Local Communities ACT on Alzheimer’s Georgia Lane, LGSW Carondelet Village St. Paul Neighborhoods ACT on Alzheimers Presented to EVOLVE! 03/08/13 1

What is ACT on Alzheimer’s statewide collaborative voluntary 50+ ORGANIZATIONS 150+ INDIVIDUALS IMPACTS OF ALZHEIMER’S BUDGETARYSOCIAL PERSONAL 2

Genesis of ACT on Alzheimer’s 2009 Legislative Mandate for Alzheimer’s Disease Working Group (ADWG) Legislative Report Filed in January 2011 ACT on Alzheimer’s is second generation of work focusing on implementation 3

Collaborative Structure LEADERSHIP COUNCIL Advisors Strategists Champions 35+ MANAGEMENT STEERING COMMITTEE Organizations actively involved in day-to-day operations 10 + OPERATIONS Executive Lead Project Director Project Manager Five Leadership Groups Fiscal Sponsor Host

sustain caregivers raise awareness & reduce stigma Goals of ACT on Alzheimer’s identify & invest in promising approaches increase detection & improve care equip communities 5

Equip Communities and Raise Awareness Develop a Community Toolkit to assist communities in becoming dementia capable so they can support their residents who are touched by Alzheimer’s disease Support community implementation of the Toolkit 6

What is a Dementia Capable Community? A dementia capable community: Informed Safe and respectful of individuals with dementia and their families Provides supportive options Fosters quality of life 7 West Central Dementia Awareness Network Willmar, MN

Key Elements of a Dementia Capable Community 8

Phases of Community Action Convene key community leaders and members to form an Action Team. Assess current strengths and gaps within the community. Assess community needs and develop a plan to take action. ACT Together to pursue priority goals to foster community readiness for dementia. 9

Tools for Each Phase Prepare to develop an action team How to establish your community team Organizing your team and meetings How to build awareness Community Needs Assessment, includes 14 Sector-Based Surveys Synthesizing the Assessment Dementia Capable Community Action Plan Template 10

Pilot Action Communities Willmar Area Dementia Network (Willmar Area) Walker Community Coalition (Walker, MN) Twin Cities Jewish Community Alzheimer’s Task Force St. Louis Park/Hopkins Coalition St. Paul Neighborhoods Coalition 11

St. Paul Neighborhood’s ACT WHO: Carondelet Village seeks collaboration with key stakeholders from multiple sectors to look at the impact of Alzheimer’s in our community Initial Planning Team – Carondelet Village (Convener), Alzheimer’s Association, MAAA, Wilder, and St. Paul Mayor’s Advisory Council on Aging Strategy: Identify Key Community Influencers 12

First step : to determine the scope of our community – Chose to start with 6 neighborhoods – Highland Park, Mac-Groveland, West 7 th, Summit Hill, Summit University, and Union/Merriam Park 13 How Do We Define “Community”?

Initial Outreach Strategy “Divide and Conquer” Important to be strategic in connections—build off existing relationships No existing formal coalition has been established in our neighborhoods focused on dementia.

Organization Strategy: February 12 th Kick Off Event Kick-off Event held to call community to ACT! Elected Officials Panel – Mayor Chris Coleman, City of St. Paul – Lieutenant Governor Yvonne Prettner Solon, State of Minnesota – April Shaw, on behalf of U.S. Congresswoman Betty McCollum – Commissioner Toni Carter, District 4, Ramsey County – Councilmember Chris Tolbert, City of St. Paul Content Experts & Project Logistics Panel – Sue Spalding, Executive Director, Alzheimer’s Association of Minnesota – Olivia Mastry, Executive Lead, ACT on Alzheimer’s – Dawn Simonson, Executive Director, Metropolitan Area Agency on Aging – Georgia Lane, Team Lead, Saint Paul Neighborhoods ACT – Community Care Partners 15

Phase 1: Next Steps Solidify who is on the team Familiarize ourselves with the assessment tools and process. Seeking broad representation Meeting scheduled for March 5 th, 3-5 PM at Carondelet Village 16

17 Sept-Oct 2012: Establish pilot status and develop work plan Oct-Jan : Assemble planning team and identify broad base of community stakeholders Feb : Convene community kick-off event and raise awareness. Build momentum. March-April : Convene follow up, assemble team, orient on assessment process and assign responsibilities Year 1 Timeline

Year 1 Timeline 2013 (Cont’d) April-May : Conduct Assessments June: Synthesize Results July-Sept: Review Results and prioritize 1-2 year community goals Sept-Dec: Develop implementation plan, establish success measures, responsibilities, and begin to implement priority dementia goals 18

Years 2-3 Timeline Execute on plan Evaluate progress in partnership with ACT Revise plan as community needs evolve Share learnings with other communities across Minnesota 19

How YOU can ACT today! Learn more: Join a pilot community Start the conversation in YOUR community 20

© Join Us! 21 Q & A Discussion