South West Experience

How we went about Different Perspectives Findings Questions But first …………………..

 Transparent baseline of existing performance for 18 Acute hospitals across NHS South West  Find existing best practice to share  Create partnership capacity, awareness and improvement action

 Co-production at the centre of the process  Joint PCT / SHA initiative  Project management to plan and co-ordinate  Steering Group  Development of self assessment tool  Briefing events – communications –web site  18 review- 2 month period involved – 2/3 reviews peer week  Review teams 8-10 people (over 100 involved)  Visits - whole day and evening meeting  Individual site reports  Action plans and regional report

 Learning Disability Champion  Family carer  Adult Social Care  Independent provider  Third Sector  LINk  Commissioning Lead  Clinician  Director of Nursing  Learning Disability Nurse  Allied Health Professional

 Listen to people with learning disability and carers  Respect role of the carer and their knowledge  Staff to know about the Mental Capacity act  Cut the jargon and medic speak  Communication skills – impact on eating, drinking, pain – basic care  People with a learning disability and carers need to be paid to develop and deliver training  Avoid tunnel vision (focusing on own speciality)  Reasonable adjustments captured documented (systems)

 Independent Co Chair of Cornwall’s Learning Disability Partnership  Chair of Cornwall People First  Previously an Advocacy Development Project Officer for Cornwall  Member of the Steering Group for South West Acute Hospital Reviews  Completed several reviews  Participated in a number of follow on events both regionally and nationally.  Passion about co-production, communication and personalisation

 More Co-production - Nothing about us – without us  Champions on each ward / shift  Liaison nurse is just 1 st step  People with a learning disability paid to develop and deliver training  Clear communication,  letter in easy read format  picture of who I am going to see  easy read map.

 Good planning – stick to it  Different communication methods for different people.  Person centred approach - Understand my network of support  Health passports in all hospitals used by all staff  Access to easy read material - benefits everyone (children, trauma, literacy problems)

 Issues apply to all patients - a litmus test  Evidence for commissioners, better quality and productivity  Strong local relationships have been formed  Transparent action plan with LiNKs, Partnership Boards and CQC  Can extend to other local services  learning to share locally and nationally

 Liaison Nurse 8/18 trust have one – impact was significant  Access to easy read information as templates was most under developed area - medication, treatments and procedures  Flagging – no consistent ways to identify and remember  Fundamental care –scored well  Capacity, Consent & Safeguarding – 67% actively addressing this  97% Trusts had reasonable adjustments action plan in place

 More than 50 examples of best practice - EVERY hospital had examples  Liaison Nursing with top level support  Leadership to improve  Accessible information  Flagging systems  Check how you are doing and improving  Involving people and their families