community Champions and Volunteers

Sustainability

3 into 1

Public Awareness Professional Awareness Enhance the experience of consultation ++ Reassure Review Refer

Sustainability

Professional Awareness - Confidence How confident are you in your ability to recognise when a child might have a brain tumour? Low? Intermediate? High?

How confident are you in your ability to recognise when a child might have a brain tumour?

Which of the following symptoms and signs do you think may occur in a child with a brain tumour? Symptom : abnormal head position

HeadSmart Clinical Champions

Median Symptom Interval All patients 8.0 weeks (min 0, MAX 398.1) 1.8 months (min 0, MAX 91.6) Pre-launch 9.2 weeks (min 0, MAX 398.1) 2.1 months (min0, MAX 91.6) Post-launch 7.4 weeks (min 0, MAX 363.6)1.7 months (min0, MAX 83.6) Median Symptom Interval All patients 8.0 weeks (min 0, MAX 398.1) 1.8 months (min 0, MAX 91.6) Pre-launch 9.2 weeks (min 0, MAX 398.1) 2.1 months (min0, MAX 91.6) Post-launch 7.4 weeks (min 0, MAX 363.6)1.7 months (min0, MAX 83.6) Symptom Interval by Month of Diagnosis (weeks) Symptom Interval by Month of Diagnosis (weeks) (Jan2011-Jan 2012, data extracted 30/01/2012) P25 – Median – P75  Sample size <10

Significant difference across 3 cohorts (Kruskal-Wallis test, p<0.01) No significant difference between pre- vs post-launch (Mann-Whitney U test, p=0.136) Median Symptom Interval (months) Multi-centre Studies in the UK P25 – Median- P75 30/01/2012

Professional Awareness – Symptom Interval What do you think is the average time from symptom interval currently experienced by children diagnosed with a brain tumour in England? <1 month 1-2 month 2-3 month 3-4 month 5-6 month >6 month

Professional Awareness – Symptom Interval What do you think is the average time from symptom interval currently experienced by children diagnosed with a brain tumour in England?

Delayed Diagnosis of Cancer: Thematic Review NPSA March 2010 / NRLS Groups 1 and 2

National Reporting and Learning System (NRLS)