Living with Cystic Fibrosis Vaughan Somerville

Who am I

1.Heel Prick 2.Sweat Test 3.Heel Prick Diagnosis

 Effects 1 in 2500 people  ~ 450 people in NZ  Average life expectancy  97% of males are in fertile What is Cystic Fibrosis (CF)

BUT…. Cystic Fibrosis isn’t statistics

 The talk is going to cover three main areas 1.Childhood 2.Adolescence 3.Adulthood Living with Cystic Fibrosis

 Treatment  Physiotherapy x2  Nebulisers Childhood

 Treatment  Tablets  Antibiotics  Vitamins  Creon Childhood

 Treatment  Hospital Admissions Childhood

 School  Trying to be a ‘normal’ teenager  Girls  Temptations  How to say no Adolescence

 Maturity  Self Management Adolescence

 Hospital  Time away from friends/school/sport  Second home  Long days and nights

 Further Education  Ups and downs Adolescence

 What the future holds  Wife?  Children? Adulthood

 What the future holds  Career? Adulthood

 What the future holds  Transplant? Adulthood

You have brains in your head Your have feet in your shoes You can steer yourself in any direction you choose -Dr Seuss

Thank you for letting me share my story, my journey and my life