Arthritis Foundation Indiana Chapter Amber Wolfe AgrAbility Project Coordinator.

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Presentation transcript:

Arthritis Foundation Indiana Chapter Amber Wolfe AgrAbility Project Coordinator

Arthritis Foundation Mission “..to improve lives through leadership in the prevention, control and cure of arthritis and related diseases.”

Arthritis Defined… The term arthritis refers to an “inflammation of a joint”. It is used to refer to over 100 rheumatic diseases that are characterized by problems in and around joints.

Arthritis: A Nation in Pain 46 Million in the US have doctor diagnosed Arthritis46 Million in the US have doctor diagnosed Arthritis 17.4 million adults experience activity limitations17.4 million adults experience activity limitations More than half of the individuals who have arthritis are younger than 65 years oldMore than half of the individuals who have arthritis are younger than 65 years old Nearly 300,000 children (approx. 6,400 in Indiana)Nearly 300,000 children (approx. 6,400 in Indiana) Overall, women are affected more often than menOverall, women are affected more often than men 2 nd only to heart disease as a cause of work disability2 nd only to heart disease as a cause of work disability Arthritis is one of the leading causes of disability in the USArthritis is one of the leading causes of disability in the US

Common Forms of Arthritis in the US Osteoarthritis- 27 millionOsteoarthritis- 27 million Rheumatoid Arthritis- 1.3 millionRheumatoid Arthritis- 1.3 million Gout- 3 millionGout- 3 million Fibromyalgia- 5 millionFibromyalgia- 5 million Juvenile Rheumatoid Arthritis- 300,000Juvenile Rheumatoid Arthritis- 300,000

Osteoarthritis Osteoarthritis Usually begins after age 40Usually begins after age 40 Affects only certain joints, often affects joints on ONE side of the body at first, rarely affects elbows or shouldersAffects only certain joints, often affects joints on ONE side of the body at first, rarely affects elbows or shoulders Usually doesn’t cause redness, warmth, swelling of a jointUsually doesn’t cause redness, warmth, swelling of a joint Affects the range of motion of the joint, pain/tendernessAffects the range of motion of the joint, pain/tenderness 6 Photos courtesy of Health Hype

Rheumatoid Arthritis Usually begins between ages Causes redness, warmth and swelling of joints Often causes a general feeling of sickness, fatigue, weight loss and fever 7 Photos courtesy of Health Hype

Pain Management Early DetectionEarly Detection ExerciseExercise Joint Protection-Body MechanicsJoint Protection-Body Mechanics Diet-Weight ControlDiet-Weight Control MedicationsMedications Education- Beware of Unproven MethodsEducation- Beware of Unproven Methods

Arthritis Foundation Milestones  A group of physicians established the Arthritis and Rheumatism Foundation  1964 – ARF reorganized and became the Arthritis Foundation  Today - Nation’s leading health organization addressing Americans affected by arthritis The Power of 60! Celebrated 60 years of funding breakthroughs and changing lives.  Tomorrow – A world free of arthritis pain!

VISION 2010  46 Million Reasons Today- 67 Million Reasons Tomorrow! Arthritis in the US is projected to increase by 46% from 46 million (1 in 5) today to 67 million (1 in 4) in 2030.

VISION 2010 o Shifting focus to improving health through wide-scale delivery of programs, organizing the “voice” of people with arthritis, and ensuring progress in arthritis research  Current strategic plan focuses on Healthy People 2010 goals: Reduce arthritis pain Reduce activity limitations due to arthritis Reduce racial disparities in arthritis care Promote visits to competent care providers

Advocacy Update  Build legislative support with other stakeholders for passage of the Arthritis Prevention Control and Cure Act (APCCA)  Intensify efforts to boost federal funding for arthritis research and public health programs  Strengthen Washington DC ‘footprint’ for the AF and arthritis as a major chronic disease  Join forces with leading VHAs calling for effective and affordable healthcare coverage for all Americans

Health Care Reform  Elimination of 24-Month Waiting Period  Pass legislation that will limit the monthly out-of-pocket costs patients face for their prescriptions  Affordable Health Choices Act 2009  Drug manufacturers have agreed to provide as much as $80 billion worth of discounts for brand drugs

Indiana Chapter Initiatives 2009 Riley Hospital for Children Fellowship Riley Hospital for Children Fellowship Fundraising Goals Fundraising Goals Major Gifts Major Gifts Awareness Campaign Awareness Campaign Advocacy Summit, AJAO Conf. Advocacy Summit, AJAO Conf.

