1 Presentation by Mrs Janet Jacob Psychiatric nurse & former homes manager for Pilgrims Friend Society Presentation by Mrs Janet Jacob Psychiatric nurse & former homes manager for Pilgrims Friend Society Person Centred Care The Care Giver The Spiritual Journey and the Churches Role

2 Pilgrims Friend Society is 204 years old Exists solely to serve older Christians Began by providing pensions – long before the Welfare State (1807) Offers residential, nursing, dementia care, sheltered housing, including ECH Shares experience and information with publications, seminars and conferences. Pilgrims Friend Society is 204 years old Exists solely to serve older Christians Began by providing pensions – long before the Welfare State (1807) Offers residential, nursing, dementia care, sheltered housing, including ECH Shares experience and information with publications, seminars and conferences.

3 Person Centred Care The Care Giver The Spiritual Journey and the Churches Role

Person Centred Care We expect a pill for nearly every condition. At present there is no cure for dementia. Personal knowledge is vital for good care. 4

Person Centred Care 5 Prof Tom Kitwood – Bradford University Introduced the concept of person centred care. Moved focus from the medical mindset to the individual. The brain is not a mechanical rigid structure It has plasticity Responds to the treatment the person receives

Person Centred Care 6 Penny Garner – Professional carer ‘Contented Dementia’ - takes Tom Kitwood’s concepts to a new level Specialised Early Care for Alzheimer’s

Person Centred Care 7 A practical approach based on knowledge of the individual. Ability to identify the persons inner landscape. Knowledge of their life themes and core beliefs.

Person Centred Care 8 ‘It is important to see the person first rather than the dementia’ – Tom Kirkwood Each human face is unique, and so is each human brain. Each person with Dementia is unique, with very different experiences of life, with their own needs and feelings, likes and dislikes. Caring for the person with dementia

Person Centred Care 9 Caring for the person with dementia Discover the person Give respect Focus on their abilities Encourage expressions Create community and trust Discover the person Give respect Focus on their abilities Encourage expressions Create community and trust Remember:- The person is still the same. Focus on the person not the dementia. Good care depends on understanding and knowing. Carers relationship is therapeutic in itself.

Caring for the care-giver 10 Despite our welfare system, the major role in care-giving is still taken on by family members, very often an elderly spouse. Despite our welfare system, the major role in care-giving is still taken on by family members, very often an elderly spouse. The person with dementia is not on this journey alone, the caregiver is walking beside them.

Caring for the care-giver 11 Caring for a person with dementia is different to other types of care giving, and is one of the most difficult situations encountered by caregivers.  Usually 24/7  May involve 3 to 15 years of caring  2/3rds of people with dementia are cared for in their own homes by a relative  At present there are 540,000 care givers  A new case is diagnosed every 3.2 minutes  Usually 24/7  May involve 3 to 15 years of caring  2/3rds of people with dementia are cared for in their own homes by a relative  At present there are 540,000 care givers  A new case is diagnosed every 3.2 minutes

Caring for the care-giver 12 Care givers experience  Continuing losses  Anticipatory grief  Role captivity  Emotional reactions  Continuing losses  Anticipatory grief  Role captivity  Emotional reactions

Caring for the care-giver 13 Importance of relationships Avoid isolation Share the diagnoses Let the church family know Prepare for the future Anticipate your feelings Avoid isolation Share the diagnoses Let the church family know Prepare for the future Anticipate your feelings

Caring for the care-giver 14 Care givers needs Empathy Re-assurance Time for self Share the responsibility Assessment of needs Talk to others Human contact Spiritual encouragement Empathy Re-assurance Time for self Share the responsibility Assessment of needs Talk to others Human contact Spiritual encouragement

The Spiritual Journey 15 ‘I believe that people with dementia are making an important journey from cognition, through emotion, into spirit. I’ve begun to realise what really remains through this journey is what is really important. I think that if society could appreciate this, then people with dementia would be treasured and accepted’. ‘I believe that people with dementia are making an important journey from cognition, through emotion, into spirit. I’ve begun to realise what really remains through this journey is what is really important. I think that if society could appreciate this, then people with dementia would be treasured and accepted’. Christine Bryden

The Spiritual Journey 16 People with dementia are on a pilgrimage They need fellowship and encouragement The person does not change The core of the person is still inside The King will reply ‘ I tell you the truth whatever you did for the least of these brothers of mine you did it for me’. Matt 25:40

The Spiritual Journey 17 When you pass through the waters, I will be with you; and when you pass through the rivers, they will not sweep over you. When you walk through the fire, you will not be burned; the flames will not set you ablaze. For I am the LORD your God, the Holy One of Israel, your Saviour. Isaiah 43:2-3 When you pass through the waters, I will be with you; and when you pass through the rivers, they will not sweep over you. When you walk through the fire, you will not be burned; the flames will not set you ablaze. For I am the LORD your God, the Holy One of Israel, your Saviour. Isaiah 43:2-3

18 B lessed are they who understand My faltering steps and shaking hand. B lessed, they who know my ears today Must strain to catch the words they say. B lessed are they with a cheery smile Who stop to chat for a while. B lessed are they who never say ‘You’ve told us that story twice today’. B lessed are they who make it known That I am loved, respected and not alone. B lessed are they who understand My faltering steps and shaking hand. B lessed, they who know my ears today Must strain to catch the words they say. B lessed are they with a cheery smile Who stop to chat for a while. B lessed are they who never say ‘You’ve told us that story twice today’. B lessed are they who make it known That I am loved, respected and not alone.