Traumatic Brain Injury Toolkit Traumatic Brain Injury Education Series April 25, 2005

Overview Why the toolkit was developed How the toolkit is organized Who can use it

TBI Planning Grant –Grant that looked at current systems for providing services to persons with TBI and their families. This included surveys of: Providers of services People with TBI and their families –As a result of statewide stakeholder input from persons with TBI and their families, as well as providers, it became clear that we needed to promote better awareness about brain injury, as well as information about how to access resources

Implementation Grant –Three year grant awarded in 2003 –Goal is to improve access to healthcare and other services for people with TBI –Multiple objectives in grant

Focus today is on the education and training objective: Providing persons with TBI and their families with a product to assist them in learning about TBI and connecting to resources

Development of Toolkit Directed by persons with TBI and their families Input from providers Collaboration with volunteer work groups, focus groups, grant partners, with a cross section of people Conducted review of current materials and products for possible inclusion in kits. (e.g. components of CDC TBI toolkit developed for physicians)

Tool Kit Cover

Format The toolkit is divided into two sections: I. Fact sheets for individuals with TBI and their families II. Fact sheets for providers III.Each section has two components: Children Adults

Toolkit Contents and Organizing Principles

Fact Sheets for persons with TBI and their families At the time of injury, overload of information Stakeholders wanted a flexible product that would meet their needs at different times Tool kits were developed, with different information that can be provided at different times

Table of Contents

AudienceCategoryTopic (Organizing Principles) Person with TBI// Caregivers/ Natural Supports About TBIGeneral guide on symptoms, mild vs. acute, different types of injuries What do I do next? Tests to evaluate your injury TBI treatments Glossary of terms When your head has been hurt: facts for children and adults Facts about comas The recovery process  What to expect including:■ Stages of recovery Range of symptoms Signs of improvement Rancho Los Amigos scale Glasgow Coma Scale Working with your health care team How to cope with TBI and common reactions After you leave the hospital When to contact your provider (physician, clinician, case manager) The role of rehab Back to School with TBI Person with TBI/ Caregivers Where to get help (resources) Self-advocacy; how to navigate the system Brain injury resources, organizations with phone numbers and web addresses Where to go for support (mentors, support groups, hotlines, etc.)

About TBI General guide on symptoms, mild vs. acute, different types of injuries What do I do next? Tests to evaluate your injury TBI treatments Glossary of terms When your head has been hurt: facts for children and adults Facts about comas Sample Sources: Centers for Disease Control 2004/2003

The recovery process What to expect including: –Stages of recovery –Range of symptoms –Signs of improvement –Rancho Los Amigos scale –Glasgow Coma Scale Working with your health care team How to cope with TBI and common reactions After you leave the hospital When to contact your provider (physician, clinician, case manager) The role of rehab Back to School with TBI

Where to get help (resources) Self-advocacy; how to navigate the system Brain injury resources, organizations with phone numbers and web addresses Where to go for support (mentors, support groups, hotlines, etc.)

Provider Table of Contents

AudienceCategoryTopic (Organizing Principles) ProviderDiagnosisTBI, signs and symptoms Definition of MTBI Tests History taking TreatmentManagement approaches The role of rehab Facilitating recovery Communicating with families Cultural diversity and the role it plays in treatment and recovery Special needs for children with TBI including fact sheets: Tips for Parents, Tips for Teachers ResourcesReferences for articles and links to information

Provider Fact Sheets Designed: –For different levels of knowledge and expertise about TBI –For people with a broader focus and other expertise –As a tool to more effectively support people with TBI and their families –For multiple uses in multiple settings

Diagnosis TBI, signs and symptoms Definition of MTBI Tests History taking

Treatment Management approaches The role of rehab

Facilitating recovery Communicating with families Cultural diversity and the role it plays in treatment and recovery Special needs for children with TBI including fact sheets: Tips for Parents, Tips for Teachers

Resources References for articles and links to information

SUMMARY The tool kits are designed: to provide persons with TBI and their families with useful, direct information, and additional resources they may need now or in the future, and To increase the knowledge of providers about TBI, and provide them with informational materials that they can give to persons with TBI and their families with whom they work