Gone local…or missing in action? Pam Duncan Policy Officer, ILiS

Coming up… Independent living and human rights –History, legal and policy context From rights to reality –Some stats/examples –Subsidiarity & asymmetry Going local –Coproduction –Human rights

History … It’s our world too About Scotland’s disabled people’s Independent Living Movement Disabled people frustrated with lack of choice and control Independent Living Movement develops in America the 60’s Independent Living Movement live and kicking in Scotland!

Independent Living means: “disabled people of all ages having the same freedom, choice, dignity and control as other citizens at home, at work, and in the community. It does not mean living by yourself, or fending for yourself. It means rights to practical assistance and support to participate in society and live an ordinary life”.

The role independent living plays in protecting the human rights of disabled people is recognised and underpinned by international human rights and equalities obligations to which the UK and Scotland are party to

Independent living and human rights – the Law National: –The Scotland Act (1998) –The Human Rights Act (1998) –Disabled Persons (Services, Consultation and Representatives) Act 1986 –Equality Act 2010 –Social Care (Self-directed Support) Act (2013) International –European Convention on Human Rights –United Nations Convention on the Rights of People with Disabilities (UNCRPD) The vision for independent living in Scotland

The reality: Inequality across many of the national outcomes 47.5% of families with disabled people in them, live in poverty disabled people = 6% of formal volunteers and around 4.3% of public appointments vs. 20% of non disabled people 74% of disabled adults experience restrictions in using transport vs. 58% of non-disabled adults 39% of disabled people vs. 92% of non-disabled people, say they are in good health Disabled people are almost twice as likely to be NEET 46.9% of disabled adults in work vs. 71% non-disabled adults People who have experienced homelessness are more likely to be disabled

Independent living needs social change Nothing about us without us

The reality: influencing change Subsidiarity – what is ‘close’ to the people? –Disabled people are seldom heard Asymmetry – avoid a ‘one-size-fits-all’ vs illegitimate variation –Variation in how rights are applied –Disabled people’s rights are the responsibility of everyone

Going local? Coproduction Whichever way – and wherever we make them – decisions must be coproduced Doing it together will get better results We’ve all done it – bet we can get better! ‘All Together Better’ toolkit and case studies

P articipation: Well resourced & organized DPOs A ccountability: National, legally enforceable, frameworks with standards that promote & protect equality and human rights N on-discrimination: practical assistance & support for independent living is not discretionary E mpowerment: Coproduction & participation L egality: practical assistance & support for independent living is not discretionary Going local? E mbed human rights

Visit to find out more aboutwww.ilis.co.uk Independent living Equality legislation Human Rights and UNCRPD Coproduction Find out more