Community Exercise Programs Land Based Exercise ProgramsLand Based Exercise Programs Aquatics ProgramsAquatics Programs Self Help ProgramsSelf Help Programs Tai Chi for ArthritisTai Chi for Arthritis

Fundraising Events- Indiana Chapter Arthritis Walk Arthritis Walk Bone Bash Bone Bash Jingle Bell Run Jingle Bell Run Chapter Specific Events Chapter Specific Events –Wine Festivals, 8 Ball Tournament, Tail Gate Fundraisers

Education and Awareness Educational MaterialsEducational Materials Health FairsHealth Fairs Instructor TrainingInstructor Training Physician Referral ServicePhysician Referral Service Scholarship ProgramsScholarship Programs AgrAbilityAgrAbility

Indiana Chapter AgrAbility Projects Arthritis and Agriculture Brochure Arthritis and Agriculture Brochure Plain Facts Brochure Plain Facts Brochure Gaining Ground on Arthritis DVD Gaining Ground on Arthritis DVD Spanish Fotonovela Spanish Fotonovela Arthritis and Agriculture Website Arthritis and Agriculture Website Arthritis Community of Interest Arthritis Community of Interest Health Fairs, Auctions, Fairs, Conferences Health Fairs, Auctions, Fairs, Conferences Public Service Media- Ad Council 2010 Public Service Media- Ad Council 2010 Educator’s Resource Kit Educator’s Resource Kit

AF Offices- AgrAbility States California (4): San Diego, Southern CA (San Diego), Northern CA (San Francisco), Northeast (Sacramento, CA) California (4): San Diego, Southern CA (San Diego), Northern CA (San Francisco), Northeast (Sacramento, CA) Colorado & Wyoming: Rocky Mtn. Chapter, Denver, CO Colorado & Wyoming: Rocky Mtn. Chapter, Denver, CO Georgia Chapter: Atlanta Georgia Chapter: Atlanta Idaho & Utah: Utah Chapter, Salt Lake City, UT Idaho & Utah: Utah Chapter, Salt Lake City, UT Illinois (2): Greater Chicago (Chicago, IL), Greater Illinois (Peoria, IL) Illinois (2): Greater Chicago (Chicago, IL), Greater Illinois (Peoria, IL) Kansas Chapter: Wichita Kansas Chapter: Wichita Michigan Chapter: Troy Michigan Chapter: Troy Maryland & Delaware: Maryland Chapter, Owings Mills, MD Maryland & Delaware: Maryland Chapter, Owings Mills, MD Mississippi Chapter: Ridgeland Mississippi Chapter: Ridgeland Minnesota Chapter: St. Paul Minnesota Chapter: St. Paul Texas: Greater Southwest (Phoenix, AZ), Texas Chapter (Dallas) Texas: Greater Southwest (Phoenix, AZ), Texas Chapter (Dallas)

AF Offices- AgrAbility States Missouri: Greater Kansas City Chapter: Prairie Village, KS Missouri: Greater Kansas City Chapter: Prairie Village, KS Nebraska Chapter: Omaha Nebraska Chapter: Omaha Oklahoma: Eastern OK Chapter, Tulsa, OK Oklahoma: Eastern OK Chapter, Tulsa, OK Pennsylvania (3): East Central (Philadelphia), Central (Harrisburg), Western (Pittsburgh) Pennsylvania (3): East Central (Philadelphia), Central (Harrisburg), Western (Pittsburgh) Ohio (4): Central (Hilliard), Northwestern (Chicago), Ohio River Valley (Cincinnati), Northeastern (Cleveland) Ohio (4): Central (Hilliard), Northwestern (Chicago), Ohio River Valley (Cincinnati), Northeastern (Cleveland) Tennessee Chapter: Nashville Tennessee Chapter: Nashville Kentucky Chapter: Ohio River Valley Chapter, Cincinnati, OH Kentucky Chapter: Ohio River Valley Chapter, Cincinnati, OH Vermont: Northern/Southern New England Chapter, Rocky Hill, CT Vermont: Northern/Southern New England Chapter, Rocky Hill, CT Virginia Chapter: Richmond Virginia Chapter: Richmond West Virginia: Maryland and Ohio River Valley Chapters (Cincinatti) West Virginia: Maryland and Ohio River Valley Chapters (Cincinatti) Wisconsin Chapter: West Allis Wisconsin Chapter: West Allis

Arthritis Foundation  National Office  P.O. Box 7669 Atlanta, GA    Indiana Chapter  615 N. Alabama St Suite 430 Indianapolis, IN    Fax 