Sustaining and Strengthening Family-Run Organizations Jane Kallal, CEO Family Involvement Center Maricopa County, Arizona Frank Rider, RTAC National Federation of Families - TA Partnership for Children’s Mental Health 14 November 2007 Technical Assistance Partnership for Children's Mental Health

Key Learning Objectives: 1.How to recognize, create and pursue opportunities to diversify financial support for family-run organizations 2.How to cultivate, create and embed opportunities for family-driven/youth-guided services at both individual and system levels 3.How to sustain and strengthen consequential family voice through leadership development, workforce development, organizational development and sharing the learning. Technical Assistance Partnership for Children's Mental Health

Many Families Have Felt Disenfranchised (Arizona Families Before Transformation)

Jane Knitzer’s Findings:  Children’s MH Problems Poorly Identified and Diagnosed  Ineffective Service Plans  Parents Blamed, Frustrated, Despairing Jane Knitzer (1982), Unclaimed Children  Parents, Against All Odds, Remained Committed to Their Children  Parents Fought, Often Heroically, for Their Children  Parents Were Resilient, Tenacious Knitzer (2005), Advocacy for Children’s Mental Health: A Personal Journey Technical Assistance Partnership for Children's Mental Health

Why Involve Families? 1. Subject Matter Experts: What Works? 2. Good Business: Strategic Partnership 3. Families as Cultural Guides 4. Families as Mutual-Support Resource That Enhances Clinical Services 5. Continuous Commitment to System Improvement 6. Families “Keep It Real” Technical Assistance Partnership for Children's Mental Health Family-Run Organizations as Transformation Agents Blau (2005), National Federation of Families conference and Cline/SAMHSA (2007)

Family Involvement Center opened its doors in Maricopa County, AZ in 2002 Technical Assistance Partnership for Children's Mental Health

What Arizona’s Family-Run Organizations Do Mentor and Support Families Develop and Organize Effective Family & Youth Voice within Transformation Infrastructures Provide Operational Support for Parent & Youth Leader Roles Public Education and Community Development Recruit, Train Families for BH Workforce, Leadership Roles Annapolis Coalition (2007) Recommendation #1 Train Service Providers (current and future) Build Bridges between Service Systems and Providers Provide Home and Community-Based Services Technical Assistance Partnership for Children's Mental Health

The Sustainability Challenge for Family-Run Organizations Sustainability is: Long-term survival of services and programs that were initiated with grants or other specialized funding: TA Partnership (2005) Sustainability Tool Kit Family support services and mentoring decreased Supporting and maintaining an active family organization in the community decreased Family involvement in the service planning and delivery process (services level) increased, but Family involvement in system policy and management (system level) decreased. Stroul, Univ. of So. Florida (2006) Technical Assistance Partnership for Children's Mental Health

1. Diversify Financial Support for Family-Run Organizations Key Premise: Public Investment in “Family Driven” Is Cost-Effective Resources to Seed Family-Run Organizations Develop Sustainable Business Enterprises Traditional Funding/Fundraising Strategies Most Effective Financing Strategies (Stroul 2006) Technical Assistance Partnership for Children's Mental Health

Questions and Answers To ask a question, you can unmute your phone by dialing Star (*) 7. Mute your phone again by dialing Star (*) 6. Technical Assistance Partnership for Children's Mental Health

Family Member State Medicaid Agency Education Child Welfare State BH and regional MCOs Family Member Juvenile Corrections Other Family Members 2. Cultivate and Embed Opportunities for Family-Driven Services at both individual/service and system/policy levels

Embedding the Arizona Principle: Collaboration with the Child and Family JK Settlement ( ) - Families invited to participate. 300 Kids Pilot (2001) hires parent as a Systems Development leader in Maricopa County Early Visioning: Family Support for all who need it Arizona Children’s Executive Committee ( ):  Established Family Involvement Subcommittee  Adopted Family Involvement Framework Governors Office, Children’s Cabinet ( ) Technical Assistance Partnership for Children's Mental Health

Family-Run Organizations Woven into Structure of Arizona’s Behavioral Health System AHCCCS ( State Medicaid Agency ) Arizona Department of Health Services/ Behavioral Health Services Pascua Yaqui Tribal RBHA Community Partnership of Southern Arizona (CPSA) Magellan HS Northern Arizona RBHA (NARBHA) Cenpatico BH Subcontracted Providers (including MIKID) Subcontracted Providers (including FIC) Gila River Tribal RBHA Subcontracted Providers (including MIKID) Family Involvement Center (FIC) MIKID

Arizona Family Organizations’ Partnership Approach to Develop and Sustain Consequential Family and Youth Voice in System Transformation Technical Assistance Partnership for Children's Mental Health

Embed Transformative Family Voice Portals throughout System at Numerous Levels  Participation in Leadership, Advocacy Venues, Policy Development and Planning Groups  Families as Trainers, Coaches and New Hire Panelists  Families as Case Managers, Service Providers, System Navigators and Per-to-Peer Supports  Families in Continuous Quality Improvement Roles Technical Assistance Partnership for Children's Mental Health

Questions and Answers To ask a question, you can unmute your phone by dialing Star (*) 7. Mute your phone again by dialing Star (*) 6. Technical Assistance Partnership for Children's Mental Health

3. Sustain and strengthen consequential family voice thru: A. leadership development B. workforce development C. organizational development, and D. sharing the learning. Technical Assistance Partnership for Children's Mental Health

The SOC Workforce Needs Families “Broadening the Concept of Workforce: Goal #1: Significantly expand the role of individuals in recovery, and their families when appropriate, to participate in, ultimately direct, or accept responsibility for their own care; provide care and support to others; and educate the workforce.” The Annapolis Coalition on the Behavioral Health Workforce, Building a Strategic Plan for Behavioral Health Workforce Development (2007) Technical Assistance Partnership for Children's Mental Health

Organization Development Organization (Self-)Assessment Domains: Values Leadership Development Partnerships Access and Referrals Meeting Family Needs Productive Working Relationships Sustainability Supporting Youth Involvement Technical Assistance Partnership for Children's Mental Health

Sharing the Learning TA Partnership – Monthly Affinity Calls Arizona Institute for Family Involvement Peer to Peer Support Reinforces Leadership Development by providing opportunities to learn through teaching Technical Assistance Partnership for Children's Mental Health

Resources/References  Annapolis Coalition Strategic Plan for the Nation’s Behavioral Health Workforce (2007): ng.php ng.php  Stroul (2006) Sustainability Study  USF Research & Training Center (2007), Quick Guide for Self- Assessment of Family-Run Organizations in Systems of Care:  Family Involvement Center website:  TA Partnership Resources: on Family Involvement: On Sustainability: sp sp

Jane Kallal CEO, Family Involvement Center, AZ Institute for Family Involvement Frank Rider MS, RTAC Gwen Palmer Kim Williams National Federation/TA Partnership For further information, assistance: Technical Assistance Partnership for Children's Mental Health

Questions and Answers To ask a question, you can unmute your phone by dialing Star (*) 7. Mute your phone again by dialing Star (*) 6. Technical Assistance Partnership for Children's Mental Health